Aa
High Liver Enzymes-Post Tx/friole
Yes, high enzyme numbers would be scaring me too. Please let us know when you get the PCR back.
Thinking about you.
Thinking about you.
Guess I will put this thread to bed so it goes to the archives with an answer.
I relapsed. So the elevated post tx enzymes told the story. My 3 month viral load was 680,000 IU/mL.
End of story for now.
I relapsed. So the elevated post tx enzymes told the story. My 3 month viral load was 680,000 IU/mL.
End of story for now.
My biopsy was also the "fishhook" (wire-guided) one - only mine was an ultrasound guided fishhook. Then I had to get dressed and sit in the waiting room and then go to the surgical area and undress and go thru all the yada-yada with those nurses and then I had to wait 3-4 hours for the surgeon -- guess he got hung up with something else. That fishhook-wire deal was mighty gross! Surely they can come up with something else.
Now, oddly enough, Ina, my business partner was dx with DCIS in May. She had the mammogram guided fishhooks and then the excision biopsy. The doctor ended up doing what he said was, in effect, biopsy one and biopsy two so when they found the eensiest teensiest area that looked invasive, it was, "off with the tit!" I make light, but she did in fact have a complete mastectomy in July and is doing well. She said the artifial boob is pretty heavy and has a problem of drifting.
My partner and I are both in that high risk group of women over 50 never having a full term pregnancy. Since it is Monday, I must look to see if you have posted somewhere. Maybe I will look south.
kathy
Since this is Monday,
Now, oddly enough, Ina, my business partner was dx with DCIS in May. She had the mammogram guided fishhooks and then the excision biopsy. The doctor ended up doing what he said was, in effect, biopsy one and biopsy two so when they found the eensiest teensiest area that looked invasive, it was, "off with the tit!" I make light, but she did in fact have a complete mastectomy in July and is doing well. She said the artifial boob is pretty heavy and has a problem of drifting.
My partner and I are both in that high risk group of women over 50 never having a full term pregnancy. Since it is Monday, I must look to see if you have posted somewhere. Maybe I will look south.
kathy
Since this is Monday,
Thanks "girls".
I know tomorrow, friday afternoon. The surgeon will call me with the biopsy results.
It was suggested that I have a breast MRI 3 years ago, but I was so busy starting tx, I just didn't get around to it. And during tx the idea of being bombarded with magnets didn't appeal to me.
Well now they saw changes in the milk ducts, which could be compatible with Ductal carcinoma in situ.
So yesterday I had an excisional biopsy, guided by a wire that was placed under MRI. My back was killing me, I had to lay for over an hour without movement on my belly, boobs hanging through an opening in the table. They placed the wire in that position too, then for a mammo to see if the wire was in proper position, then to surgery.
I was in the hospital from 8-2, and the only thing I could think about was...I am SVR, my liver should be able to survive any insults from chemo. But as far as I know, ductal carcinoma in situ is taken care of with surgery and radiation.
Friole, I hope I won't miss your post. I am so sorry you have to live with this uncertainty about your ALT's. I would be going through the roof.
A warm hug to you ,
Ina
I know tomorrow, friday afternoon. The surgeon will call me with the biopsy results.
It was suggested that I have a breast MRI 3 years ago, but I was so busy starting tx, I just didn't get around to it. And during tx the idea of being bombarded with magnets didn't appeal to me.
Well now they saw changes in the milk ducts, which could be compatible with Ductal carcinoma in situ.
So yesterday I had an excisional biopsy, guided by a wire that was placed under MRI. My back was killing me, I had to lay for over an hour without movement on my belly, boobs hanging through an opening in the table. They placed the wire in that position too, then for a mammo to see if the wire was in proper position, then to surgery.
I was in the hospital from 8-2, and the only thing I could think about was...I am SVR, my liver should be able to survive any insults from chemo. But as far as I know, ductal carcinoma in situ is taken care of with surgery and radiation.
Friole, I hope I won't miss your post. I am so sorry you have to live with this uncertainty about your ALT's. I would be going through the roof.
A warm hug to you ,
Ina
good luck ladies!!!!
friole, don't you have them copy the results to you? Ina convinced me of doing that. SO when I get my PCR, which takes about 3-4 days to complete, I get a copy in the mail
friole, don't you have them copy the results to you? Ina convinced me of doing that. SO when I get my PCR, which takes about 3-4 days to complete, I get a copy in the mail
Ina - damn - I didn't realize you had a breast biopsy too. All these little things we put off until after txing - like regular exams and mammos. I just had a biopsy on Oct 30th. It was read locally and I had the results the next Monday - fortunately it was benign. It was suspected to be what is called an intraductal papilloma (fondly called warts in the duct) but turned out to be nothing but dense fibrous tissue. I hope your goes as well, I am sure you are anxious, and hope to see your results posted somewhere.
pdilly - not sure where you live, but my tests which are very sensitive are done by LabCorp are done at the NGI laboratory in LA and I live in Texas. I think the less sensitive tests are run in Dallas. I think about 10 days is the fastest I have received my results. Even tho the local labcorp gets them online, I think sometimes they don't get them downloaded and to the docs for a day or two. Since I go in, they always have to look on the computer to see where they are. I usually get them faster than the doc does.
Ina, sounds like yours are done the same way.
Ina - I think hepatitisresearcher is this person. He sure was helpful.
http://www.ngi.com/
go to scientific team and click on bio for A.C.
pdilly - not sure where you live, but my tests which are very sensitive are done by LabCorp are done at the NGI laboratory in LA and I live in Texas. I think the less sensitive tests are run in Dallas. I think about 10 days is the fastest I have received my results. Even tho the local labcorp gets them online, I think sometimes they don't get them downloaded and to the docs for a day or two. Since I go in, they always have to look on the computer to see where they are. I usually get them faster than the doc does.
Ina, sounds like yours are done the same way.
Ina - I think hepatitisresearcher is this person. He sure was helpful.
http://www.ngi.com/
go to scientific team and click on bio for A.C.
I am crossing my fingers too.
Lab Corp refuses to fax me copies, or give results over the phone. I got to wait for it to come in the mail, all that privacy jabber.
Including mailing (3days), it takes about 17 days...that are 17 days of frying in the hottest hell.
Like you, I am now waiting for my breast biopsy results...more waiting, and waiting !!!
Ina
Lab Corp refuses to fax me copies, or give results over the phone. I got to wait for it to come in the mail, all that privacy jabber.
Including mailing (3days), it takes about 17 days...that are 17 days of frying in the hottest hell.
Like you, I am now waiting for my breast biopsy results...more waiting, and waiting !!!
Ina
Lots of good books lately--reading is about the only form of exercise I really enjoy these days ;-) I particularly enjoyed Amy Tan's new book "Saving Fish from Drowning" maybe fishdoc will want to take a look at it too! You are right--I didn't clear at 12 weeks (or at 24) I finally cleared at 26 weeks but my insurance company would only extend me to 52. I did have a month of Peg w/out Riba and with Procrit prior to starting 'official' treatment. We shall see. My hope is that we treated 'together' we will both get good news at about the same time!
Hey there--I was just thinking about you. I had my 90 day PCR on the 25th and I'm waiting on results too--nerve racking isn't it? My liver enzymes stayed high throughout treatment--started in high 200's went down to high 100's by the end of treatment so I can't say I'm overly optimistic. Called my doctor's office this morning and asked them to call me with results even if they only had the liver function tests so far, but of course no call back as yet. It's a wonder I have any fingernails left at all. I'll be thinking of you and keeping my fingers crossed for us both!
Tracy
Tracy
avid - If you had yours on the 25th , it should be out pretty soon. I went back and looked at my notes -- you weren't clear at 12 weeks either - you had 3500 vl - ( I had 40 IU/mL). I don't know wht these stinking enzymes mean either but we are about to find out.
read any good books lately?
Doc of fish -- believe me, I get those results as soon as they come in - before the doctor. but it doesn't help calling LabCorp - I get caught in there muck muck so I just stand at their counter (benefits of a small town!) How are you doing today? Got all those chickens and dogs in line?
read any good books lately?
Doc of fish -- believe me, I get those results as soon as they come in - before the doctor. but it doesn't help calling LabCorp - I get caught in there muck muck so I just stand at their counter (benefits of a small town!) How are you doing today? Got all those chickens and dogs in line?
patience my @ss, start calling somebody!!! My lab gets Quest stuff back in 6-8 days.......I'm for calling them directly too!!
I love Amy Tan. I haven't heard of that one and I must go find it --- right now!!!!! I have been reading an oldie _The Monkey Wrench Gang_ by Edward Abbey. About eco terrorists in the 70's I think. The characters are nuts, but if they build the wall between Mexico and the US I might have to rethink the ecoterrorism thing (just kidding).
I hope your 52 and my 56 were enough. Can't remember your biopsy. Mine was Grade 1, Stage 1
I hope your 52 and my 56 were enough. Can't remember your biopsy. Mine was Grade 1, Stage 1
I go to lab quest too and my labs are done on Wednesdays. I usually have them on Fridays but always by Monday. The nurse always just faxes me a copy.
I have no idea what it would take 3 weeks. Surely they are not that busy down there.
I have no idea what it would take 3 weeks. Surely they are not that busy down there.
all - I had the PCR done on 08/03(Friday). I made up a release for my doc to sign so i can always get my copies because he is really bad at calling about them. The PCR was not in Monday (of course) when I picked up the rest of the labwork. Experience says that it will take at least 10 days - but you can bet I will be checking often. Maybe I will now by next Wednesday.
ny - you ask what my doc thinks? Apparently not enough to call me about it. The test I had run before this last one was done at the hospital before my breast biopsy (benign, by the way- hooray). I gave the copy to my GI and specifically asked him about the elevated enzymes and he had no answers and showed lack of concern. You can bet that IF I have relapsed I will seek a professional out of town and not this local yocal.
frijole bean
ny - you ask what my doc thinks? Apparently not enough to call me about it. The test I had run before this last one was done at the hospital before my breast biopsy (benign, by the way- hooray). I gave the copy to my GI and specifically asked him about the elevated enzymes and he had no answers and showed lack of concern. You can bet that IF I have relapsed I will seek a professional out of town and not this local yocal.
frijole bean
You can also call the lab directly and see if it has come in so you can call your dr for results. They will at least let you know if it still pending or possibly your dr is slow giving you the results (been known to happen). I did that for my PCR's because my dr would always wait on calling me for some unknown reason.
I can see your concern. The waiting seens never-ending. I can't figure out the 3 week pcr wait. even with susequent processes, should not take more than 10 days or so. Lab acknowledge it's in some stage of process?
Just wanted to tell you I'm thinking of you. I don't have any idea what your raised lft's may or may not mean, but I do understand how painstaking the wait for the pcr results is. It is hard! I will be on the lookout for your results and wishing for only the best for you!
Frito,
Wow that is so bizarre - you know I don't have any idea at all but I wanted to post shared concern to you. I remember when mine went from the upper 20s to the low 30s I cracked up sure I was in relapse or dying or something. I'm stupid.
This is just bizarre and pissing me off. You went so LONG - 56 weeks isn't an easy thing to do and this makes no sense since you've NEVER had high numbers before.
Did you ask the doctor what he thought it meant (not that I have much faith in what a doctor might say here LOL)?
Wow that is so bizarre - you know I don't have any idea at all but I wanted to post shared concern to you. I remember when mine went from the upper 20s to the low 30s I cracked up sure I was in relapse or dying or something. I'm stupid.
This is just bizarre and pissing me off. You went so LONG - 56 weeks isn't an easy thing to do and this makes no sense since you've NEVER had high numbers before.
Did you ask the doctor what he thought it meant (not that I have much faith in what a doctor might say here LOL)?
Thanks for your concern, jaroman. I hate that it takes almost 3 weeks to get the results from the PCR back. This is nerve racking.
For those of you who haven't caught this deep down in the threads where I usually post..... My liver enzymes - for as far back as I have copies of blood work (1995) have always been in the 20's. That is one of the reasons doctors never tested me for C (for insurance reasons and other reasons, I never told them I had tested positive for the anitbodies in 1993 thru a blood donation).
Here is how my ALT and AST have been:
Pretx AST-29, ALT-28
Highest during tx -AST-34, ALT-37
Post tx (56 weeks) AST-22, ALT-20
2 weeks post(routine physical) AST-29, ALT-22
11 weeks post - AST-52, ALT-58
12 weeks post - AST-68, ALT-80
Any ideas, any studies, guys and gals? No changes in my diet (other than eating more than on tx), no new meds and no other changes I can think of that would affect the liver
frijole
For those of you who haven't caught this deep down in the threads where I usually post..... My liver enzymes - for as far back as I have copies of blood work (1995) have always been in the 20's. That is one of the reasons doctors never tested me for C (for insurance reasons and other reasons, I never told them I had tested positive for the anitbodies in 1993 thru a blood donation).
Here is how my ALT and AST have been:
Pretx AST-29, ALT-28
Highest during tx -AST-34, ALT-37
Post tx (56 weeks) AST-22, ALT-20
2 weeks post(routine physical) AST-29, ALT-22
11 weeks post - AST-52, ALT-58
12 weeks post - AST-68, ALT-80
Any ideas, any studies, guys and gals? No changes in my diet (other than eating more than on tx), no new meds and no other changes I can think of that would affect the liver
frijole
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