Aa
Long term after effects of tx w/Pegasys or PegIntron?
I did tx twice for hcv, thankfully ending tx with an SVR in 2004. I had to stop tx due to heart rhythm abnormality, but was blessed w/the SVR anyway. Since then I have not recovered my strength. I had undiagnosed infection since 1981. Not dx until 2001. Bx was stage 2, grade 2 in 2001, and also had fatty liver. Besides the hcv, I have COPD, Breast cancer and back problems, all which COULD cause fatigue, but I had the same fatigue for 20 yrs prior to these other conditions. I am wondering if anyone is suffering long term after effects since discontinuation of Pegasys or PegIntron? My fatigue was prevalent b4 cancer surgery, etc. I still have more bc surgery and medicines to go. The fatigue I feel is just the same as the fatigue I felt prior to tx, along with appetite loss, trouble gaining any weight, hair loss, stomach upset and the list goes on. Would be glad to hear any thoughts on this..
Thank you..
Thank you..
I can relate a lot to what Ina says. Skin problems persist, metabolic syndrome has gotten worse, and lost interest in things and friends. Part I attribute to the physical effect of interferon and part I attribute to the psycholgical effect of treating for over a year. Akin to post traumatic shock syndrome IMO. Only thing I seem get up for these days are my workouts. I'm hoping that better conditioning will eventually cross over into some of the other things. Also, plan on trying some meditation and Chinese Herbs at some point. Can you believe TM (trans meditation) is charging $2,500 for a mantra these days. LOL. I remember when it was around $200 and I thought it expensive then. Guess I'll just have to use a freebie Mantra I've got lying around.
Would I treat again, knowing everything I do now includidng what happened to me during treatment and the little we know about the newer drugs in the pipeline? First, I'd re-biopsy as I was working with a three year old biopsy. If they told me that I was between stage 2 and 3, I would not retreat even though in this hypothetical I knew I'd be SVR. I felt fine before treating, don't feel fine after treating, plus lost two years of my life. Why would I re-treat again with these drugs???????
-- Jim
Would I treat again, knowing everything I do now includidng what happened to me during treatment and the little we know about the newer drugs in the pipeline? First, I'd re-biopsy as I was working with a three year old biopsy. If they told me that I was between stage 2 and 3, I would not retreat even though in this hypothetical I knew I'd be SVR. I felt fine before treating, don't feel fine after treating, plus lost two years of my life. Why would I re-treat again with these drugs???????
-- Jim
Just read this post, and want to give my SVR laundry list.
Totally impossible to sleep without sleep aides.
Engulfed in a brain fog so dense, can't see the wall in front of me.
Different rashes over my body, and face still not back to normal.
I had plenty of energy before tx, but very little now.
I developed insulin resistance too, but after 7 month of ultra, ultra low carb diet, brought the glucose down to a normal range, and the triglycerides from 220 to 44.
Developed gluten sensitivity after my first tx, which exploded after second tx.
Osteoarthritis of lumbar spine was mild-moderate before tx, now it's considered severe...don't know if there is a relation.
Depression now being tx with Lexapro.
Libido, what is that...it's so totally gone, sex is only a faint memory now.I don't bother to try anymore, equipment is dead, dead as a doornail.
Testosterone way below normal (even for a women adjusted for my age).
At least DD can enjoy some things, I enjoy nothing.
On good days I make big plans, theater, opera house etc, and than I cancel everything or give the tickets away.
I want feel good, go out and do things, rejoin the living, but something is holding me back.
I stopped exercising in Oct last year, don't know why, just stopped. Can't get my arse in gear, like I said in another post, I am in the land of the living dead.
I am totally disgusted with myself...but I would tx again, sides and all.
I am 13 month SVR.
All I want is to find my old self again and I be a happy camper.
Ina
Totally impossible to sleep without sleep aides.
Engulfed in a brain fog so dense, can't see the wall in front of me.
Different rashes over my body, and face still not back to normal.
I had plenty of energy before tx, but very little now.
I developed insulin resistance too, but after 7 month of ultra, ultra low carb diet, brought the glucose down to a normal range, and the triglycerides from 220 to 44.
Developed gluten sensitivity after my first tx, which exploded after second tx.
Osteoarthritis of lumbar spine was mild-moderate before tx, now it's considered severe...don't know if there is a relation.
Depression now being tx with Lexapro.
Libido, what is that...it's so totally gone, sex is only a faint memory now.I don't bother to try anymore, equipment is dead, dead as a doornail.
Testosterone way below normal (even for a women adjusted for my age).
At least DD can enjoy some things, I enjoy nothing.
On good days I make big plans, theater, opera house etc, and than I cancel everything or give the tickets away.
I want feel good, go out and do things, rejoin the living, but something is holding me back.
I stopped exercising in Oct last year, don't know why, just stopped. Can't get my arse in gear, like I said in another post, I am in the land of the living dead.
I am totally disgusted with myself...but I would tx again, sides and all.
I am 13 month SVR.
All I want is to find my old self again and I be a happy camper.
Ina
Thank you for your response. Glad you still enjoy life and all that goes with it, but it is a shame that you must deal with side effects every day/night. :(
Given your Tx Hx... with multiple treatment and length - hopefully it is just a matter of a longer recovery period - and that these side effects will continue to lessen. I certainly hope so.
Breeze
Given your Tx Hx... with multiple treatment and length - hopefully it is just a matter of a longer recovery period - and that these side effects will continue to lessen. I certainly hope so.
Breeze
I'll offer an alternative explanation on why SVR's have more trouble post treatment than non-SVRs. Frankly, I have no knowledge this is true, but going under the assumption you put forth. Could it be that SVRs have more problems because they had a stronger immune reaction to the interferon than those that failed to clear? That could make sense because the immune reaction is not only what kills the virus but what seems to be causing all the post treatment problems. Just a thought.
-- Jim
-- Jim
Please come to the tallblonde post at the other side. I can't find the link to the German study.
The Korean acupuncturist I see is an herbalist as well.
He is willing to cook something up for me. Didn't ask the price, because I can't bring myself to put stuff in my mouth I know nothing about.
Read on the other side first, and see what I am planning to get out of this hole.
Ina
The Korean acupuncturist I see is an herbalist as well.
He is willing to cook something up for me. Didn't ask the price, because I can't bring myself to put stuff in my mouth I know nothing about.
Read on the other side first, and see what I am planning to get out of this hole.
Ina
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