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long term after effects post interferon
My last interferon injection was 12 months ago. I feel tired, lethargic, my bones ache in the morning esp in my feet. I'm in bed asleep by 10-30....and now i've developed a fissula, a perenanal abcess. My doctor thinks it may be because since the interfeon my immune system is v.low to warding off infections.
Are these symptoms shared by others.
Are these symptoms shared by others.
Has anyone on here with post Interferon related symptoms tried a supplement called Longvida Curcumin at a dosage of at least 6 grams daily (divided dosages)? This is the only bioavailable form of Curcumin I am aware of that achieves favorable pharmacokinetics. I am not trying to sell this product, I am just curious as it may in theory stop some changes that may take place upon long-term exposure to the drug I am student researcher, very interested in mechanisms that may underpin persistence of IFN therapy associated symptoms.
1 Comments
I have been taking kratom and turmeric for relief of IFN symptoms
Me too, it's been many years since I had interferon/ribavirin "treatment".
I feel worse than ever
Frankly, I felt better when I was positive.
I feel worse than ever
Frankly, I felt better when I was positive.
1 Comments
i feel ya
I hear ya. I've been trying to get my life back after tx for three years. I just posted this last night so I hope I don't get into trouble for copying and pasting it here. (I see the link I posted has problems so just google "thyroid and interferon")
Finally, more and more doctors are being open about the thyroid damage from interferon. After three years of debilitating pain and other PIS issues I found a doctor who concurred that my "mysterious illness and symptoms" are most likely the damage to my thyroid from interferon. I am being treated and the improvement is dramatic, especially the muscle and bone pain. My vitamin D (which can cause all over body pain) and B12 (which can cause peripheral neuropathy) were low as well. The lack of the thyroid hormone, the Vitamin D and B12 is a perfect storm of PIS.
My thyroid was tested by more than one doctor but the "normal" lab work does not tell the whole story; find a doctor who knows how to dx thyroid disease. Some doctors, even some endocrinologists, cling to the "Immaculate TSH Belief" and won't look at the whole picture. If you are still suffering and you've been told your labs are "normal" read the following and start searching, "The TSH Reference Range Wars: What's "Normal?", Who is Wrong, Who is Right..."
http://thyroid.about.com/od/gettestedanddiagnosed/a/tshtestwars.htm
Many cases of Fibromyalgia, Chronic Fatigue Syndrom and Chronic Pain Syndrome are now being determined to be thyroid disorders as well with more doctors moving away from total acceptance of the reference ranges. The symptoms are very much the same in all of these conditions. Starting the hormone replacement therapy is changing people's lives.
I found a doctor near me at thyroidchange.org. The doctors listed are known to do all the thorough testing and to give credence to symptoms.
The symptoms of thyroid disease are the same symptoms we see most often from people on the PIS threads and include: muscle and bone pain, aches in joints, hands and feet; fatigued, exhausted, run down, sluggish, lethargic, depressed, restless, moods change easily, feelings of worthlessness, difficulty concentrating, feelings of sadness, losing interest in normal daily activities, more forgetful, can't seem to remember things (brain fog); insomnia, gaining weight inappropriately, unable to lose weight with diet/exercise, constipation, hypothermia/low body temperature (feel cold when others feel hot, need extra sweaters, etc.), hair is coarse, dry, breaking, brittle, falling out; skin is coarse, dry, scaly, and thick; hoarse or gravely voice, puffiness and swelling around the eyes and face; carpal-tunnel syndrome, irregular menstrual cycles, trouble conceiving a baby, no sex drive, more frequent infections that last longer, snoring more, sleep apnea, shortness of breath and tightness in the chest, need to yawn to get oxygen, eyes feel gritty and dry, eyes feel sensitive to light, eyes get jumpy/tics causing headaches, vision issues, strange feelings in neck or throat, tinnitus (ringing in ears), recurrent sinus infections, vertigo, light headed, severe menstrual cramps...and more.
The thyroid hormone controls every cell in your body; and therefore, everything in your body.
Finally, more and more doctors are being open about the thyroid damage from interferon. After three years of debilitating pain and other PIS issues I found a doctor who concurred that my "mysterious illness and symptoms" are most likely the damage to my thyroid from interferon. I am being treated and the improvement is dramatic, especially the muscle and bone pain. My vitamin D (which can cause all over body pain) and B12 (which can cause peripheral neuropathy) were low as well. The lack of the thyroid hormone, the Vitamin D and B12 is a perfect storm of PIS.
My thyroid was tested by more than one doctor but the "normal" lab work does not tell the whole story; find a doctor who knows how to dx thyroid disease. Some doctors, even some endocrinologists, cling to the "Immaculate TSH Belief" and won't look at the whole picture. If you are still suffering and you've been told your labs are "normal" read the following and start searching, "The TSH Reference Range Wars: What's "Normal?", Who is Wrong, Who is Right..."
http://thyroid.about.com/od/gettestedanddiagnosed/a/tshtestwars.htm
Many cases of Fibromyalgia, Chronic Fatigue Syndrom and Chronic Pain Syndrome are now being determined to be thyroid disorders as well with more doctors moving away from total acceptance of the reference ranges. The symptoms are very much the same in all of these conditions. Starting the hormone replacement therapy is changing people's lives.
I found a doctor near me at thyroidchange.org. The doctors listed are known to do all the thorough testing and to give credence to symptoms.
The symptoms of thyroid disease are the same symptoms we see most often from people on the PIS threads and include: muscle and bone pain, aches in joints, hands and feet; fatigued, exhausted, run down, sluggish, lethargic, depressed, restless, moods change easily, feelings of worthlessness, difficulty concentrating, feelings of sadness, losing interest in normal daily activities, more forgetful, can't seem to remember things (brain fog); insomnia, gaining weight inappropriately, unable to lose weight with diet/exercise, constipation, hypothermia/low body temperature (feel cold when others feel hot, need extra sweaters, etc.), hair is coarse, dry, breaking, brittle, falling out; skin is coarse, dry, scaly, and thick; hoarse or gravely voice, puffiness and swelling around the eyes and face; carpal-tunnel syndrome, irregular menstrual cycles, trouble conceiving a baby, no sex drive, more frequent infections that last longer, snoring more, sleep apnea, shortness of breath and tightness in the chest, need to yawn to get oxygen, eyes feel gritty and dry, eyes feel sensitive to light, eyes get jumpy/tics causing headaches, vision issues, strange feelings in neck or throat, tinnitus (ringing in ears), recurrent sinus infections, vertigo, light headed, severe menstrual cramps...and more.
The thyroid hormone controls every cell in your body; and therefore, everything in your body.
re interferon mediated fatigue
http://onlinelibrary.wiley.com/doi/10.1002/1097-0142(20010915)92:6%2B%3C1664::AID-CNCR1494%3E3.0.CO;2-9/full
http://onlinelibrary.wiley.com/doi/10.1002/1097-0142(20010915)92:6%2B%3C1664::AID-CNCR1494%3E3.0.CO;2-9/full
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