Aa
Hemopurifier or VRAD
First post & I want to thank you all for being here !
I am trying to deal with the same problem many of us are carrying . Age 52 male , 1-a for ?? years, not willing to try the SOC yet ... liver function ALT, AST a bit high, albumin, bilirubin and the rest in good shape....... using some herbs ... licorice, Milk Thistle, ALA and a few others until, and hopefully that will be soon, in the next few years or so there is a better standard of care available to the public.
Many friends tried SOC Tx, some attained SRV..... with lasting after effects of Tx, some not able to SRV and lasting after effects ...only 2 SOC Tx and it seems no lasting side effects, both their TX was done in the mid to late 90's.
Has anyone in this community heard any latest news from or have any input on these virus removal tools, Hemopurifier or the Japanese version VRAD ?
Apparently the VRAD Tx in combination with SOC Tx, the Japanese Govt. is helping to pay the patients bills for the VRAD & you know the state of their economy has not been in good shape for years.
The Hemopurifier apparently was given a chance for a fast track " clinical trials " in India with supposedly outstanding results ... hmmmm
I'm personally opposed to the SOC Inf + Riba Tx before it absolutely needed or until some other combo with SOC Tx would give better % results in a shorter Tx period. This Tx is very hard for many, with many experiencing lasting effects. Which is worse ?? As the time to challenge it is a matter of personal perception and personal choice, as well as to trust a "doctors" perception,evaluation and dosing, please be patient, understanding & realize any feedback and pertinent information is much appreciated.
Thank you in advance, curious minds want to know ....
I am trying to deal with the same problem many of us are carrying . Age 52 male , 1-a for ?? years, not willing to try the SOC yet ... liver function ALT, AST a bit high, albumin, bilirubin and the rest in good shape....... using some herbs ... licorice, Milk Thistle, ALA and a few others until, and hopefully that will be soon, in the next few years or so there is a better standard of care available to the public.
Many friends tried SOC Tx, some attained SRV..... with lasting after effects of Tx, some not able to SRV and lasting after effects ...only 2 SOC Tx and it seems no lasting side effects, both their TX was done in the mid to late 90's.
Has anyone in this community heard any latest news from or have any input on these virus removal tools, Hemopurifier or the Japanese version VRAD ?
Apparently the VRAD Tx in combination with SOC Tx, the Japanese Govt. is helping to pay the patients bills for the VRAD & you know the state of their economy has not been in good shape for years.
The Hemopurifier apparently was given a chance for a fast track " clinical trials " in India with supposedly outstanding results ... hmmmm
I'm personally opposed to the SOC Inf + Riba Tx before it absolutely needed or until some other combo with SOC Tx would give better % results in a shorter Tx period. This Tx is very hard for many, with many experiencing lasting effects. Which is worse ?? As the time to challenge it is a matter of personal perception and personal choice, as well as to trust a "doctors" perception,evaluation and dosing, please be patient, understanding & realize any feedback and pertinent information is much appreciated.
Thank you in advance, curious minds want to know ....
MAYBE YOU COULD FIND SOMETHING OF VALUE THE WAY NYGIRL SUGGESTED "
Glad as usual that we could be of so much help to a newbie. Anytime!
Glad as usual that we could be of so much help to a newbie. Anytime!
"Of course it will be the SOC Tx until they allow others potential Tx to try to prove themselves . Until that time comes , I am very happy there are other countries willing to at least try to open the doors to other regime's."
Allow? There are a whole lot of new drugs in development.
See: http://www.hcvadvocate.org/hepatitis/hepC/HCVDrugs_2009.pdf for a list of HCV drugs in development.
The real goal of "big Pharmas" is to develop an HCV treatment that does NOT include interferon. But, for now it's an unfortunate but necessary ingredient to achieve SVR.
Mike
Allow? There are a whole lot of new drugs in development.
See: http://www.hcvadvocate.org/hepatitis/hepC/HCVDrugs_2009.pdf for a list of HCV drugs in development.
The real goal of "big Pharmas" is to develop an HCV treatment that does NOT include interferon. But, for now it's an unfortunate but necessary ingredient to achieve SVR.
Mike
If somehow I opened the preverbal " can of worms " from posting my questions on virus filtration devices , then , I want to say, I'm sorry, I had no idea that folks could have reactions that are so heated......
We are all here to learn, share ideas , access and evaluate the responses. We are all in one way or another in this together. Try not to forget that.
Stress in itself is a killer ,there is no "medicine" to "cure" stress. Somehow, we as individuals have to find some resemblance of peace in our minds.
As Emily ( moderator ) said, "Please remember the Terms of Use. It is never ok to insult anyone, and that is why some posts are being deleted. Keep it civil, and it's all good."
To : NYgirl: I just went through a extended period of time helping and watching my father deteriorate until he was no longer strong enough to recover. He finally passed a year ago this month, in fact the 14th. Dec. ANY long term life taking illness is not a way to go or one I would wish on anyone. His lifestyle was very clean & he lived a full life, but the last 2-3 years were extremely, extremely difficult. No one wants to watch, or worse yet experience this kind of slow death as a result of ANY illness.
I wonder how there would ever be any advances in medicines for us infected if the FDA is so close minded that they restrict clinical trials to Interferon based therapy's ?
Of course it will be the SOC Tx until they allow others potential Tx to try to prove themselves . Until that time comes , I am very happy there are other countries willing to at least try to open the doors to other regime's. Our FDA or big pharm sure won't.
IFN is a nasty drug , Which is worse ? We are all different and no 2 people react the same..... to the disease or to the medications to "cure" it.
That some folks are so close minded or even get angry about discussing subjects like the possibility that the Hemopurifier or some other device or medication may come along to help all of us , or those who do not yet know they are infected , not have to weigh the risk's of lifetime of possible side effects, maybe achieving SRV, in my case less than a 50% chance, or maybe not achieving SRV, myself I just don't get it.
Of course when it comes down to it , I really want, like everyone, want this out of my body. I do try my best top stay on top of testing, monitoring and living a fairly clean lifestyle ,stress reduction is a must, good foods, exercise etc.
I opened the subject of the Hemopurifier, Vrad , with the hopes to find info I did not already have, BTW , to me this was an information gathering tool & like any other information gathering , you take the good with the bad and try to weed through the nonsense..
Folks use all the tools available to your individual situation and make informed decisions.
Since some folks seem to not be able to be civil, or are getting mad about this subject and related posts it's time to put a close to it and move on to something else........
Good luck & good health !
Regards , Aaron
We are all here to learn, share ideas , access and evaluate the responses. We are all in one way or another in this together. Try not to forget that.
Stress in itself is a killer ,there is no "medicine" to "cure" stress. Somehow, we as individuals have to find some resemblance of peace in our minds.
As Emily ( moderator ) said, "Please remember the Terms of Use. It is never ok to insult anyone, and that is why some posts are being deleted. Keep it civil, and it's all good."
To : NYgirl: I just went through a extended period of time helping and watching my father deteriorate until he was no longer strong enough to recover. He finally passed a year ago this month, in fact the 14th. Dec. ANY long term life taking illness is not a way to go or one I would wish on anyone. His lifestyle was very clean & he lived a full life, but the last 2-3 years were extremely, extremely difficult. No one wants to watch, or worse yet experience this kind of slow death as a result of ANY illness.
I wonder how there would ever be any advances in medicines for us infected if the FDA is so close minded that they restrict clinical trials to Interferon based therapy's ?
Of course it will be the SOC Tx until they allow others potential Tx to try to prove themselves . Until that time comes , I am very happy there are other countries willing to at least try to open the doors to other regime's. Our FDA or big pharm sure won't.
IFN is a nasty drug , Which is worse ? We are all different and no 2 people react the same..... to the disease or to the medications to "cure" it.
That some folks are so close minded or even get angry about discussing subjects like the possibility that the Hemopurifier or some other device or medication may come along to help all of us , or those who do not yet know they are infected , not have to weigh the risk's of lifetime of possible side effects, maybe achieving SRV, in my case less than a 50% chance, or maybe not achieving SRV, myself I just don't get it.
Of course when it comes down to it , I really want, like everyone, want this out of my body. I do try my best top stay on top of testing, monitoring and living a fairly clean lifestyle ,stress reduction is a must, good foods, exercise etc.
I opened the subject of the Hemopurifier, Vrad , with the hopes to find info I did not already have, BTW , to me this was an information gathering tool & like any other information gathering , you take the good with the bad and try to weed through the nonsense..
Folks use all the tools available to your individual situation and make informed decisions.
Since some folks seem to not be able to be civil, or are getting mad about this subject and related posts it's time to put a close to it and move on to something else........
Good luck & good health !
Regards , Aaron
i looked for the study on clinical care and could not find it anymore. I remember dr shiffman making this statement on there about a year ago. When I have more time I will try and find it.
It stands to reason that the less time interferon is in the body the less damage. doesn't take a rocket scientist to figure that out :-)
It stands to reason that the less time interferon is in the body the less damage. doesn't take a rocket scientist to figure that out :-)
THANK YOU EMILY_MHModerator
Good morning.
Please remember the Terms of Use. It is never ok to insult anyone, and that is why some posts are being deleted. Keep it civil, and it's all good.
http://www.medhelp.org/termsofuse.htm
Specifically:
Rules for Posting Questions in Forums and Public Areas
6. Posting material that is unlawful, obscene, derogatory, defamatory, threatening, harassing, abusive, slanderous, hateful, or embarrassing to any other person or entity as determined by MedHelp in its sole discretion.
Everyone agreed to adhere to these when you joined. We have had many abuse reports from this thread for posts on both sides of the arguement. Remember that it's entirely possible to disagree without getting insulting.
Thanks,
Emily
Please remember the Terms of Use. It is never ok to insult anyone, and that is why some posts are being deleted. Keep it civil, and it's all good.
http://www.medhelp.org/termsofuse.htm
Specifically:
Rules for Posting Questions in Forums and Public Areas
6. Posting material that is unlawful, obscene, derogatory, defamatory, threatening, harassing, abusive, slanderous, hateful, or embarrassing to any other person or entity as determined by MedHelp in its sole discretion.
Everyone agreed to adhere to these when you joined. We have had many abuse reports from this thread for posts on both sides of the arguement. Remember that it's entirely possible to disagree without getting insulting.
Thanks,
Emily
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