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Avatar universal

Hi everyone!

Hi everyone!  I hope everyone had a wonderful holiday. I may not post often, but read every day.  Truly, I have had no news to post.  But now, 3 months after taking myself off daily infergen and riba, I am still undetectable.  I went to see the doc on Dec. 19 and he gave me the news.  He tells me that this is wonderful, but to keep up with the bloodwork for the next six months just in case of relapse.  Anyway, since being off the meds, my hair has begun growing back.  Mind you, it looks like a newborn baby's hair with little fuzzies sticking up everywhere, my energy level is unbelievably high.  My headaches are gone.   I am starting to get my appetite back.  My mental state has improved.  My vision is still very impaired and doubt it will ever be back the way it was during treatment.  I do want to thank everyone for the support and valuable information you have provided throughout my ordeal.  I read your stuff every day and still take in every piece of information I can about this horrible disease.  I am not out of the woods yet, but perhaps in the near future, if I do have to go back on meds, maybe there will be something different and not so brutal.  Happy holidays everyone.

Linda
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Avatar universal
Alright, you guys have given me a laugh for the day.  People always told me that I was the only one that noticed the hair loss because I have to live with it until one day when I was sitting at my bosses desk and he asked me if I got my hair thinned.  Imagine my horror.  If he noticed, then the whole world noticed.  One of you has the Mohawk look, one has the chicken look and I have the helmet head look.  My hair is so baby fine that when the wind blows, it sticks straight out and is very unmanageable.  Very embarrassing.  Then when you try to pull it up, the pony tail is pathetic and so not there.

Well, I will tell you this.  My hair is growing back so rapidly that I have to get it colored every three weeks instead of every 6 like before and even though it is costing a fortune, at least it is a way to measure the growth.  It is amazing to wake up each day and try to figure out what chicken, mohawk or helmet head you are gonna wear today.  Just keep plugging along.  I am just waiting til I get that horrific 70's look back.

Vanity, vanity, vanity.  It is either that or lose our sanity!!

Linda

Helpful - 0
86075 tn?1238115091
So glad to hear you are doing better, you guys are such brave souls, you think youre vain, try living in W. Hollywood! Ironically, so many people have hep here or other diseases, that you do see the "spare hair" look around here from time to time, and actually, people are pretty nice about it all.

Don't be embarrassed that you care about this stuff, in this culture we are conditioned (excuse the pun) to care about our hair like nothing else! There's a hair care commercial on every 4 minutes! But so glad that it is growing back and all, glad to hear you were able to work as well. I know of a few women who were devastated about their hair and now it's better then it was previously for them. So glad youre doing better!
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Avatar universal
thanks for the uplifting post-sorry 'bout hair  issues,but what about the 'vision problem'?--hey sounds like you beat the devil--May your post-treatment hair get so dang thick you have to thin it!!!!!!!!!!!!!
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Avatar universal
Amen to that!!!!
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Avatar universal

Hey girl if I was taking it well do you think I would be whacking it off with a week whacker?   ;-)   :-p

I tell you this is bizarre. i went from having long blond/brown hair and being nice and fit to being a skeleton with stringy pieces of brown hair in a matter of weeks.  If anyone says that I am vain so be it but...I am having a major problem with vanity right now and just keep saying Well Bones...hang in there you can have fun gainning the weight back and picking out different wigs and guys will just think you are some hot Kate MOss type supermodel ;-)

I wish! HA!

I'm glad to hear you sounding so great and you really do you know that?  It always makes me feel good when someone posts who hasn't in a while and you can hear a smile in their voice when they do.

baby chicken hair is a great thing you know...a GREAT thing and I am really happy for you that it's coming in. do you know how healthy it's going to look and be? man oh man it's going to be FABULOUS!

:)
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Avatar universal
Thanks for making me laugh!  :)

I have to admit I actually own a few cheap wigs that I used to use just for fun.  Of course NOW I can't find them anywhere doesn't that figure?  Did I will this on myself?  :-O

My daughter actually said to me yesterday what about extensions and after I said well I really don't have a thousand dollars in the first place...what are the going to be extended FROM? I mean the cracked off hair is bad enough but the missing hair...can't attach anything to it and that is the problem!

Of course you have to realize I work for one of the biggest beauty companies in the entire world - while some people know others dont and I am just waiting for someone to comment on my appearance holy COW are they gonna get slapped with a DISCRIMATION SUIT! ;-)

haha.  Things like that while not reasonable make me smile. I am a sick person.

D
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