I have to ask you this. With all we are going thru now with HepC weren't you afraid to get blood?
Yes I was but the devastating effects of low energy and not being able to move outweighed that. I live upstairs (1 flight) and couldn't get up them except on my knees. I couldn't even get to the kitchen without having to rest on the way. And with all the blood being tested now I felt better than I would have 10 years ago.
What do you mean by your reds did not go below 11.8 and you almost passed out a few times and that being a sign of future relapse?
My blood never went down either below 11 something and I feel like I'm going to pass out almost all the time for the past 3 weeks. On scaffolding this morning and very svared.
What do you mean by all that? I was undetected at 12 weeks and doctor said all is good.
Gosh you sound so much like how I feel. Please dont beat yourself up! Its the meds, it's the meds, its the meds! It is NOT you! I know how it is, and it makes you feel so worthless, but that is part of the deal of this treatment. I couldnt even shower and worse yet, I didnt even care! Try not to worryabout the holiday stuff, do some online shopping and forget it. Your health matters more. You are NOT a loser, you are doing great just hanging in there. Be NICE to yourself!
Hopefully you will feel a bit of energy now and again. Dont beat yourself up, you described what tx is like very well. Just know you are not alone.
Im thinking about you and sending you good wishes.
Hey girl!
It sounds like you ARE leveling out now. You haven't dropped that much in the last weeks really, even though it SUCKS to be that low.
it does take time to work...and you might need twice a week to get you up where you need to be. Remember - that is what happened to me. Once a week kept me from continuing the crash but held me at relatively the same number. It wasn't until I was doing Epo twice a week at 40,000 that my number climbed.
it does suck and I'm so sorry you are going through this still. I really had hoped by a miracle it would have gone better and faster.
Has the doctor said if they will continue you only on once a week or if they will do it twice to get it kick started?
I KNOW THAT FEELING. My bedrooms is on the second floor, I have to sit and catch my breath after that climb. Did u get chest pains? I can barely comb my hair. I went from being perfectly manicured at all times to a total mess. And the worst part is I don't care. If anyone says anything to me I either cry or get angry. I hate what I have become.