Aa
HGB 9.8 Riba Reduction
They reduced me from 1000 to 600. I am still on the Telaprevir for 10 more days so maybe I will be okay. Hopefully, it will go back up in a week, so I can get back to normal dosage when I come off the Tela. Nurse said Tela causes hgb to drop also. I started at 15.8 and dropped quickly.
My concern is if I get put into the 6 months group what my chances of SVR would be with the reduction. I asked the nurse and she said they don't know because there are no studies yet on this. Oh boy its always something ! Lol ! Have to laugh to keep my spirits up.
I'm half tempted to take 800 a day and wonder would that make a difference? Any thoughts. They count my pills every visit, but I could come up with some excuse as to what happen to them.
I knew something was wrong last few days as my face color changed from milky pale white to gray with black eyes. Anyone else have the black eye thing going on? The odd thing is I feel okay though and have had more energy since last week. Weird.
Well all I can do is try not to worry about it and see what happens.
My concern is if I get put into the 6 months group what my chances of SVR would be with the reduction. I asked the nurse and she said they don't know because there are no studies yet on this. Oh boy its always something ! Lol ! Have to laugh to keep my spirits up.
I'm half tempted to take 800 a day and wonder would that make a difference? Any thoughts. They count my pills every visit, but I could come up with some excuse as to what happen to them.
I knew something was wrong last few days as my face color changed from milky pale white to gray with black eyes. Anyone else have the black eye thing going on? The odd thing is I feel okay though and have had more energy since last week. Weird.
Well all I can do is try not to worry about it and see what happens.
My Hb dropped from 10 to 9.1 this month. Not on Telaprevir but I had the grey "death mask" look with sunken eyes for awhile. I guess we could start a new fashion trend. We need a name. Goth is already taken.
Sorry to hear this tippy...My Hb also dropped very low on tx...
Try not to exert yourself and rest up.....Lets hope next blood test it has gone back up to acceptable levels...PXx
Try not to exert yourself and rest up.....Lets hope next blood test it has gone back up to acceptable levels...PXx
You know how close to your situation I feel, since the exact same thing's happened to my HGB last week, below ten. Darn, we didn't want this on our plate.
I have no answers. In my case, I'm burying my head in the sand, hoping it will go away. I'm sure no help to you.
And you know how much you've helped me - it's miraculous and simple and so hot. :) And I've already bought the peanuts, in the shell and shelled.
I'm thinking of you and wishing you the best. If only the solution to low hgb were as easy as a tub of Vaseline.
Port
I have no answers. In my case, I'm burying my head in the sand, hoping it will go away. I'm sure no help to you.
And you know how much you've helped me - it's miraculous and simple and so hot. :) And I've already bought the peanuts, in the shell and shelled.
I'm thinking of you and wishing you the best. If only the solution to low hgb were as easy as a tub of Vaseline.
Port
A blood transfusion consists of lying on a bed for half a day whilst you get a couple of units of blood.
It beats dose reduction although the benefits are temporary.
You really want to maximise on ribavirin whilst you are taking telaprevir.
Once you dose reduce ribavirin you can't 'buy back' the benefit by increaing it later.
It beats dose reduction although the benefits are temporary.
You really want to maximise on ribavirin whilst you are taking telaprevir.
Once you dose reduce ribavirin you can't 'buy back' the benefit by increaing it later.
"my face color changed from milky pale white to gray with black eyes. Anyone else have the black eye thing going on? "
Yes I looked like a vampire for 72 weeks believe me. I started using Jergens Tan Express lotion so I'd level out to a human looking color again.
AS for the dose reduction, it seems like a very big reduction to me considering the one thing docs try for is no dose reductions. What week are you in? At least until the end of week 12 I would really try to stay up at the 800 if possible.
But that is my opinion (I double dosed riba the entire time because I was crazy so bear that i mind!)
Yes I looked like a vampire for 72 weeks believe me. I started using Jergens Tan Express lotion so I'd level out to a human looking color again.
AS for the dose reduction, it seems like a very big reduction to me considering the one thing docs try for is no dose reductions. What week are you in? At least until the end of week 12 I would really try to stay up at the 800 if possible.
But that is my opinion (I double dosed riba the entire time because I was crazy so bear that i mind!)
I'm anti transfusion because I don't know anything about it. Guess I better start investigating, just in case.
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