Autoimmune Psoriasis

[NYgirl]

Week 65 on Friday of 72.  I can no longer take it, ARGH!

I have developed a serious case of the autoimmune psoriasis that for some reason has attacked only my face at this point.  It started slowly with two little patches - now I have seven and they are growing.

Has anybody experience with this?  

It's the most uncomfortable ugly itchy red thing I've ever gone through.

I have an appt. with the hep doc this afternoon.  Couldn't get one with the derm doc. I'll ask him about getting Daivobet Ointment.

HELP!!!!!!!!!!!!!!!!!!!!!!

[ladybug52]

You're our poster girl! Don't give up now if you're afraid you'll have regrets later. My gosh what you've gone thru! As a woman I know how important my hair and skin have always been in terms of self esteem (and I'm really not a beauty, just slightly above downright ugly)
Good luck with this latest challenge.
Bug

[jmjm530]

Be proactive. Line yourself up a good derm in advance of treatment. If you've already got inverse psoriasis, the interferon is likely to flare it and morph it into plaque, pustular or possibly even guttate psoriasis. I had the lot. As already stated, the diagnosis isn't always clean and often seb derm, atopic dermatitis and rosacea can become layered in, especially when on treatment. The problem is that what might be good for the psoriasis (light therapy for example) may be bad for the rosacea. Very tricky and sometimes less is more and that's where a good dermatologist comes in. In fact, a lot of what people seem to be describing as "psoriasis" sounds an awful lot like seb derm to me, which can itch quite bad, while psoriasis usually doesn't itch. Seb derm may have a fungal trigger and what may be a benign fungus off the tx drugs, may cause problems when the system because immunosuppresed by the interferon.

All the best,

-- Jim

[Forseegood]

okay, let's eat! ha ha, just kiddin...hope youre well and feeling better all the time...

[Forseegood]

hey, sorry, didn't mean any disrespect, this sounds terrible and I hope everyone ones get through this okay, with their skin much better, the fact that Jim is better now makes me feel that most can...

[DoubleDose]

Hey, I'm not superstitious, and I'm not Rod Stewart, but I do believe that in YOUR late response tx situation (extention to 72 weeks) that you need to try as hard as humanly possible to fulfill your tx guidelines.  Who knows where the cutoff point lies in this case, for successful SVR, BUT you know that you just do not want to be on the short end of that continuum.  I went through so many horrible autoimmune sides on tx, that I thought I had died, and was living in some 'other' land...I had killer mouth sores, rib and neck pains beyond belief, sun-sensitivity, gastric pain, lung burning, and eye grittiness and extreme flares with red bloodshot burning eyes.
I managed to push through it all, because I feared relapse more than the pains and problems.  I relapsed once before, after 15 months of greuling therapy, and I never wanted to relapse again.  If there is any way you can week by week, one at a time ,drag yourself through to the finish, I think you will never feel a regret or self-recrimination....SVR or no SVR.  You will have done the full deed, and climbed to the TOP of the mountain.  Yes, you MAY SVR with sixty-something weeks of tx, but if you don't....will you be able to live with it?  Will you feel OK at the prospect of another, even longer TX???

I believe that you can make it.  If there are no extreme, or life-threatening sx at this point, I would vote for...slogging on!

Good luck to you.  I think you will win this one!!!

DoubleDose

[pigeonca]

First of all, NYGirl, I'm here rooting for you.  Whatever decision you make will be the right one, I'm sure.  If you can't take it, don't, but if you can, we're right with you.  But it would seem to me that a few weeks less than your extended optimal 72 weeks wouldn't matter that much.  Happy holidays.

Forsee, happy holidays, merry christmas, happy new year.  Yeah, screening season is what makes this silly movie business worthwile.  All those freebies.  So far, my faves have been "Little Children," "Pursuit of Happyness" and "Dreamgirls."  Jennifer Hudson, wow!  She will be a big star, I'm sure.  Acting talent as big as her singing talent - i was blown away.

Praying for SVR for everybody.