Aa
Argument with Dr..
Good morning.. I have been slacking around here, but have been sooo busy..Having wood floors put in two rooms in my house.. Damn, what royal pain!!
Yesterday, I went to my GI center.. Did all the baseline bloodwork done, went over expected approach, preventional use of meds to stay on tx, and all lab work.. They will be doing blood, first 2 weeks, then 2 weeks after that, then every month following.. Only doing pcr, at 12, and 24 weeks.. I had to fight for pegysus.. Told me that I was crazy, that sx's are the same, percentages are the same, and that the leaders in treating hep c, won't even touch pegysus.. Supposedly, Dr. Schiff from the Liver Institute in Miami, won't even touch pegysus..She told me that if it what I want, she would order it, but it is not her first choice..
Has anyone else come across this with their DR.??
I also lucked out, and she gave me three month supply of Effexor samples for free..She wanted to do a phycological evaluation on me, before tx.. I told her fine, but I would have to talk it over with the voices in my head!! LOL..
Looks like I'll be starting here in the next two or three weeks.. She told me, to use Benadryl, and Tylenol PM, and Zyrtec for sides.. Gauranteed to do evrything possible to get me through.. Wanted to make sure I was ready for it, and feet where firmly planted.. How could I say no to such a beautiful woman??
Yesterday, I went to my GI center.. Did all the baseline bloodwork done, went over expected approach, preventional use of meds to stay on tx, and all lab work.. They will be doing blood, first 2 weeks, then 2 weeks after that, then every month following.. Only doing pcr, at 12, and 24 weeks.. I had to fight for pegysus.. Told me that I was crazy, that sx's are the same, percentages are the same, and that the leaders in treating hep c, won't even touch pegysus.. Supposedly, Dr. Schiff from the Liver Institute in Miami, won't even touch pegysus..She told me that if it what I want, she would order it, but it is not her first choice..
Has anyone else come across this with their DR.??
I also lucked out, and she gave me three month supply of Effexor samples for free..She wanted to do a phycological evaluation on me, before tx.. I told her fine, but I would have to talk it over with the voices in my head!! LOL..
Looks like I'll be starting here in the next two or three weeks.. She told me, to use Benadryl, and Tylenol PM, and Zyrtec for sides.. Gauranteed to do evrything possible to get me through.. Wanted to make sure I was ready for it, and feet where firmly planted.. How could I say no to such a beautiful woman??
I'm glad you are able to get the treatment you want. Some of these doctors have mis-placed loyalties.
My dr also was ready to go with PEG and I said Noooo,,,I prefer pegasus and he said his patients were on Peg and there was no difference. I had somewhat of an argument but told him,,,,If I'm doing this for a year,,,I want least sides as possible and it would make me feel better so he laughed about it but I did get Pegasus..
Hey, thanks for the support and info.. What she told me is that she only Rx pegysus when patient has history of renal problems. I argued, that I wanted it because it was processed through the liver, and I have liver damage, so I want to hit it as hard as possible..
She said that all her patients see the same sx's, that it has nothing to do with the different med.. I was suprised myself, cause I have done alot of research on the meds, and feel alot more comfortable with the pegysus. She told me all studies that state which one is better, or has made any claim, was sponsered by the pharmacutical company promoting its own drug. She is participating in the IDEAL study, and claims that at the last conference, the best SVR% was coming from Peg 2b full dose with 1200mg of Riba.. Almost 70% for geno 1's..
Yeah, the Effexors where a godsend.. Even with my insurance, my prescriptions are like $40-$50.. So the couple months free are great.. She told me not to worry, that if they have samples, I will always get them..
I heard a unusual story about a patient of hers also.. Many people are amazed at my VL, of only 5460.. She told me that she has a guy, that VL came back at only 97.. Yep, 97.. They did the biopsy, and he had severe fibrosis, and was thought to have had the virus for 28 years..
I am eager to see what my labs come back with.. She is running all tests, including thyriod.. My meds should be here in two weeks, then its time for war!! I know what to expect this round, and feel more comfortable with Dr and entire situation. I just want to do this, put it behind me, and start my family..
Best wishes to all.. Snook
She said that all her patients see the same sx's, that it has nothing to do with the different med.. I was suprised myself, cause I have done alot of research on the meds, and feel alot more comfortable with the pegysus. She told me all studies that state which one is better, or has made any claim, was sponsered by the pharmacutical company promoting its own drug. She is participating in the IDEAL study, and claims that at the last conference, the best SVR% was coming from Peg 2b full dose with 1200mg of Riba.. Almost 70% for geno 1's..
Yeah, the Effexors where a godsend.. Even with my insurance, my prescriptions are like $40-$50.. So the couple months free are great.. She told me not to worry, that if they have samples, I will always get them..
I heard a unusual story about a patient of hers also.. Many people are amazed at my VL, of only 5460.. She told me that she has a guy, that VL came back at only 97.. Yep, 97.. They did the biopsy, and he had severe fibrosis, and was thought to have had the virus for 28 years..
I am eager to see what my labs come back with.. She is running all tests, including thyriod.. My meds should be here in two weeks, then its time for war!! I know what to expect this round, and feel more comfortable with Dr and entire situation. I just want to do this, put it behind me, and start my family..
Best wishes to all.. Snook
I go to a University Hospital and they let me choose Peg or Pegasys.I talk to lots and lots of people on treatment,because I have nothing better to do and Pegasys has less severe sides.Those who have tried both say do Pegasys.
I had my 12 week pcr drawn today,so waiting to see if I continue to 48.
Michael
I had my 12 week pcr drawn today,so waiting to see if I continue to 48.
Michael
hey.. I posted about this awhile ago.. I had to argue and beg to get Pegasys,,I printed out documentation and took to him, he finally agreed to let me have my way.. His office generally uses PegIntron from Scherring.. It has been suggested by soem that perhaps kickbacks are involved, his office says that Scherring has been more willing to give pts meds free when they can't afford them or get dropped from a study but want to continue. Even thoug your doc agreed, I'd take printed documentation to her just to back up your position..
Why the tylenol PM and benadryl? is that what they recommend for sleep?? if so that sux!! Benadryl make me feel very depressed.. and the couple times I tried tylenol pm made me so groggy the next day it was like I was walkng on the moon..
I used to use Valerian root to relax me so I could sleep a little, but it interferes with clotting, so since that's an issue for me now, I can't use it.. I do use 0.25 xanax now and then to take the edge off so I can sleep occassionally. because I have had SERIOUS insomnia for YEARS...
I know I will PROBABLY get blasted for this but...here goes...
there are herbs which will help you sleep without ingesting them.. <<<it doesn't work for everyone, just like the same drugs don't work the same way for everyone>>>> but worth a try:
lavendar : either the flowers tucked into a pillow, or the essential oils mixed with water in a spray bottle and sprayed on the sheets,,or in a diffuser in the room.. or a pure incense
ALSO: SANDALWOOD.. it has sedative properties.. I have a pure powdeered incense that I burn, and it actually gets rid of migraines. it has a very soft light scent../ it can also be sprayed on linens using essential ois in water..
maybe, in SOME cases, using some aromatherapy would be of benefit to some, for some things.. rather than having to take more drugs which in turn have more side effects of their own..
There's alot available online on herbs and aromatherapy.. Just thought it was worth a mention!
Anyway.. my pegasys is sitting in the fridge, just waiting for me to be able to start..hopefully in 3 weeks or so..
OK.. I have to go lie down..just popped on here for a minute..have had a really bad night..feel like ****.. and I'm not even on Tx yet!!! LOL... ya'll have a fab day!!!
Why the tylenol PM and benadryl? is that what they recommend for sleep?? if so that sux!! Benadryl make me feel very depressed.. and the couple times I tried tylenol pm made me so groggy the next day it was like I was walkng on the moon..
I used to use Valerian root to relax me so I could sleep a little, but it interferes with clotting, so since that's an issue for me now, I can't use it.. I do use 0.25 xanax now and then to take the edge off so I can sleep occassionally. because I have had SERIOUS insomnia for YEARS...
I know I will PROBABLY get blasted for this but...here goes...
there are herbs which will help you sleep without ingesting them.. <<<it doesn't work for everyone, just like the same drugs don't work the same way for everyone>>>> but worth a try:
lavendar : either the flowers tucked into a pillow, or the essential oils mixed with water in a spray bottle and sprayed on the sheets,,or in a diffuser in the room.. or a pure incense
ALSO: SANDALWOOD.. it has sedative properties.. I have a pure powdeered incense that I burn, and it actually gets rid of migraines. it has a very soft light scent../ it can also be sprayed on linens using essential ois in water..
maybe, in SOME cases, using some aromatherapy would be of benefit to some, for some things.. rather than having to take more drugs which in turn have more side effects of their own..
There's alot available online on herbs and aromatherapy.. Just thought it was worth a mention!
Anyway.. my pegasys is sitting in the fridge, just waiting for me to be able to start..hopefully in 3 weeks or so..
OK.. I have to go lie down..just popped on here for a minute..have had a really bad night..feel like ****.. and I'm not even on Tx yet!!! LOL... ya'll have a fab day!!!
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