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317787 tn?1473358451

Please help with Pegintron Ribavarin side effects

Hello, I just took injection 21 of the Pegintron.  I find that I am unable to relax or calm myself.  I am way too sensitive, easily hurt, easily misunderstand others as they misunderstand me.  Once upset I just want to scream, cry etc. My muscles are in knots.  I am forcing the water as much as I can I am on Prozac and Xanax however I think I must need something else and was hoping someone would suggest something to help me.  I am afraid I will not have a friend or family member left by my side by the time I complete treatment.  I  had a serious infection last week (boil) which is still draining so I wonder if that could be adding to my distress.  Distressed is exactly what I feel.  I am trying so very hard to keep myself under control however I am  doing a bad job.  As we all have other problems during treatment (we do not get a time out while on tx) I have had many problems.   I treated in 2008  with pegysus,Riba and polymerase inhibitor; I did not experience this, I did not plan for the extra expenses of prescriptions, potions, lotions to control side effects so money is an issue.   I am  trying to do meditation to help however I am new at this.  I was wondering if perhaps anyone else experienced severe anxiety and tense muscles during tx and what did they do to help themselves. Right now I am trying calcium magnesium potassium, zinc.   I would really be so grateful to anyone who could reply.  While I realize I need to ask my doctor I have done that and his reply so far has been to tell me it was in the literature I was given.  Ok, I understand, isn't there something that could help me? I will call again on Monday to let him know it has gotten worse in the past week.  I feel I am at the end of my rope and my mind is telling me to just stop the tx.  I know that it is not the answer, I do not want ESLD or cancer.
I would appreciate any responses.  This forum has been invaluable to me and has kept me on tx when I felt I could not go on.
Thank you all very much, bless you
Dee
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317787 tn?1473358451
Thank you again I had mentioned the cal, mag etc because sometimes a deficiency can cause tight muscles.
Thank you again
I feel better just reading the suggestions. I am much calmer today than I was yesterday.
Thank you
Dee
Helpful - 0
317787 tn?1473358451
Thank you for always being there for me.  Yesterday I did feel over the top.  After an incident with my family I did not feel I could control my emotions and it scared me.  The next time I am going for a walk, no matter how cold it is.  That should help me along with meditation and perhaps some sleep :)
How are you feeling?
Dee
Helpful - 0
317787 tn?1473358451
Billy, yu are right, I have not slept well since finishing the Incivek.  It has been rough since then thought I have had good and bad days.  Yesterday just felt so bad.  I am now embarrassed I asked for help however I appreciate all the suggestions.
I think the doctors seem much more willing to treat the physical vs the mental.  It is not like I want to tell someone I am having mental side effects :)
I will call nurse in am to ask for something to help me sleep.  After my drug interaction in December I have been hesitant to take anything and that may have been wrong of me.  Perhaps I will look up sleep deprivation and see what that might cause
Thank you Billy, glad to hear you are doing better after the terrible sx you had
Dee
Helpful - 0
317787 tn?1473358451
Thank you o much for your reply my friend, I did write on my calendar "It is the medication"  I am also putting signs up on bathroom mirror etc so I can remember that it is the medication that is getting to me.
Bless you.  I really admire you and would like to try to follow your example
Dee
Helpful - 0
317787 tn?1473358451
Thank you so very much for your response to me. I am so grateful for everyone's response to me.  It helps in more ways than one.  My family is not in contact with me and I know that is not helping my mental outlook.  My husband and I have discussed and he feels I should go to therapy to deal  with their lack of communication.  They do not understand why I "chose" to treat again.  They do not understand the disease and how a person can die from this.  In their opinion I could just live my life and never treat again :)
So there are more things going on than "just the tx" and perhaps I need help, I was hoping I could put it off until after I finished tx.  I will call the doctor's nurse tomorrow, tell them I am not sleeping so that I feel sleep deprived etc.
Thank you
Dee
Helpful - 0
317787 tn?1473358451
can-do Thank you so much, I never though that if I pushed too hard they might take me off treatment.  I appreciate everyone's response as it is getting me thinking outside of the box. I have not come this far only to quit. I think I need to regroup, perhaps make a list.  Instead of being blown about by my emotions I wanted to try to get them under control as they were before.  I am calling the nurse tomorrow to ask for help, I have a bad habit of not directly asking for help until I am at the end of my rope.
Any problem I have had while under tx has been met with "It is the medication, lay down, you will get better"  Calling to say I can't breath also met with same exact response.  I am grateful for this shorter tx and so figured it would be more condensed and it has been.  Unfortunately my doctor did not keep up with drug interactions until I brought them to his attention.  Now he has a revised list from Vertex as they have found more drug interactions since I started in September.  I am going to print out everyones response so I do not forget the advice
Thank you again
Dee
Helpful - 0
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