I went to see one of the docs at the Univ of Miami. Many of the docs in this area look in that direction as the font of knowledge and one of the notable fronts on the hcv battle line. They are involved in many of the drug trials and the docs (several of them) are names that appears in study reports and articles that get passed around here. The one I saw is the second banana to Dr. Schiff (Snook's doc). But even as a second at UM, he's the head hepatologist at the Miami VA - a big place. Point is, there are a lot of doc with lots of expereince out there and if you live in, or have access to, a large metro area you should be able to find one. I also found that many docs really don't get their noses twisted too much if you ask who they would go to if they had the same medical issue personally. The disease and the treatment is too significant to worry more about a doc's feelings than about your own health.
I'm sorry, but I can't remember where you went for your personalized plan. I need to have this to take to MY hep doctor in a couple of weeks. Actually, never see the DR only his RNP.
Would you please fill me in? Thanks.
Debby, thank you. It is so very hard but nice to know I am not totally alone. Love the name you posted to me!!! Made me laugh. Needed to today. I hope I can be as strong as you. I used to be. Between the hep and all the home junk I sort of lost myself. I don't always post but I am here almost every day and all of you are an exceptional group of people and I am blessed
(uh-oh bad word) to have found this place. Now, I am going to go home and eat ice cream for dinner!!!!!
The only reason I jumped on board this crazy plane was my kids needing a mom. I don't have a husband anymore (jerk) so I had to make sure I did this.
You WILL level out in time and stop freaking so much, believe me. At first it was overwhelming for ALL of us in here - we all forgot to ask questions on our lists and forgot what the doctor said a minute after he said it etc. etc. on and on and on.
But in time you are going to REALLY get used to it all. Where as now every single THING is a major hardship later on it's just gonna be second nature to you.
I PROMISE. And I rarely ever lie about serious stuff like this......well maybe once in a while ;)
But seriously - take a DEEP breath and just realize you have GREAT support in here and with THAT on your side, you CAN DO IT.
Without the support in here I'm just not sure if I could have. But when I was down and out let me tell you - the guys in here made me laugh and cry and realize...we are all in it TOGETHER.
And that makes everything possible.
You will be fine if I have to carry you myself.
So RELAX. :)
Debby
If you can get a sooner doc appt, the tx meds and do some magic with the kids - maybe you can start sooner and get rid of some of the waiting angst.
Just read your second post - thanks - also made me smile - "shoot, swallow and roll up your sleeve". Sorry for being such a sissy girl. Know others here (including you and NYGirl) have been at this point, went through a lot and still here to help others. You too Mr. Beagle. This disease not only affects my body but at times I allow it to invade my soul. Need a few days to find a little peace of mind. Thanks all!