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131114 tn?1380083190

Anybody else on tx #2 for geno 1? you guys were right!

Hey gang, just to let you know, i went to see my doc yesterday and you guys were right- i will have to start over with tx for a year since i am geno 1. wah. the good news is that they put me back on the liver foundation which has a waiting list of 80 people. my doc is making me take the 1000 riba, as you all also commented on.
she says we will be much more aggressive with sides theis time so i don't have to lower my dose. interestingly enough, i am on per-intron this time not pegasys and i don't seem to have quite as much of a reaction. i will be taking 150 mcg. so here;s to you all, thanks! i was prepared for the news thatnks to this forum. i will be staying around, if you don't mind, for moral support. so far so good.....
anybody else on tx 2 for geno 1?
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Avatar universal
Ha guy, I'm wonderin if ya got me scratched off that list, ya know , since I've proven I'm sane. Yesterday those people took back the prescription straight jacket!! Thats gotta mean sumthin. Wait a minute ,there's a rabbit at the door.

Dyce
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Avatar universal
Very happy your having less sides this time with Peg Intron.

As you may know from my previous posts, I have a different point of view regarding your early test results. If you're unable to get a 4-week test then...

Given the fact that you were relatively healthy pre-treatment and have no liver damage (stage 0) and that you have previously relapsed and therefore already treated for 48 weeks -- I would be looking to be undetectible at week 12 with the most sensitive test available.

If you're not undectible at week 12, that means your chances of clearing the virus are significantly lower, and you will need to extend treatment time beyond 48 weeks to have a decent chance of being cured.

So if you still have virus at week 12 --the question you would want to ask yourself -- is it worth exposing yourself to these drugs for all this time given the fact you're a stage 0?

It's a very personal decision with pros and cons on both sides, but personally I'd probably would stop and wait for better drugs at that junction.

-- Jim
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Avatar universal
Yes, I think it is reasonable to hope for some reversal of liver damage by treating. I hope your husband achieves SVR and improves his liver architecture but if not SVR it is indeed possible that his liver will improve. Mike
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Avatar universal
I know it sort of seems like bad news but try and remember the good news - you know about the disease and are fighting it the right way and can have good success.

There are LOTS Of Geno 1s in here (I am both 1A and 1B) and I cleared at week 24 (for me that was good with two strains) so it IS possible.

Hang in there and just do what you are told to do but when you have questions...ASK...it can make all the difference.

Best of luck!
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131114 tn?1380083190
ok i want the list of insane people....
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Avatar universal
The general rule of thumb is 36 weeks AFTER Undetectible so with 12 you would be right on target!

I wasn't clear until somewhere between 12 and 24 so...I don't know exactly how many he is going to have me do yet. I haven't worried since I'm only at 30 or so now.

You know upping the Riba can help hit the mark you are looking for this time. Maybe its just the little variation you needed! :)  As long as your attitude stays so great and you are going to fight like crazy I think THAT helps more than anything.  

Make sure that you keep your body really hydrated since you are taking more Riba.  I take either 1,000 or 1,200 a day and I weigh 117 now so it's a LOT for my body to handle and I had the rash really, really bad.  Now I know if I really moisturize all of the time with Gold Bond or something good like that it prevents the dayum bumps from coming. I am so scared I can't imagine what I will look like this summer since we can't go in the sun - I'm thinking...spray on tan will have to help!

Best of luck to you.
Helpful - 0

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