poll

[mirceani]

I was thinking that some statistical numbers about this group, would be of interest to everyone.
So, I will post those questions, and if enough people will respond, I will make a table with the results and publish them on the group.
If you like the idea, please feel free to improve those questions:
If you do not like it, please just ignore it

1 How long have you been infected with Hep C?
2 What is your genotype
3 Did you have a biopsy?
4 If yes, what are the results
5 Are you on treatment?
6 If yes, how do you respond so far?
7 Have you beed cured (SRV) already ?
8 Did you relapse ?
9 After how much time after end of treatment?
10 Are you on a transplant list?
11 Did you have a transplant?
12 Are you coinfected (HCV or  Hep B or both)

etc etc

[charm27]

1- 25 years
2- 1 A
3- Yes
4- 2/2-Mild Periportal Fibrosis
5- Yes
6- 6 log drop after 4 weeks
7- No
8- 1st time txing
9- 7 weeks into tx.
10- No
11- No
12- No - I did have HepB years and years ago but cleared.

[mirceani]

I guess I should answer my own poll:

1. 18+
2  1b
3  yes
4 early cyrotic nodules
5 yes
6 clear after 8 weeks
7 no
8 second tx, but first one did not work
9 NA
10 no
11 no
12 had hepB but cleared on it's own

[gauf]

1- 30 years
2- 3 A
3- Yes
4- 2/3 portal hypertension
5- No-soon. 2x relapser
6- und at 12 wks
7- No
8- yes 2x relapser
9- unknown,6 mos pcr pos.
10- No
11- No
12- No

[nygirl7]

1 How long have you been infected with Hep C?  20 - 25 years
2 What is your genotype  Geno 1A and Geno 1B Both
3 Did you have a biopsy? Yes
4 If yes, what are the results  Grade 2 Stage 3
5 Are you on treatment? Finished
6 If yes, how do you respond so far? SVR
7 Have you beed cured (SRV) already ? YES
8 Did you relapse ?  No
9 After how much time after end of treatment? 11 months post treatment currently
10 Are you on a transplant list? No
11 Did you have a transplant? No
12 Are you coinfected (HCV or  Hep B or both)  No

Good idea I'd love to see it charted out.

[mirceani]

Please suggest additional questions of interest or remove some of the above if of limited interest.

[Bobby1952]

1 How long have you been infected with Hep C?  about 30 years
2 What is your genotype     3a
3 Did you have a biopsy?    yes
4 If yes, what are the results    3/3
5 Are you on treatment?     yes
6 If yes, how do you respond so far?    Dr  did quan at 11 weeks which was undetected
7 Have you beed cured (SRV) already ?   on 16th week of 24
8 Did you relapse ?   na
9 After how much time after end of treatment?   na
10 Are you on a transplant list?   no
11 Did you have a transplant?    no
12 Are you coinfected (HCV or  Hep B or both)    no

[Lady Lauri]

  Per my tx working 'poll'....stay to one thread on this....I posted 'new' ones and get's confusing , LOL. And copy/pasting questions when replying help's not scrolling back up when figuring :}

1 How long have you been infected with Hep C?  'Think' @ 32 years.
2 What is your genotype                                    2b
3 Did you have a biopsy?                                    yes
4 If yes, what are the results                               stage 2/3 fibrosis
5 Are you on treatment?                                     yes
6 If yes, how do you respond so far?                    UND 4 weeks, still (15 weeks in)
7 Have you beed cured (SRV) already ?               N/A
8 Did you relapse ?                                            N/A ....NOT going to :}
9 After how much time after end of treatment?      N/A
10 Are you on a transplant list?                           No
11 Did you have a transplant?                              No
12 Are you coinfected (HCV or  Hep B or both)      No

[goldenrule]

1 How long have you been infected with Hep C? = 4 YEARS
2 What is your genotype = 1A
3 Did you have a biopsy? = NO
4 If yes, what are the results
5 Are you on treatment? = FINISHED
6 If yes, how do you respond so far? = SVR
7 Have you beed cured (SRV) already ? =YES
8 Did you relapse ? =NO
9 After how much time after end of treatment? N/A
10 Are you on a transplant list? NO
11 Did you have a transplant? NO
12 Are you coinfected (HCV or  Hep B or both) NO

[moahunter]

1 How long have you been infected with Hep C?  18 months
2 What is your genotype 1A
3 Did you have a biopsy No
4 If yes, what are the results N/A
5 Are you on treatment? Yes
6 If yes, how do you respond so far? RVR, previously did no repond to failed monotherapy in Acute stage
7 Have you beed cured (SRV) already ? Not known yet
8 Did you relapse ? N/A
9 After how much time after end of treatment? N/A
10 Are you on a transplant N/A
11 Did you have a transplant? No
12 Are you coinfected (HCV or  Hep B or both)  No

[Bill1954]

1 How long have you been infected with Hep C?
A) The last recognized high risk exposure was ~1974

2 What is your genotype
A) GT-1a

3 Did you have a biopsy?
A) Yes, early 2005

4 If yes, what are the results?
A) Stage 3/4, however recent Fibrosure results suggest cirrhosis.

5 Are you on treatment?
A) Yes, currently in week 68/72 of second treatment.

6 If yes, how do you respond so far?
A) HCV RNA negative per bDNA assay (<615 IU/mL) week 4, HCV RNA negative per TMA assay (<05 IU/mL) week 8.

7 Have you beed cured (SRV) already ?
A) No.

8 Did you relapse?
A) Yes.

9 After how much time after end of treatment?
A) Relapse was confirmed at 28 days post treatment.

10 Are you on a transplant list?
A) No. Currently my MELD score is between 7 and 8.

11 Did you have a transplant?
A) No. Not indicated yet.

12 Are you coinfected (HCV or  Hep B or both)
A) No, HCV mono-infection.

[jacksonpotter]

1 How long have you been infected with Hep C?  Dpn't know
2 What is your genotype 1a
3 Did you have a biopsy?yes
4 If yes, what are the results stage 1 mild fibrosis
5 Are you on treatment?yes week13
6 If yes, how do you respond so far? waiting for 1st viral load test to come back
7 Have you beed cured (SRV) already ?n/a
8 Did you relapse ?n/a
9 After how much time after end of treatment? n/a
10 Are you on a transplant list?n/a
11 Did you have a transplant?n/a
12 Are you coinfected (HCV or  Hep B or both)no

[jdwithhcv]

1.   aprox 28 years
2.  1a
3.   yes
4.   2/3 mild/moderate fibrosis
5.   yes, week 18 of 48
6.   UND at weeks 4 and 12
7.   n/a
8.   n/a
9.   n/a
10.  no
11.  no
12.  no

[mirceani]

Interesting stats so far, from 11 answers:

9 of 11 are around 50 years old (age not a question but profile shows that)
7 of 11 are gen 1a
9 of 11 are on treatment
6 of 9 currently on tx, show early response or cleared by wk 4, 8 or 12
2 of 11 are SVR
2 of 11 relapsed


  

[hairtamer]

How long have you been infected with Hep C?   33 years
2 What is your genotype   2b
3 Did you have a biopsy?   yes-2,  '00 and '07
4 If yes, what are the results   1st) miminal mild fibrosis.  2nd) mildly (grade 2), with periportal fibrosis (stage 2)
5 Are you on treatment?  yes, starting wk 10 today
6 If yes, how do you respond so far?  UND at 4 wks
7 Have you beed cured (SRV) already ?  N/A
8 Did you relapse ?   N/A
9 After how much time after end of treatment?   N/A
10 Are you on a transplant list?   no
11 Did you have a transplant?   no
12 Are you coinfected (HCV or  Hep B or both)   yes b & c, cleared b

etc etc

[mremeet]

1. 24 years
2.  1a
3. yes (2)
4.  F1 (both times)
5.  no
6. n/a
7. yes
8.  no
9.  n/a
10. no
11. no
12. no

[frijole]

1 How long have you been infected with Hep C?     PROBABLY 35 YEARS +
2 What is your genotype     1A
3 Did you have a biopsy?    YES, 2
4 If yes, what are the results     BOTH GRADE 1, STAGE 1
5 Are you on treatment?   NO
6 If yes, how do you respond so far?    I WAS A RESPONDER
7 Have you beed cured (SRV) already ?   NO
8 Did you relapse ?    YES
9 After how much time after end of treatment?   3 MONTHS
10 Are you on a transplant list?    NO
11 Did you have a transplant?    NO
12 Are you coinfected (HCV or  Hep B or both)    APPARENNTLY INFECTED WITH HEP B AT SOME TIME BUT NOT ENOUGH TO DEVELOP IMMUNITY

[amazzon]

1 How long have you been infected with Hep C? 5 years
2 What is your genotype? 1a
3 Did you have a biopsy? Yes
4 If yes, what are the results? 1st tx = grade 3, stage 2b...2nd tx = grade 2, stage 2
5 Are you on treatment? Yes
6 If yes, how do you respond so far?  UND since 8 weeks
7 Have you beed cured (SRV) already ? not yet
8 Did you relapse ? from first tx yes
9 After how much time after end of treatment? Need 4 more injection...Yeay!
10 Are you on a transplant list? no
11 Did you have a transplant? no
12 Are you coinfected (HCV or  Hep B or both)? no

[vik97]

1 How long have you been infected with Hep C?  About 35 years
2 What is your genotype?  1a
3 Did you have a biopsy?  No
4 If yes, what are the results?  n/a
5 Are you on treatment?  Yes
6 If yes, how do you respond so far?  From 8,000,000 to 6,000 IU/ml after 8 weeks
7 Have you been cured (SRV) already?  No
8 Did you relapse?  No
9 How much time to the end of treatment?  38 weeks
10 Are you on a transplant list?  No
11 Did you have a transplant?  No
12 Are you coinfected (HCV or Hep B or both)?  No

[pigeonca]

1.  At least 20 years, according to my doctor, based on stage and grade
2. Geno 2b
3. Yes
4. Stage 2, Grade 2
5. no

[pigeonca]

1.  At least 20 years, according to my doctor, based on stage and grade
2. Geno 2b
3. Yes
4. Stage 2, Grade 2
5. no
6. I was RVR (UND at 4th week of tx)
7. yes, SVR
8. no
9.  I treated for just 13 weeks
10-12 - all no

[HARRYBEADS]

1 How long have you been infected with Hep C? ..... 25 PLUS
2 What is your genotype .......................................1A
3 Did you have a biopsy? .......................................Y
4 If yes, what are the results ...................STAGE 1 , GRADE 1
5 Are you on treatment? .........................................Y
6 If yes, how do you respond so far? ...................CLEARED
7 Have you beed cured (SRV) already ?.................NO
8 Did you relapse ? ..............................................NO
9 After how much time after end of treatment? ... ON LAST WEEK OF TREATMENT
10 Are you on a transplant list? ..............................NO
11 Did you have a transplant? ................................NO
12 Are you coinfected (HCV or  Hep B or both) .......NO

  I WOULD BE VERY INTERESTED IN SEEING THE RESULTS ON RELAPSING AFTER FULL TREATMENT.

Harry

[loosenup]

1 How long have you been infected with Hep C?...............30+ years
2 What is your genotype ...............................................1a
3 Did you have a biopsy? ...............................................Yes
4 If yes, what are the results ..........................................grade 2/4  stage 4/4
5 Are you on treatment? ................................................yes
6 If yes, how do you respond so far? ...............................und at 12 wks.  Week 14 today
7 Have you beed cured (SRV) already ?...........................no
8 Did you relapse ? .......................................................no
9 After how much time after end of treatment?..................n/a
10 Are you on a transplant list? ......................................no
11 Did you have a transplant? .........................................no
12 Are you coinfected (HCV or  Hep B or both) .................no

[PrettyPoisonNoMore]

1- 25 years
2- 1A
3- Yes
4- Grade 1/Stage 1
5- Completed Treatment 8/2006
7- SVR, BABY!
8- Nope
9- 1 1/2 years
10-No
11-No
12-No

[katerika]

How long have you been infected with Hep C?     ?
2 What is your genotype 1a
3 Did you have a biopsy? yes
4 If yes, what are the results  Grade 3/4  Stage 3-4/4 and concomitant Non- Alcoholic Steatohepatitis
5 Are you on treatment?  no
6 If yes, how do you respond so far?  26 weeks never achieved UND so stopped Tx. in Nov.
7 Have you beed cured (SRV) already ? no
8 Did you relapse ?  
9 After how much time after end of treatment?  Never finished
10 Are you on a transplant list?  No
11 Did you have a transplant? No
12 dual diagnosis    HCV and NASH