Post Interferon Long Term Side Effects on other sites

[DoubleDose]

Here is a site that I stumbled across today while Googling long term interferon after effects.  I also found several other sites as well, also 'chocked' full of people detailing their horrible experiences after using interferon.  This sure supports what many of us have been saying and experiencing!!  It is quite disturbing to read additional accounts, some even worse than the experiences documented here on our forum.  Here is the link:  (you will have to copy and paste)

http://www.lawyersandsettlements.com/forum/viewtopic.php?t=10


I will bet that sometime soon we will be hearing about these issues in the media.  The sheer volume and severity of the problems will cause this to become an issue that will provoke national media attention....and with very good cause!!!  I just don't think we were really warned of these kinds of long term outcomes.  I know I wasn't.

DoubleDose

[coeric]

thank you Dee,  i am about 44 weeks post treatment with cirrhosis.  did triple therapy for 48 weeks and was clear at about 25 weeks after treatment.  i experience some of the symptoms discussed in the study including skin issues, and mental and psychological difficulties.  however, not all the effects have been unpleasant.   i no longer experience the nocturnal muscle cramps that i did prior to treatment and the liver pain is gone.
eric

[Shyrlgame]

Although this report is from UK, at least someone is acknowledging that aftercare after treatment is missing. . .

[desrt]

Thank you Dee. I wish we could move beyond subjective studies on patients' feelings and actually have a report on things like how Peg-IFN affect the different components of metabolic syndrome or  its effects on RA, MS, and fibro'. These are all easily measured, cheap, standardized tests and the study could be retrospective since a lot of patients have these things monitored anyway. I think it a bit condescending and shows a bias on the part of the study authors when they start talking about 'perceived' symptoms, psychiatric problems, and quality of life.

[Dee1956]

Small Study effects after tx

http://www.scribd.com/doc/76198301/Recovery-From-Hepatitis-C-Treatments

[Dee1956]

Hi I found a study on this, I will find it and come back.
Melvilles story is heartbreaking, his wife has suffered and continues to suffer.

What his wife experienced seems to have happened to people who did the tx pre peg but I am no expert, it just seems to be that way.

I guess one could do a search on long term side effects to find the real number of people who have come here looking for help.
This is the Hepatitis C Forum, not the HCV Tx Forum.  Everyone should be able to come here for help as it relates to HCV and tx.
The doctors seem to wash their hands of patients post tx,

I went to the lawyer site, very interested, the other site does not exist
Thank you

[quayle]

I wonder if what the person would have sued for If they got liver cancer
from hepatitis C?