I cannot thank all of you enough for taking the time to post your ideas and help!! It is only 6:30 in the morning and I have calls placed to the Doctor already - hoping to be first on the list for call backs.
I will let you know how that goes.
I am so very sick it is hard to imagine something this horrific will make me ultimately better.
GrammyA
I am so sorry to hear this, but do as you said, call the doctor, and do what others have said, advocate for yourself.
In reading this board over the last few months I have concluded that not all doctors/medical staffs are "created equal". Some do everything to alleviate symptoms and some basically blow their patients off. Some patients tend to dutifully respect the doctor's standing and just go along with his lack of help. Come back to this thread and let us know what he said and what they are offering you.
Yes, tx can be tough, but at the same time a lot can be done to make it doable. I hate to think of you suffering when you don't have to.
Advocate, advocate, advocate for yourself in order to mitigate the side effects. You must get the Zofran! Whether you take it or not is up to you but you need to have it. If you are passive and wait for the M.D.'s office to act prophylactically and anticipate you side effects you will probably be let down. So research the dosage, call the M.D. and have your pharmacies telephone number available for them. When you are looking at that fatty item late in the eve on a w/e night you will be glad you have at least done what you could by demanding what you deserve. I think most will agree that once you start getting your PCR viral quantities back your depair will have meaning. I sincerely hope I am wrong but: expect nausea and anemia and act accordingly so you do not have to accept any more distress than you need to experience. I have been on both side of the looking glass: Through the triple tx. and it's challenges (and benefits!!) and treating many many patients over the years in Hospice and acute illness contexts. It is great that you are posting your experience and questions: Now on to your team to get some of these sides under control....My best. d
Sorry to hear of your tough go at it. Hope things subside.
I buy a natural mouthwash, with tea-tree oil in it, and gargle with it, or mouth and throat problems.
Some of your symptoms are from the Interferon,
and those tend to get better as time goes on.
The nausea sounds like something that the Incivek is causing, so you should treat that with the perscription nausea medicine, recommended by folks, up above.
The whole yogurt was easiest for me to get down, but the Greek yogurt was just too heavy. Experiment with several brands and textures.
I also did peanut-butter (3 table-spoons will fulfill your Incivek at requirment) on a tortilla shell that I heated on my burner.
I am on Victrelis, the other PI, so I didn't have the fat requirment, but just found that ahigh calorie diet kept me more well grounded. Then again, I didn't have nausea.
I also used whole kefir, when I grew tired of yogurt~ hang in there, and treat your side-efects, via perscriptions, as they come along, beore they snow-ball.
I'm with Pooh: Get the Zofran NOW. My nausea went away after two weeks but I will never forget how incapacitating it was. Like you I was freaked when I sw just how funky and horrible the Incivek sides actually are. It is difficult to motivate yourself to do anything when you feel like you are going to throw up all the time. Once you treat your nausea you will feel better and this will all seem more surmountable.
I read about them and thought it can't be that bad. It was. Two tablespoons of walnut butter or almond butter meets the fat requirement. Be sure to have plenty of idea since what works one week may not work the following week. For some reason you can develop a food aversions really fast on Incivek. I still half half a jar of Organic walnut butter in the fridge and the other day I opened it and sniffed and I about rolfed. I finally threw it away.
I used good ol Tylenol for the chills and it worked.