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Welcome to the Hepatitis C: Post Treatment Issues community
About This Community:
This forum is for those who have taken HCV treatment to discuss any lingering or new health issues that may have been caused by the Hepatitis C virus itself or may be related to treatment for Hepatitis C. Some examples are autoimmune conditions, previous medical conditions exacerbated by the virus or the treatment, liver damage, and inflammation of the joints
Looking forward to everyone's posts and participation.
No need to be shy ~ I've posted the first post on your new community.
Best,
Cheryl
MH Community Mgr
This forum is for those who have taken HCV treatment to discuss any lingering or new health issues that may have been caused by the Hepatitis C virus itself or may be related to treatment for Hepatitis C. Some examples are autoimmune conditions, previous medical conditions exacerbated by the virus or the treatment, liver damage, and inflammation of the joints
Looking forward to everyone's posts and participation.
No need to be shy ~ I've posted the first post on your new community.
Best,
Cheryl
MH Community Mgr
Thanks for starting this ball rolling Dee! and that MedHelp did the right thing!
Yes, there may be other HCV forums with similar sub-forums but there is no other place like MedHelp and the community like what we have at HepC *good and bad!
***and what an honor to post under willy... (lol) unless someone just posted before me then UGH!!!
Yes, there may be other HCV forums with similar sub-forums but there is no other place like MedHelp and the community like what we have at HepC *good and bad!
***and what an honor to post under willy... (lol) unless someone just posted before me then UGH!!!
Well, I saw this last night and was surprised and pleased.
I think it is for all of us, and I think it will be instructive for many groups of people.
If you are a student of Hep C, or the various types of treatments one uses to cure the virus....
or how
the virus..... how treatments..... how aging....how other allied drugs used ..... or other extra-hepatic symptoms, diseases or unrelated disease, diet issues, supplements may all fit together.
I'm not sure it is ever only ONE thing.
Anyway....I hope this is a place some of these things can be talked about, ideas shared, data shared, results shared.
There are other HCV forums with similar sub-forums on life post TX, and I think it is an important topic that may affect more of us than we may think.
Thank you to those at Medhelp who helped make it possible, perhaps particularly Emily.
willy
I think it is for all of us, and I think it will be instructive for many groups of people.
If you are a student of Hep C, or the various types of treatments one uses to cure the virus....
or how
the virus..... how treatments..... how aging....how other allied drugs used ..... or other extra-hepatic symptoms, diseases or unrelated disease, diet issues, supplements may all fit together.
I'm not sure it is ever only ONE thing.
Anyway....I hope this is a place some of these things can be talked about, ideas shared, data shared, results shared.
There are other HCV forums with similar sub-forums on life post TX, and I think it is an important topic that may affect more of us than we may think.
Thank you to those at Medhelp who helped make it possible, perhaps particularly Emily.
willy
Happy to see the forum up.
I treated with Sofosbuvir and Ribavirin.
I was already cirrhotic and suffering from a number of extra hepatic manifestations when I treated. I found the riba challenging with a bit of a rash, insomnia, tinnitus and irritability.
Since SVR my extrahepatic and cirrhotic symptoms have eased considerably though I still experience fatigue and some joint paint.
For me, the biggest challenge of my HCV travels has been losing my health and my abilities and then gradually experiencing a return only to have it stop somewhere before restoration of my "Old self". I am grateful to be alive and to still be kicking but I do not think I can be who I was before I got so sick and the struggle now is reorganizing and creating a life that is productive, creative and healing with and without previous abilities.
I am interested for those of us still struggling, to read your stories and your thoughts on how one recreates a life.
I treated with Sofosbuvir and Ribavirin.
I was already cirrhotic and suffering from a number of extra hepatic manifestations when I treated. I found the riba challenging with a bit of a rash, insomnia, tinnitus and irritability.
Since SVR my extrahepatic and cirrhotic symptoms have eased considerably though I still experience fatigue and some joint paint.
For me, the biggest challenge of my HCV travels has been losing my health and my abilities and then gradually experiencing a return only to have it stop somewhere before restoration of my "Old self". I am grateful to be alive and to still be kicking but I do not think I can be who I was before I got so sick and the struggle now is reorganizing and creating a life that is productive, creative and healing with and without previous abilities.
I am interested for those of us still struggling, to read your stories and your thoughts on how one recreates a life.
Yes, thanks for creating this forum community.
I am trying to join but I cannot remember how to join a forum community. I clicked on the "Join this Community" and nothing happened. LOL.
I am trying to join but I cannot remember how to join a forum community. I clicked on the "Join this Community" and nothing happened. LOL.
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