Aa
Good Wishes
Due to a bad case of ignorance, I wasn't aware of the process and so did not start tx Friday as anticipated. Hope this post is allowed -- just want to say sorry to "Sindog" for breaking our "date" to start together and hope his first shot was uneventful and he's enjoying the beautiful weather (east coast -- a truly glorious November!). All the best to all.
Well, TY Susan, it does take time to understand my way of writing,because I tend to shorten things(see the nicknames?) due to the fear of forgetting my train of thought or because I am hiding at work to post or simply because of laziness. I know what I want to say, I choose the words I think will be effective in conveying it and write. When I read it, it still sounds like what I wanted to say, so it stays.
With you, every time you posted the wait and watch and your regimen, I was scared that some folks who should not wait were choosing to, so I always presented an oppossing comment, I can see how that could be taken as an attack after a while. But you now word things just right that leaves no doubt as to your intentions. And like you, I still don't agree with some of the things you say or how you say them, but you are always consistent.
Couldn't: darn it, I can see how that would look like a cheering post! But rather than reacting, could you have asked what I meant? WE do have to be thick skinned when posting in an open forum and ready for almost anything. You have to have the energy to deal with the feedbacks, that is for sure.
I have no doubt that you are well researched, inquisitive and have reasoned out your choices. The mention of the owning the stock was to go with the fact that the released reports might be all that was accessible to you for reading, not to question your motives. I still don't think that the new drugs can be touted with fanfare as an alternate, with absolutely no ill effects and I will say so. It is not attacking your research and knowledge.
I see how you would think otherwise, though.
There are always people with positive attitudes towards the new drugs and those that tend to be on the cautious side, almost to skepticism. We have to be ready for both.
Yes, you probably have read and research much more than me and most folks, but you know that not every one is going to agree with your conclusions here, just like not everybody in their peer community is going to agree with the researchers you are reading. Knowledge does not make things absolute facts.
With my post, I wanted you to clarify what reports you had accessed to and your points to contradict the message written. At the same time, cheering vegas for presenting an opposing view. That is what this forum used to present, points and counterpoints.
Your input is tremendously appreciated by all, including me. You can question my motives any time. I have been through 2 1/2 yrs of training here and been called many things, like she devil.
This is one of the longest posts I have written, unusual for me, short, to the point, easy to misinterpret is more my style.
I am glad you explained how you saw it, I just wish you would have started there.
With you, every time you posted the wait and watch and your regimen, I was scared that some folks who should not wait were choosing to, so I always presented an oppossing comment, I can see how that could be taken as an attack after a while. But you now word things just right that leaves no doubt as to your intentions. And like you, I still don't agree with some of the things you say or how you say them, but you are always consistent.
Couldn't: darn it, I can see how that would look like a cheering post! But rather than reacting, could you have asked what I meant? WE do have to be thick skinned when posting in an open forum and ready for almost anything. You have to have the energy to deal with the feedbacks, that is for sure.
I have no doubt that you are well researched, inquisitive and have reasoned out your choices. The mention of the owning the stock was to go with the fact that the released reports might be all that was accessible to you for reading, not to question your motives. I still don't think that the new drugs can be touted with fanfare as an alternate, with absolutely no ill effects and I will say so. It is not attacking your research and knowledge.
I see how you would think otherwise, though.
There are always people with positive attitudes towards the new drugs and those that tend to be on the cautious side, almost to skepticism. We have to be ready for both.
Yes, you probably have read and research much more than me and most folks, but you know that not every one is going to agree with your conclusions here, just like not everybody in their peer community is going to agree with the researchers you are reading. Knowledge does not make things absolute facts.
With my post, I wanted you to clarify what reports you had accessed to and your points to contradict the message written. At the same time, cheering vegas for presenting an opposing view. That is what this forum used to present, points and counterpoints.
Your input is tremendously appreciated by all, including me. You can question my motives any time. I have been through 2 1/2 yrs of training here and been called many things, like she devil.
This is one of the longest posts I have written, unusual for me, short, to the point, easy to misinterpret is more my style.
I am glad you explained how you saw it, I just wish you would have started there.
I think you've got the wrong impression about Cuteus. I did, too, when I first began posting here. I was convinced that she was just out to give me a hard time about everything. I've since come to realize that she's geniunely motivated to help folks and provide balance in the wide range of opinions that are disseminated.
I still don't agree with her on a lot of things, but I do value her participation on this board. She's one of the good ones, and so are you. There's room for both of you here. And I know that you'll come to respect and like Cuteus if you just give it time.
Susan
I still don't agree with her on a lot of things, but I do value her participation on this board. She's one of the good ones, and so are you. There's room for both of you here. And I know that you'll come to respect and like Cuteus if you just give it time.
Susan
I am a new member of this web sit and it has been so helpful. I am waiting also and it is killing me I had a sonogram also and got the results. It showed a fatty liver. I am waiting to have my Liver biopsy. I see my MD on the 16th and the biopsy will be scheduled at that time. At what point did you have to go on disability? The other thing is me being overweight. I have read that keeping your weight down is very important. I am trying so hard to loose these 50 extra pounds I am carry around and being stressed out does not help. I am one of those people who will eat when stressed instead of not eating.
Just for a thumbnail - I think you're looking at dosing levels that are being scrapped. They tried 3 levels and two seemed not quite enough to finish the job. I don't think there was a bounce back in the optimally dosed group. More info on the 1 hr webcast available the the Vertex site.
This is a response I just got from the Chair of the Canadian National Hepatitis C Steering Committee regarding this mornings Vertex and others news:
"I know all would love to be able to post that a cure is available tomorrow, but things take time. The Hepatitis C virus is a pretty smart cookie. I'm warmed to see so much research on this virus in many ways. Not only medications directed at killing or controlling the virus, but also quality of life issues. There is so much emphasis on the word treatment that only deals with stopping or controlling the virus. There are so many other issues affecting those impacted with this disease. It ravages many parts of the body, may enhance other autoimmune disorders etc. These also have a place in the "treatment" envelope, but are usually set aside for current interferon combo treatments. Many of the new drugs in development are picked up by readers who often fail to distinguish between a security and exchange release, which is usually enhanced as to seek funding for more research and thus a profit for investors. One has to be careful when reading these releases as they are directed at the security analysts and investors rather than disease group consumers. Hopefully the NS3 inhibitors will show some promise as we have had only interferon in a few different guises, combined with a nuke for the past 10 years or so. There are many working long and often fruitless hours, to seek a cure for this disease. One day soon I hope it will be on our doorstep."
"I know all would love to be able to post that a cure is available tomorrow, but things take time. The Hepatitis C virus is a pretty smart cookie. I'm warmed to see so much research on this virus in many ways. Not only medications directed at killing or controlling the virus, but also quality of life issues. There is so much emphasis on the word treatment that only deals with stopping or controlling the virus. There are so many other issues affecting those impacted with this disease. It ravages many parts of the body, may enhance other autoimmune disorders etc. These also have a place in the "treatment" envelope, but are usually set aside for current interferon combo treatments. Many of the new drugs in development are picked up by readers who often fail to distinguish between a security and exchange release, which is usually enhanced as to seek funding for more research and thus a profit for investors. One has to be careful when reading these releases as they are directed at the security analysts and investors rather than disease group consumers. Hopefully the NS3 inhibitors will show some promise as we have had only interferon in a few different guises, combined with a nuke for the past 10 years or so. There are many working long and often fruitless hours, to seek a cure for this disease. One day soon I hope it will be on our doorstep."
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