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11681875 tn?1437537975

HCV with ratio of 348900

My Mother is suffering with Hcv since 2 years ,today we got result of PCR of Hcv quantitative with ratio of 348900 and I am worry about my mom ,here doctor suggest 72 injection but I want treat with tablets if any tablets are available kindly suggests and please guide us on which stage virus is exit ,is it danger zone or recoverable zone,please kindly guide us.thanks
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Avatar universal
Good to know.  Thanks for the information.

I see from your response tokOkO, that you travel to Germany twice a month.  Have you tried to make contact with a Dr there?  It is my understanding that Germany has excellent medical Drs.

Also, have you checked into the company from whom you could buy on line to make sure that they are a legitmate, trustworthy drug supplier?  Hou don't want to spend that kind of momey and get something that will not help your Mother.

Finally, can you maybe set up an appt for her in Germany on one of your trips, then take her with you on a later trip so the Dr can actually examine her draw bloods, etc there, in order to write the proper prescription?

That sounds like the very best of all options, to me.

Blessings, Pat
Helpful - 0
11681875 tn?1437537975
Dear how can you say ,you have great hopes if anyone guide me I will purchase these tablets easily because I visit Germany every twice month
Thanks and Regards
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Avatar universal
I'd be careful with high hopes. This medicine can't be purchased online.
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11681875 tn?1437537975
Thanks for your answer  its your kindness to give me important time ,India has ban on Pakistani people but I can purchase tablets from online through FedEx ,
Mom wait is almost 55 kg and altrsound result is coarse liver but changement initially and mom is patient of hypo thyroid ,please discuss with your doctor I will pay him through western union  or credit card I am waiting for your answer Regards
Sarfraz
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Avatar universal
Sarfrarai:

That thread I referred you to above is labeled Generic Harvoni in India and was posted by Amigo77.  Suggest you read the whol thing.

They are talking about Harvoni coming to India, but ALSO discuss the Sovaldi, which should be taken with Ribavirin.

Did I ever ask you how much your Mother weighs?  Ribavirin is prescribed, based on weight.

P
Helpful - 0
Avatar universal
Hello again.

I will be seeing my Dr again on June 8th for results of the Lab woek to be drawn on May 20th for my EOT24 measurements.

I will ask him if he can work with you and your Mother directly, either by e-mail or Skype (do you know about that and have access to it on your computer?) OR knows a good doctor in Pakistan or a nearbby country.  I believe India does have some good doctors, but do not know how far you would have to travel.  india also now has the Sovaldi (sofosbuvir) both the Gilead one and a couple of good generics, already available there.

The June Appt is the soonest I will have access to my Dr.  But I will be sure to talk to him about you Mother - and take my IPad so he can see your posts, if he can treat that way.  I am really hopin
g that, with his network of associates, from the research he does, he will be able to recommend someone.

Also, please look on the List od threads on the same page that this is and read the post Harvoni in India.  There are a couple of people on there Who live in India and can probably tell you much more quickly than I can, where you can get good treatment for your Mom.

I'll keep in touch as I have my Labs on May 20th, and Dr appt on June 8th.

by the way (BTW), has your Mom had a biopsy?  If so, what was the report?  I understand some countries do not do biopsies any more but do Fibroscans and / or Fibrosure blood work.  Did she have these instead?

Blessings to you both (and your families).

Pat
Helpful - 0
11681875 tn?1437537975
Dear Respected Maim,

How are you ? I need your help if you do not mind ,can you discuss my matter with your doctor and I will pay you doctor fee ,I am worrying about my mom health because she is going to sick if you do not mind give me number I will send you NY mom reports through whatsapp ,I am waiting a positive answer from your side

Regards

Sarfraz
Helpful - 0
11681875 tn?1437537975
We are living in Pakistan
Helpful - 0
Avatar universal
First, I am NOT a doctor, so all of my opinions, my Friend, are just that, BUT, having said that, I do think Daklinza WITH Sovaldi are a good choice if you have access to both. mdaklinza by itself, is not sufficient, nor is Sovaldi by itself.  I got this information from my Dr, when discussing follow-up treatment, if I had needed it.

I agree that Interferon is Not a good choice.  It has so many side effects!  Plus, people with Genotype 3 do not respond as well to it as other genotypes.

What country are you in?  Do you have access to those meds?  

Do you have a doctor to write the prescriptions, and monitor your Mother's blood work if she gets on treatment?

This is not something that can be bought over the counter and Lab work (monitoring the blood) is really important while on the meds.  

i read a website last night that Dee found and posted, that said India will have The generic of Sovaldi in a couple of months, Egypt is also almost there, also, and the companies making these generic meds are setting up to serve other countries, so it should not be too long before they are available most places.

Again, find a doctor that you can trust to work with the meds for your Mom.  

I feel so helpless not being comfortable saying go get the Meds, they will work, but, as I said, I am not a doctor, and even doctors can't guarantee the results, but they are trained to know what to look for through treatment, to make sure no harm is done.

Not knowing where you all live, I cannot even suggest places to check about getting treatment.  

Regards,

Pat

Helpful - 0
11681875 tn?1437537975
Here is not good doctor ,they use interferon injection that are very dangerous and side effect
What is your thinking of daklinza dose for my mother ,is it OK ,can you share this case with your doctor if possible
Regards
Helpful - 0
Avatar universal
I am really well.  Thank you for asking.  

I got my results today and I am officially SVR12 - or Undetected for viral load at 12 weeks after completion of treatment.

I will be tested again in more weeks and again in 6 months after that.

is your mother seeing a Hepatologist?  The Dr will guide her to the correct medicine for treatment.  I wish her every success in defeating this disease.  She will feel so much better once it is gone?

Good luck!  Blessings on you both.

Pat



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11681875 tn?1437537975
Dear Respected Petra,
How are you ? What is your result after completing the course,I want to know about your result ,after that I will start medicine to my mom
Regards
Helpful - 0
Avatar universal
My viral load in May 2014, right before I begain treatment was 813,096 - well more than twice what your Mother's is.  

I was diagnosed in 1994 treated with Interferon injections 3 times a week for 7 months, and was a null responder or I relapsed while still on treatment, I don't know which.

I did not follow up as I was told there was nothing else that would work. Then, in January of 2014, when I had my gall bladder removed, the doctor noted from my medical history that I had not had a biopsy since 1994, and suggested doing one while I was having surgery.  I agreed and we found that I had Fibrosis, Stage 3' Level A-0 / A-1.  The surgeon said I should see a specialist.  My family Dr agreed and had an appt made for me and sent my records.  That is when I was tested for the Genotype and viral load.

My Dr said that the Daklinza and Sovaldi were the best combination for the Gt3s like your Mom and Me, BUT, since I had the Fibrosis. one full stage from Cirrhosis, he really recommended that I treat immediately with Sovaldi/Ribavirin to at the least, keep the viral load UND (Undetected) while I was on treatment.

Basically, the only side effect I had was extreme fatigue.  Part of it was from the medications, but part of it was from the Anemia I got from taking the Riba - an expected side effect.  The protocol recommends reducing that amount of Riba pills.  I wanted to keep the level as high as possible, so, after reviewing my records and questioning me again about my symptoms.  He let me continue with the full dose as I had no other side effects, and I am retired and coulf stay in bed, or curled up in my comfy chair and read.  He did order the bolld tests more often.  

I still have one week til time I get my EOT Week 12 Lab Work done.  

I will surely let you know the result of my scores as soon as I know - probably 03-11-15. as that is my nexy Dr's Appt.  It takes 10 days to 2 weeks for the viral load test to come back to the Dr.

Hope I have answered your questions.  Do not hesitate to post a question as we have lots of caring, very knowledgeable people here.
  
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11681875 tn?1437537975
Thanks for your information, what was you viral load and when you will perform test kindly share your result. Is it any side effect you feel during treatment
Thanks for your time
Helpful - 0
Avatar universal
Hi, Saf:  Welcome to the Forum.  I am/was (? still two more weeks to wait for my Week 12 after Treatment test to know) Genotype 3 also.  

IF your Country has Daklinza , THEN the BEST treatment for Gt3 is Dalkinza and Sovaldi - I think Dac is 40 mg and Sovaldi is 400 mg - once a day for 12 weeks.

If Daklinza is not approved there, yet, then you mom's best choice is Sovaldi (400 mg) once a day, and Ribavirin (200 mg each each) 6 a day, 3 in the morning with the Sol and 3 in the evening.  I believe I have read that the Ribavirin now come in 600 mg pills, so that would be 1 in the morning with the Sovaldi, and 1 in the evening, for 24 weeks.

The Riba can cause, anemia, but does not always.  It is best taken with some yogurt, cottage cheese, avocado, or something else with a little 'good' fat to bind the Riba and help it process through the body better and more efficiently.  The Sovaldi is better for having eaten a little something when you take it, but it is not a requirement.  Otherwise the only side effect that most people notice is fatigue.

Hope this helps and that you have the meds there.  

The Daklinza/Sovaldi from all the tests I have read, both when the two manufacturers were testing them together and when BM,S continued testing, after Gilead withdrew to work on their own combo, seem to have very few, if any side effect, treatment is only half as long, and has a tremendously high success rate.

Blessings for your Mom for SVR (HepC Speak for cure) and Blessings for you for helping her!

Hang in there.

Pat
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11681875 tn?1437537975
We performed test of genotype that result is 3A so please guide us which tyblet we use and how much time use this ,please mention company name which are produced that pills
Ultrasound show liver is normal
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Avatar universal
This is very low. 348,900 is no biggie. Do pills only if she is qualified. You left out a lot of information. Genotype? Any liver damage? Tell us more.
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Avatar universal
I don't know which country your mom lives in. Her viral load is not high at all....high is now considered to be anything over 6 million.. And, how high or low it is, does not make her prognosis either better or worse. It only has bearing on how long she should treat with a couple of the medications available in the U.S. where tablets are available. If it is at all possible for your mom to access treatment with the tablets made by Gilead or Abbvie (if she is genotype 1) without the injections (interferon) that is what would be best.
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