Aa
3 months post tx pcr- relapsed!
My Doctor called tonight and my 3 month post pcr was 19,600...My liver enzymes were 270 and 320! I did 48 weeks and never missed a dose. My biopsy was stage3 grade4 so I knew the odds weren't good. But I have been feeling so good since 2 weeks off meds. I have energy and look so much better.(except for the hair) My Dr. is referring me to a different Dr. then the one I had for treatment. I'm going to consult with him and see what he suggests. I guess I'll just go from here and see whats next. -Libby
Did they give you sensitive tests? WEre they <50 or were they lower? That makes it even more of a blow, when you were clear at 12. Like DD said, at least you ARE a responder.
frijole
frijole
Yikes, that really sux. This puts you in the relapser catagory not the non responder catagory, that's way better. There is more success rates for retreatment and new therapies. Another thing is that that the entire time you were UND gave your liver much needed recoup time. I just started this emotional rollercoaster of tx.
Thanks for the positive thoughts. I take it from your name that you've treated twice. I don't really want to but want to get it over as soon as possible if I have to. -Libby
The great news from all of this is that you ARE a good responder. You definitely CAN eradicate the virus! Either a longer course, (72 weeks minimum) with maximum ribavirin dosing, and probably Procrit....or one of the newer trial protocols using telaprevir (Vertex), along with SOC, probably using the Vertex drug for 24 weeks, along with SOC, and then running the SOC out to 48 weeks or longer.
I am certain that you can eradicate the virus, judging from your response to the tx. Unfortunately you did not treat long enough, and you could not have known that this would happen. Now you know what you need to do. Many of us have had to go through the same scenario, so don't feel alone. Recuperate, get stronger, and get ready to hit it head on and get your SVR. Your odds are very high for total success.
DoubleDose
I am certain that you can eradicate the virus, judging from your response to the tx. Unfortunately you did not treat long enough, and you could not have known that this would happen. Now you know what you need to do. Many of us have had to go through the same scenario, so don't feel alone. Recuperate, get stronger, and get ready to hit it head on and get your SVR. Your odds are very high for total success.
DoubleDose
So sorry! As all said, hopefully it has helped slow things down.
Good luck with a new plan and Dr.
LL
Good luck with a new plan and Dr.
LL
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