I honestly do not know the cost, but I can imagine it isn't cheap...I have drug coverage through the government because my husband is a government employee so I will not have to pay for anything, but next time I am at the pharmacy, which will be next week, I will ask the gal there...We are freindly and I am sure she can look up the cost for me...
I hope you won't need it...I read in one of your threads that you are hypothyroid, so am I... I take .075 synthroid daily...I am curioous to see what the study says about that, let me know okay...
Best of luck
Beth
I know your pushing hard, and facing that dragon head on, but the important thing here is making it the distance.
I would drop the riba to 1000mg, as at 60,000 units of procrit, you are max dose. That is max dose, and if you do not respond to that they might pull riba to 600mg, or ALL together, as to cover their own butt.
You know my Doc, and I was on 1000mg of riba at your same weight. You need to stabilize your numbers quick, or you risk being pulled off tx.
Honestly, I know you don't think much about supplements, but go out and buy some Folic Acid. Take 400mcg a day. Also, you have to stay active. Walk around the block, or do something physical. I know being anemic that this is the last thing on your mind, but getting oxygen to the blood is essential.
Jim, the goal is making it the distance, not just staying max dose. At 1000mg, you are still at the recommended dose for your weight. We're all rooting for you man!
thanx Beth, I knew it started with a E, would you happen to know the cost, guess could google it and see what comes up, I will have to pay as we lost extended when we turned 65 and because I have a preexisting disease I can't get it now, bummer, grrrrrrrr. The hep nurse at the study said they only had to patients in the last while that had a problem with anemia, hopefully I won't have to deal with it. I wonder if some would be more susceptable to anemia and why?
Hi Jim, I to feel badly for you in your struggle, what does one say, we all hope good things will happen for you, as a newbie I to have learned alot from you, your a wealth of info. Do you have friends etc; to help out if needed, I sure hope so, we all need TLC, wish you the best, get well..............
A google search should help:
<a href="http://www.google.com/search?hl=en&lr=&c2coff=1&rls=GGLG%2CGGLG%3A2005-37%2CGGLG%3Aen&q=peg-intron+ribavirin+dosing+&btnG=Search">Google Search</a>
Here's one of many results (see table 9):
<a href="http://www.drugs.com/PDR/Ribavirin__USP_Capsules.html">One Result</a>
We'll see what my links look like after I post. You may need to cut and paste into the address bar.
" I feel like I am on the wrong dosage but the doctor says I am not."
Thanks to Jim I was able to go to my doctor and give him all the reasons why I did not want to be started on only 800 Riba (I am 5'7 123 right now). He didn't at first want to hear it but since I had written out what Jim said and put it into my own words...he realized I had learned a lot and what I said to him made good sense.
Without Jim I would never have been able to change his mind.
It worked for me. If you try it it might work for you - I tried not to sound like a petulant child but I think he thought I had become a "know it all". Either way he did see the value in my comments and once he stopped laughing so hard he did agree.
The end of my speech was "if it affects me too negatively we can always compensate later" so he felt like he really had nothing to lose. NOt that I would have let him drop me down...
I am 1a and 1b and exhausted all of the time but my blood work is "fine" too. Guess we just need to get used to it and fight on.
Best of luck!
Eprex is the Canadian equivelant to Procrit