When I posted the thread "Is this arthritis, or post side effects of TMC 435 treatment?" I had a few responses, one of them recommended that I post it as TMC 435 side effects. Well here it is: Since I last posted the thread, I have been feeling worse and worse, it just seems like everyday there is something new going on with my body. I went to see a Rheumatologist who prescribed Gabapentin, it did not help at all. So he started me on Lyrica,it's been 2 weeks and I feel no difference. I am taking 50 mg 3 times a day. It is just horrible when you go see a doctor, whom you think will be able to figure out what is wrong, and prescribe the best med for it. Not... he looks at me and asks 4 times during my visit: "so, the Gabapentin didn't do anything?" I felt like asking him what part of "it didn't help me" did you not understand???? So here I am with terrible pain on my joints, specially my wrists, pain on my lower back that feels as if someone is cutting me with a knife when I bend over, (I was told by another doctor that it is the sciatic nerve...)
When I get up, my ankles are so stiff I can barely walk, my hips hurt so bad specially when I am in bed. The pain is so severe it wakes me up at night. I have to get up, walk and let the pain ease up a bit, so my sleep is also interrupted. I don't remember when was the last time I slept the entire night and woke up feeling rested. I have had therapy, injections, and pain meds, nothing works. Right now I am at the point where I don't want anything else done and just live with the pain. I barely go out, my bonsai are dying or growing like crazy, and I don't have the energy to work on them. Everything and anything is a struggle, I thought I had rheumatism, but after having a test done, it came back negative, which is awesome...so what is it???
I am also very depressed, it is tough living in constant pain, and nowhere to go and find an answer. I was treated in Atlanta, and I moved to Florida 2 months after finishing the study. The study required that I was continue getting lab work until October of 2012. The study coordinator and the doctor wanted me to go back to Atlanta to finish all lab work, but it was just impossible for me to drive or fly there just for that. So I have no doctor to ask questions to, and the ones I have know nothing about the Hep C treatment and/or post side effects.
Is there anyone, who went through the TMC435/Simeprevir study/treatment been going through the same thing? I am sure it has to do with the Interferon, and not the Simeprevir, so I should ask if all of you who have gone through Hep C treatment with interferon have the same symptoms? Anyone find any help? If so please let me know, I need help bad!!!!
I had a lot of help and support when I was going through the study, and I know there is someone among all my knowledgeable MedHelp friends that might have some info that can be useful, and help me get through this.
Thanks to all in advance, and God Bless.