Blood results refused....

[tipiwoman]

After just dicovering this site today I am reading through some of your postings and questioning what is going on with my treatment! I asked for my blood results early in the piece for in Australia my Dr would simply give me a copy. Here is London they were refused point blank....specialist nurse said they do not give them out and I didn't see my Dr again until week 14 to be told treatment not working! But can stay on for up to 2 years with miniscule chance of clearing virus!
I would only be told my platelete count and have been on a low dose and bloods done each week!....surely this is not acceptable from what I am gathering of some of your comprehensive details you have?

[outofgas]

I live near philly when I go and give blood I fill out a form and they send me a copy within four days, never refused. I know when my doctor knows,if not it takes six weeks to find out results. demand them. (squeekie wheel gets oil) good luck

[tipiwoman]

Thankyou for the info and your great attitude, feel fortified by your words! Best of luck with your treatment!

[Sweetie6852]

Hi
supposed to be here this week - I will contact the Doctor if they don't come through soon - yes took another shot last night -feeling pretty weak right now.  thanks for the support.  Kyle

[sfbaygirl]

Ahhh! I don't remember when everyone starts etc. Dropping Hgb feels the worse when you drop so fast. Dr's who don't normally give Procrit until below 10 or 11, do so when you have a 2 pt. drop quickly. So you most likely had over a 2+ drop in Hgb in a couple of weeks. This sounds more like what happens during tx. I dropped 5 pts in the first couple weeks and felt like a zombie. You feeling like you are climbing Mt. Everest is how it feels when you are anemic. Get that procrit ASAP! My dr. gives me the shots, so I don't have to wait for scrips. When is yours coming? Your Hgb can continue going down while you wait, besides once you get it, it takes a few weeks to begin working. I would ask the dr. to give you weekly CBC's to watch these counts.

Take it easy (like you can do anything else!) the sx of anemia can be scary and really wear you out. Hope you get that Procrit soon!!!

[sfbaygirl]

I always call the day after my shot, shot day cuz' that's when I get the effects.

That's good you are getting the procrit this week. If you feel any worse, chest pains, passing out etc. Go to the ER and get your CBC again to find out if it has dropped again. Hope you will make it okay. I did, but it wasn't pleasant, especially since it is the beginning of tx and you think it will always feel this way. It won't. Anemia is one of the worst sx, you will feel a lot better when those counts go up.

[Sweetie6852]

I don't know the neutrofil count but this is what she said
he red blood cell count was 3.34 yesterday and was 4.47 in march, hemoglobin 10.1 and 13.7 in march, hematocrit 29.9 and 40.2 in march. i hope this helps. i am in the process of dealing with aetna now, have made two calls already, about to make number 3, ordering procrit - you are significantly anemic.