poll

[mirceani]

I was thinking that some statistical numbers about this group, would be of interest to everyone.
So, I will post those questions, and if enough people will respond, I will make a table with the results and publish them on the group.
If you like the idea, please feel free to improve those questions:
If you do not like it, please just ignore it

1 How long have you been infected with Hep C?
2 What is your genotype
3 Did you have a biopsy?
4 If yes, what are the results
5 Are you on treatment?
6 If yes, how do you respond so far?
7 Have you beed cured (SRV) already ?
8 Did you relapse ?
9 After how much time after end of treatment?
10 Are you on a transplant list?
11 Did you have a transplant?
12 Are you coinfected (HCV or  Hep B or both)

etc etc

[albany]

If not too late - here are my answers
1 How long have you been infected with Hep C? A: approx 10 yrs
2 What is your genotype A: 1A
3 Did you have a biopsy? A: yes
4 If yes, what are the results A: um, 1 and 2- but can't recollect which was which
5 Are you on treatment? A: yes
6 If yes, how do you respond so far? A: don't know- here they will only do quantitative at wk 12- and am awaiting results
7 Have you beed cured (SRV) already ? A: hopefully- but no
8 Did you relapse ? A: n/a
9 After how much time after end of treatment? A:n/a
10 Are you on a transplant list? A:n/a
11 Did you have a transplant? A:n/a
12 Are you coinfected (HCV or  Hep B or both) JUSt HEP C

[Terrylee8]

1 How long have you been infected with Hep C?   39years
2 What is your genotype--1A
3 Did you have a biopsy--YES  05-07
4 If yes, what are the results--2/2
5 Are you on treatment?--YES (35TH WK)
6 If yes, how do you respond so far?--UND@8 WEEKS
7 Have you beed cured (SRV) already? Unknown
8 Did you relapse? -- N/A
9 After how much time after end of treatment?--N/A
10 Are you on a transplant list?--NO
11 Did you have a transplant?--NO
12 Are you coinfected (HCV or  Hep B or both)-- No

[anise]

I hope it is not too late to send in my stats.  

1.  Possible since 1975/

2. genotype 2b

3. Yes, had a biopsy

4. Stage 2, grade 2.

5.  no

6.  n/a

7. Yes, 1 and 1/2 years after treatment, still negative

8.  no

9.  n/a

10.  no

11.  no

12.  had antibodies to both Hep A and Hep B.

[mirceani]

30 people answered so far
I made an EXCEL spreadsheet
I do not know how to attached it to the group - if anybody knows, please let me knowyo do that
I will make a summary and post it MONDAY - sorry I do not have time  this weekend

[alagirl]

alagirl:

1 How long have you been infected with Hep C?
was exposed 7-1-07 (negative tests prior to that, including one on 6-21-07)  Tested positive for HCV at the end of August 2007.  (First time I'd tested after my exposure).  Was acutely ill with HCV by then.
2 What is your genotype
1b
3 Did you have a biopsy?
No, wasn't felt I needed it due to the fact I had documentation showing I was an acute patient
4 If yes, what are the results
5 Are you on treatment?
Yes 1000 Riba / 180 Pegasys - began treatment I believe on 10-08-07
6 If yes, how do you respond so far?
UND at week 4 and continue to be UND/NEG (just finished week 13)
unrelenting hemolytic anemia (four blood transfusions already)
horrible bone, joint pain in legs, knees, hips, arms, wrists,
fingers.
7 Have you beed cured (SRV) already ?
No - supposed to treat for 1yr due to genotype
8 Did you relapse ?
N/A
9 After how much time after end of treatment?
N/A yet
10 Are you on a transplant list?
No
11 Did you have a transplant?
No
12 Are you coinfected (HCV or  Hep B or both)
No.  I'd had the series of available hep vaccines though about four years
before I was exposed to HCV

[JackABCD]

I think this polls are excellent.
Maybe better to add question how the person feel along the treatement.
In my case I have not started yet with the treatement because I am affraid from the side effects of the treatement.

Jack

[JackABCD]

1 How long have you been infected with Hep C? 27
2 What is your genotype ? 1b
3 Did you have a biopsy? Yes
4 If yes, what are the results  ? stage 2-3, grade 2-3
5 Are you on treatment?  No
6 If yes, how do you respond so far? n/a
7 Have you beed cured (SRV) already ? n/a
8 Did you relapse ? n/a
9 After how much time after end of treatment? n/a
10 Are you on a transplant list? No
11 Did you have a transplant? No
12 Are you coinfected (HCV or  Hep B or both) ? No

[FloridaMouse]

1 How long have you been infected with Hep C?
    23 years (since 1985)

2 What is your genotype
     1a

3 Did you have a biopsy?
     Yes
4 If yes, what are the results

     Stage 3, Grade 3-4

5 Are you on treatment?
     Yes.  2nd Round

6 If yes, how do you respond so far?
      Unknown, only 4 weeks in.

7 Have you beed cured (SRV) already ?
       No.

8 Did you relapse ?
       Yes.

9 After how much time after end of treatment?
        5 months.

10 Are you on a transplant list?
        No.

11 Did you have a transplant?
        No.

12 Are you coinfected (HCV or  Hep B or both)
        No.

[burned74]

1 33 years
2 1B
3 Yes
4 2/2
5 finished 2 years ago
6 only partial response
7 n/a
8 n/a
9 n/a
10 no
11 no
12 no

[colts]

1 20 years
2 1a
3 yes last april
4 grade 1 stage 0
5 no
6-12 no

I would be enterested to know using one word on line 7 what sx was like for those of us waiting to treat

[wed1942]

Just posted a question that is related to this. Thanks for your question. It answers some of mine.

[CockSparrow]

1 25 Years
2 G3a
3 Yes 1996
4 Not sure Stage 1 maybe. Stage 2/3 now maybe
5 No
6 N/A
8 No Not clear 24 weeks twice.
9 N/A
10 No
11 No
12 Steatosis.  Had HepA and HepB

[Xenigma]

1 How long have you been infected with Hep C?--GUESSING 30+
2 What is your genotype--1B
3 Did you have a biopsy--YES  11-06
4 If yes, what are the results--G1/S1
5 Are you on treatment?--YES (19TH WK)
6 If yes, how do you respond so far?--UND@12 WEEKS
7 Have you beed cured (SRV) already?
8 Did you relapse? -- N/A
9 After how much time after end of treatment?--N/A
10 Are you on a transplant list?--NO
11 Did you have a transplant?--NO
12 Are you coinfected (HCV or  Hep B or both)--HAV-HBV-HCV
Cleared A & B on my own--Working on the C

(I noticed not many 1b's--I'd like to see more people post
who are that genotype and your results of tx)

[katerika]

How long have you been infected with Hep C?     ?
2 What is your genotype 1a
3 Did you have a biopsy? yes
4 If yes, what are the results  Grade 3/4  Stage 3-4/4 and concomitant Non- Alcoholic Steatohepatitis
5 Are you on treatment?  no
6 If yes, how do you respond so far?  26 weeks never achieved UND so stopped Tx. in Nov.
7 Have you beed cured (SRV) already ? no
8 Did you relapse ?  
9 After how much time after end of treatment?  Never finished
10 Are you on a transplant list?  No
11 Did you have a transplant? No
12 dual diagnosis    HCV and NASH

[PrettyPoisonNoMore]

1- 25 years
2- 1A
3- Yes
4- Grade 1/Stage 1
5- Completed Treatment 8/2006
7- SVR, BABY!
8- Nope
9- 1 1/2 years
10-No
11-No
12-No

[loosenup]

1 How long have you been infected with Hep C?...............30+ years
2 What is your genotype ...............................................1a
3 Did you have a biopsy? ...............................................Yes
4 If yes, what are the results ..........................................grade 2/4  stage 4/4
5 Are you on treatment? ................................................yes
6 If yes, how do you respond so far? ...............................und at 12 wks.  Week 14 today
7 Have you beed cured (SRV) already ?...........................no
8 Did you relapse ? .......................................................no
9 After how much time after end of treatment?..................n/a
10 Are you on a transplant list? ......................................no
11 Did you have a transplant? .........................................no
12 Are you coinfected (HCV or  Hep B or both) .................no

[HARRYBEADS]

1 How long have you been infected with Hep C? ..... 25 PLUS
2 What is your genotype .......................................1A
3 Did you have a biopsy? .......................................Y
4 If yes, what are the results ...................STAGE 1 , GRADE 1
5 Are you on treatment? .........................................Y
6 If yes, how do you respond so far? ...................CLEARED
7 Have you beed cured (SRV) already ?.................NO
8 Did you relapse ? ..............................................NO
9 After how much time after end of treatment? ... ON LAST WEEK OF TREATMENT
10 Are you on a transplant list? ..............................NO
11 Did you have a transplant? ................................NO
12 Are you coinfected (HCV or  Hep B or both) .......NO

  I WOULD BE VERY INTERESTED IN SEEING THE RESULTS ON RELAPSING AFTER FULL TREATMENT.

Harry

[pigeonca]

1.  At least 20 years, according to my doctor, based on stage and grade
2. Geno 2b
3. Yes
4. Stage 2, Grade 2
5. no
6. I was RVR (UND at 4th week of tx)
7. yes, SVR
8. no
9.  I treated for just 13 weeks
10-12 - all no

[pigeonca]

1.  At least 20 years, according to my doctor, based on stage and grade
2. Geno 2b
3. Yes
4. Stage 2, Grade 2
5. no

[vik97]

1 How long have you been infected with Hep C?  About 35 years
2 What is your genotype?  1a
3 Did you have a biopsy?  No
4 If yes, what are the results?  n/a
5 Are you on treatment?  Yes
6 If yes, how do you respond so far?  From 8,000,000 to 6,000 IU/ml after 8 weeks
7 Have you been cured (SRV) already?  No
8 Did you relapse?  No
9 How much time to the end of treatment?  38 weeks
10 Are you on a transplant list?  No
11 Did you have a transplant?  No
12 Are you coinfected (HCV or Hep B or both)?  No

[amazzon]

1 How long have you been infected with Hep C? 5 years
2 What is your genotype? 1a
3 Did you have a biopsy? Yes
4 If yes, what are the results? 1st tx = grade 3, stage 2b...2nd tx = grade 2, stage 2
5 Are you on treatment? Yes
6 If yes, how do you respond so far?  UND since 8 weeks
7 Have you beed cured (SRV) already ? not yet
8 Did you relapse ? from first tx yes
9 After how much time after end of treatment? Need 4 more injection...Yeay!
10 Are you on a transplant list? no
11 Did you have a transplant? no
12 Are you coinfected (HCV or  Hep B or both)? no

[frijole]

1 How long have you been infected with Hep C?     PROBABLY 35 YEARS +
2 What is your genotype     1A
3 Did you have a biopsy?    YES, 2
4 If yes, what are the results     BOTH GRADE 1, STAGE 1
5 Are you on treatment?   NO
6 If yes, how do you respond so far?    I WAS A RESPONDER
7 Have you beed cured (SRV) already ?   NO
8 Did you relapse ?    YES
9 After how much time after end of treatment?   3 MONTHS
10 Are you on a transplant list?    NO
11 Did you have a transplant?    NO
12 Are you coinfected (HCV or  Hep B or both)    APPARENNTLY INFECTED WITH HEP B AT SOME TIME BUT NOT ENOUGH TO DEVELOP IMMUNITY

[mremeet]

1. 24 years
2.  1a
3. yes (2)
4.  F1 (both times)
5.  no
6. n/a
7. yes
8.  no
9.  n/a
10. no
11. no
12. no

[hairtamer]

How long have you been infected with Hep C?   33 years
2 What is your genotype   2b
3 Did you have a biopsy?   yes-2,  '00 and '07
4 If yes, what are the results   1st) miminal mild fibrosis.  2nd) mildly (grade 2), with periportal fibrosis (stage 2)
5 Are you on treatment?  yes, starting wk 10 today
6 If yes, how do you respond so far?  UND at 4 wks
7 Have you beed cured (SRV) already ?  N/A
8 Did you relapse ?   N/A
9 After how much time after end of treatment?   N/A
10 Are you on a transplant list?   no
11 Did you have a transplant?   no
12 Are you coinfected (HCV or  Hep B or both)   yes b & c, cleared b

etc etc