Aa
ALTERNATIVE Treatments if NO SVR after TX
Well I saw my doofus doctor today (told me he's NEVER had anybody before who had NO fever or body aches during tx - I was a bit surprised) but I might be anemic now so did the blood work.
Anyways I asked him what we would do if I was not responding. HE said we would NOT base it on the 4wk PCR (which I had to beg for) - we would not get all suicidal but continue onwards. Duh.
SO I said what if I am not responding at 24wks. What will we try next?
He said nothing. That would be IT.
I said wait I know a lot of people who continued onwards...
So here is my question which I think might be useful for others later too just in case:
What are the next treatment regimens that others have been put on if they did not respond to the first tx?
this way I can begin to have my argument completely ready - otherwise I will find a new doctor who will agree with the next phase.
He told me the only thing he would try is to find a trial = protocol or something I didn't understand.
I need all the ammunition I can get and all the proof that longer/new whatever treatments DO LEAD TO SVR.
Just in case!
Thanks,Debby
Anyways I asked him what we would do if I was not responding. HE said we would NOT base it on the 4wk PCR (which I had to beg for) - we would not get all suicidal but continue onwards. Duh.
SO I said what if I am not responding at 24wks. What will we try next?
He said nothing. That would be IT.
I said wait I know a lot of people who continued onwards...
So here is my question which I think might be useful for others later too just in case:
What are the next treatment regimens that others have been put on if they did not respond to the first tx?
this way I can begin to have my argument completely ready - otherwise I will find a new doctor who will agree with the next phase.
He told me the only thing he would try is to find a trial = protocol or something I didn't understand.
I need all the ammunition I can get and all the proof that longer/new whatever treatments DO LEAD TO SVR.
Just in case!
Thanks,Debby
My original ALT and AST were over 200. Well out of the range. Through the roof he said.
Well this morning they gave me the WRONG test instead of the CBC they tested my ALT and AST and Albumin etc.
Well my ALT is down to.....29!!!!!!!!!!!!!!!!!! My AST is down to 24!!!!!!!!!!!!
From being in the 200s. I am just so shocked something good must be going on! :)
I had to share this. Nobody in the outside world will understand this at all!
Well this morning they gave me the WRONG test instead of the CBC they tested my ALT and AST and Albumin etc.
Well my ALT is down to.....29!!!!!!!!!!!!!!!!!! My AST is down to 24!!!!!!!!!!!!
From being in the 200s. I am just so shocked something good must be going on! :)
I had to share this. Nobody in the outside world will understand this at all!
wow, that is a drastic reduction in such a short time, you sure they gave you the right test results and not someone else
You will both kill this virus, I am sure. NY, you need another doc. I just asked my GI the same thing Wednesday at my 12th week visit -- what if I don't clear with this PCR. He is willing to do whatever I want -- extend treatment or go to daily infergen. We will do this. Like New Soujourn said, we just need to arm ourselves with as much information as we can find.
Carolyn, please don't be discouraged. You have significant damage and perhaps it will take you a bit longer. But look at all those nasty viri you killed already. I know you can do it. Please just hang in there.
Note to kpj -- I also think it is important to get your doses as close to the same time each day with the riba, and as close to the same time each shot day. I think it helps the body maintain a constant level of the meds needed to kill and stop the mutations.
Carolyn, please don't be discouraged. You have significant damage and perhaps it will take you a bit longer. But look at all those nasty viri you killed already. I know you can do it. Please just hang in there.
Note to kpj -- I also think it is important to get your doses as close to the same time each day with the riba, and as close to the same time each shot day. I think it helps the body maintain a constant level of the meds needed to kill and stop the mutations.
They added a liver panel to my 3 week CBC. Just got off the phone and my AST/ALT are low 30's - lower than they've been in forever (normally 50's & 120's - or the other way 'round).
WBC is up to 4.0, with ANC over 2K, thanks to a boost from the Nuep on Tuesday.
HGB? Well we can't ask for it all, now can we? 11.5 - down 4 grams from baseline. But I'm hanging. Figuratively speaking.
WBC is up to 4.0, with ANC over 2K, thanks to a boost from the Nuep on Tuesday.
HGB? Well we can't ask for it all, now can we? 11.5 - down 4 grams from baseline. But I'm hanging. Figuratively speaking.
Sorry, forgot to offer congratulations. Awsome job, girl!
You went from 400 something to 2000 ANC???????? wow that is incredible. Looks like you need to watch that hgb - mine is about the same as yours right now too. Anyway those labs look mighty fine.
You are reading content posted in the Hepatitis C Community
Learn about this treatable virus.
Getting tested for this viral infection.
3 key steps to getting on treatment.
4 steps to getting on therapy.
What you need to know about Hep C drugs.
How the drugs might affect you.
These tips may up your chances of a cure.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
