Aa
ANOTHER UPDATE
Got a voice mail from nurse late yesterday, she said "have really good news for you and I'm still working on the other thing. Will call you on your cell" Well since I haven't heard back yet nor am I going to waste my time calling THEM they get upset unless I use voice mail line and I'm pretty good at cutting off my nose to spite my face here goes.... I'm going to assume (makes an ass out of you and me)that the good news is I'm undetectable at 24 weeks and the other is they haven't resolved anything with the insurance co. yet. As some of you may have picked up on by my questions lately I am no longer on effexor. After much thought and soul searching I decided to wean off the stuff as I really felt it was not right thing for me. I had been advised to start it before tx which I did but had no history of depression. Took 2 weeks decreasing 150mg dose and went cold turkey last Saturday. I believe it was the right decision FOR ME ONLY just my blood pressure has went from the 140's to below 120's were it used to be before the effexor and I am feeling better everyday it has been harsh at times. Had my "finest reba moment" yesterday just ask my wife and watch for the broken glass that may still be in the kitchen. I think it may have did me good to cry for the first time in years. My relationship with docs office is down to zilch or I would asked first. So kids DONT TRY THIS AT HOME! No one ever told me I had much brains to race a bicycle down a mountain at 50 + mph but I do believe I made the right decision. Knowing what I know now I would not have started AD unless I had too.
I guess some of you have Not been reading or listening. The first 6 to 8 weeks of tx went good I lived with whatever but when I complained about insomnia he reluctently gave me trazadone wich I had a reaction to. I asked for Ambian as I had heard such good things he said he had never presribed that before so he reluctently gave me 15-5 mg tabs for occasional use. I asked for mail order so wouldn't have to hastle with this every month cause I have been told to call each month after blood draw to make sure my peg/copeg are on time the pharmacy has always had to fax additional reminder to get it on time. Every month this goes down to the wire. I have been told the last several times that I always have the option of stopping tx as my liver isn't that bad off.
AS to effexor that is his drug of choice no other. I firmly believe if I told him I wanted to stop effexor he would say my only choice would be to stop tx. He refuses to do mail order cause he says he needs to see me eyeball to eyeball each month to make sure I'm not depressed. I'm not depressed, a drug addict or alcohlic. All of my tests have been very good he said I was in the top 10% of responders The head HVC nurse just resigned last Wednesday would not say why. She did tell me she didn't aways agree with doc. The end of every meeting with him if I disagree or question is "you can always stop tx" I had a lot of faith in him from others in medical profession he was suppose to be the Golden Boy from Berkeley Calif. I will talk to him again next week but very carefully as he could opt to stop tx even though all my stats are good and appear to be still clear at 24 wks.
AS to effexor that is his drug of choice no other. I firmly believe if I told him I wanted to stop effexor he would say my only choice would be to stop tx. He refuses to do mail order cause he says he needs to see me eyeball to eyeball each month to make sure I'm not depressed. I'm not depressed, a drug addict or alcohlic. All of my tests have been very good he said I was in the top 10% of responders The head HVC nurse just resigned last Wednesday would not say why. She did tell me she didn't aways agree with doc. The end of every meeting with him if I disagree or question is "you can always stop tx" I had a lot of faith in him from others in medical profession he was suppose to be the Golden Boy from Berkeley Calif. I will talk to him again next week but very carefully as he could opt to stop tx even though all my stats are good and appear to be still clear at 24 wks.
DhBill, I pray that the answer will will be SVR for you!!!!! Hang in there...if the rage gets worse...get some Zyprexa. It helped me! Many Prayers for you tonite! Cindee
Petey7, WOW GREAT NEWS!!!!!!! Hope you continue in the SVR direction!!!! prayers to you and all, Cindee
Petey7, WOW GREAT NEWS!!!!!!! Hope you continue in the SVR direction!!!! prayers to you and all, Cindee
Steve', I agree w/you that AD's are not the panacea for everyone. And many people don't get depressed on tx, esp if depression and anxiety are handled w/exercise, nutrition, herbs and meditation/prayer.
I wanted CURE so badly and was so grateful to have patched together a no cost treatment plan, I never dreaded, or hesitated, at each pill and each injection (3Xwk). Only the past depressed me, not the future or the present.
Petey7: I cl'ed @18 days. The rest of the time zipped by, b/c I had the prize in hand and was only insuring that prize by moping up any lingering hep c virus hangin' around.
I wanted CURE so badly and was so grateful to have patched together a no cost treatment plan, I never dreaded, or hesitated, at each pill and each injection (3Xwk). Only the past depressed me, not the future or the present.
Petey7: I cl'ed @18 days. The rest of the time zipped by, b/c I had the prize in hand and was only insuring that prize by moping up any lingering hep c virus hangin' around.
Howdy Bill thats great news about the getting off AD's, so what's going on with your Tx are you still doing the Interferon + Riba, have you missed any because of their stupidity ...
My personal opinion about the AD drugs is they should be used for the right reason ... for me I think way too many people start on them like you did Bill on their say so, they say ok you start Tx I want you to start AD's 2 weeks before just like some kind of routine safety net ... well not everyone experiences depression in fact I think its under 50% that don't ... sometimes everyone gets a bit down feeling & thats "Not" clynical depresion .... I think that those AD drugs can create even more problems for people who are not needing them ... I did 26 weeks without anything in that class 2 weeks left to finish line, No I don't want a medal LOL & I realise some truly need these drugs
hahaha ok I'll get off my soap box now heppers, surely there are others that agree with me .... addiction to any Benzodiazapines is a horrible thing, previous experience, I was taking them for 6 weeks in hospital years ago but when I got out of hospital & never took them anymore I had all sorts of major problems & didn't know until weeks later why I was so freaked out & thought I'd dropped a few marbles <b>.....Steve.....</b>
My personal opinion about the AD drugs is they should be used for the right reason ... for me I think way too many people start on them like you did Bill on their say so, they say ok you start Tx I want you to start AD's 2 weeks before just like some kind of routine safety net ... well not everyone experiences depression in fact I think its under 50% that don't ... sometimes everyone gets a bit down feeling & thats "Not" clynical depresion .... I think that those AD drugs can create even more problems for people who are not needing them ... I did 26 weeks without anything in that class 2 weeks left to finish line, No I don't want a medal LOL & I realise some truly need these drugs
hahaha ok I'll get off my soap box now heppers, surely there are others that agree with me .... addiction to any Benzodiazapines is a horrible thing, previous experience, I was taking them for 6 weeks in hospital years ago but when I got out of hospital & never took them anymore I had all sorts of major problems & didn't know until weeks later why I was so freaked out & thought I'd dropped a few marbles <b>.....Steve.....</b>
The only thing that worries me is if you quit w/out your Dr. permission. Insurance companies are sometimes very picky. "If you can't follow yourDr. on this, how do you expect to get well?" If you didn't have your Dr.s permission,see if you can have him add permission to your file and explain to him why. I'm glad you're doing better and keep heading that way!! Joni
eagerly awating the week of feb 16th thats when i finaly start the run to clear.
i realy hate that ya'll are haveing trouble with your dr's nurses,(try leaving a box of candy one day for no reason).
i guess i'm lucky in that the nurse i will be seeing is the
same one i get chemo for leukeamia from so she and i are old friends(i always bring home made goodies to the chemo room).
also the oncologist i use is a dr. i worked with for about 10 years so good to go there.
beating the dragon has to be the first thing and most important thing in our lives.
if your getting grief from treatment team have you tried talking to your dr. ?
i cant hurt and might help.
best of luck to ya'll see ya on the train around the 16th.
2 more work nights then vacation starts heading to micky world next week for a blow out before treatment. will think of ya'll when screaming my head off on a roller coaster.
i realy hate that ya'll are haveing trouble with your dr's nurses,(try leaving a box of candy one day for no reason).
i guess i'm lucky in that the nurse i will be seeing is the
same one i get chemo for leukeamia from so she and i are old friends(i always bring home made goodies to the chemo room).
also the oncologist i use is a dr. i worked with for about 10 years so good to go there.
beating the dragon has to be the first thing and most important thing in our lives.
if your getting grief from treatment team have you tried talking to your dr. ?
i cant hurt and might help.
best of luck to ya'll see ya on the train around the 16th.
2 more work nights then vacation starts heading to micky world next week for a blow out before treatment. will think of ya'll when screaming my head off on a roller coaster.
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