i created a chart, and each day i mark off the meds as the take them. i have alarms ringing all day long....an alarm rings before my meds are due so that i can prepare something to eat, and then the alarm rings again when it is time to actually take the med. so far i have not missed a dose....i have been on triple tx since Sept 28, so it has not been so long for me.
One thing for me is that I am on an experimental trail. Perhaps the triple therapy may tolerate an occasional lapse for some people. But I think they are giving us just enough medicine to be effective and I view it like TB meds. If I miss a dose the virus will replicate in a mutated form that cannot then be put down by the drugs I am taking. I believe that for me, if I miss a dose, the treatment is over.
My first week, I was so nervous about missing a dose, that I decided to make a list of the times I took the meds. All of them, Incivik, Riba, PEG (weekly), including my anti-depressant, melatonin (if needed), Zyrtec (if needed) -- everything that goes down my gullet...lol
I just didn't want to take a chance that I might miss one, and I couldn't remember times, either. And so far, I haven't missed a dose, thankfully!
Thnx for the diary tips... I just couldn't do that.. Lizbo1 you reminded me. I DID double dose. Took 2 n then found 2 still out... Low blood labs. Took 2 more. Called nurse. I lived thank God. Haha. What we go through.... Karen :)
Thanks, I really appreciate the suggestions, I have avoided starting the dosing diary because It's just one more thing to do. Its not like my brain is going to improve it's function any time soon! So, ok...I will take your advice curious lady, thanks, Carolyn
If I forgot I never remembered like you did . For all I know, I could of taken it in a dream and thought it was real. That incivek is crazy good stuff!
I would like to make a recommendation that works for me to anyone who might be interested. I am past 60 and take a few pills. I occasionally forget them. For HepC treatment I not only have to take more pills but have to re-arrange all my other pills around those pills and eating/not eating to go along with it. Fortunately, my trial coordinator has given us a dosing diary which I would never under ordinary circumstances use but now, will absolutely not do without. I can become very distracted if I have a lot on my mind and sometimes I forget whether I have taken or not taken a pill even immediately afterward. This is how the dosing diary works. There is a column for Day number, column for date, column for time, column for drug, column for 2nd drug etc., column for did I take it, yes or no, column for if not why not. Hypothetically you could set up such a calender for each drug. I don't enter in any of my other meds (thyroid, diabetes) and occasionally have forgotten them but I have not forgotten my Hep meds. The entry needs to be made immediately after you take the pill (s) and the ritual behind taking them is best done without distraction (no radio or TV). I also don't schedule anything to do around dosing time and I have drastically cut back on my general life activities and anything that could give me stress which is dispensable so I don't have much on my mind to distract me. This does nothing about the past of course, the horse has already left the barn on that one, but may help going forward. When one is anxious, and treatment for this infection is anxiety provoking big time, one is likely to forget. The thing that helps quiet anxiety is to get very concrete and obsessive about routine. That is why a dosing diary is so beneficial I think. Hope this helps.
I missed one around day 16. I was so upset, alarm went off, I ate the fat, the next morning in saw my last night pills still in place. Brain fog I guess.
I was still undetected at week 4. Thank goodness.
Thank you so much for presenting this slip up. I have been loosing sleep since I figured out I skipped a pm dose of incivek on my 16th day. I even ate all the fat but just went to sleep. Knew something was wrong when I woke up early before the morning alarm feeling better than ever. I was going to double up the incivek but thought I'd better call the INCIVEK nurse support hot line 1-855-546-2483. The nurse informed me that if I had, she would be telling me to run to the emergency room. Yikes.
She calmed me down and said to not let it happen again. Told my doc and he said I would just take the missed dose at the end of the 12 weeks.
Crossroads and Ajw: Yea you still became UND. Thank goodness. Pretty scary.
By the way - thanks for reminding me - tonight shot 5. I am hanging on.
I threw mine up once, but they were almost whole, so I took more Hadto wait another hour though to be sure I could keep it down. Then,another time, in my newfound stupidity I set my alarms for 12 p.m. instead of 12 a.m. Not like I forgot or anything, just realy though that that was the midnight that night. I guess that all we can take take from this is knowing what a terrible feeling it is to have missed a dose and have it make us that much more careful in future. Is really nice to read the posts of those who've done such things and SVR'ed though. Thanks, guys
I missed a 10pm incivek dose @ day 10.
I have all the alarms etc.., just forgot.
I taped it to my kitchen cabinet, and haven't missed a dose since.
I was undetectable @ week 4.
Hey Jay,Twice I though I missed my ribo, had to recount all those little RIBA pills, and deduct and try to do the math, in a panic brain fog. I have that pill dispenser, but I just put the supplements in there, that's all that will fit! I feel like I'm caring a baby when I go somewhere. Instead of a diaper bag I carry a rescue bag! Lotions, face creams, toothbrush, medicines, supplements, iPad, waters, candy, fatty emergency foods...lol, and ya can't leave it in the car! Thank goodness for fall, so I don't have to drag everything in with me!
You too, huh... thank goodness for my Prozac rescue, I would have definitely Had a panic attack over this one, but what could I do...I had to let it go, thanks so much for the encouragement. The morning wake up calls are the ruffest cause I'm just not a morning person! I pray that won't ever happen again! Thanks again, Carolyn
yep missed 1 dose of inc....dont think it will affect your outcome...just try not to miss again....i have brainfog now really bad and have missed 4 doses of riba in 22 weeks....had to get the 7 day 3 times a day pill organiser and carry it with me everywhere so i dont miss anymore!
I missed one the third day! A couple of times I took twice Incivik n no RIBA.. Life just got crazy... I still went UND weeks 4,8, n 12. It scared me enuff to be ultra careful. Oh lol - and two days after I finished Incivik.. I found 1 lil pill in my purse.. What's that about? I set 3 alarms too! Karen :) ur Ok...