Look, VX-950 is not a done deal BUT we will have a pretty good idea how it will work within the year and in Hep C years that's really not too far off.
I think if it had been "squashed" in Europe because of heart complications
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BILN 2061 was squashed in Europe because of heart complications about two years ago. I'll bet anyone a fake dollar that's what this is about. LOL.
In 1969, little was known about even what was then called "Chronic Persistent Hepatitis". In fact, the leading hep authority of that day told me it would "burn out in 5-7 years". Guess the "experts" were wrong. LOL.
So little was known, "Hep C" wasn't invented yet, so obviously no stigma and greatefully no internet. LOL.
I had what they termed an acute reaction, meaning jaundice, fever, yellow eyes, brown urine, white stools. Nothing subtle here :) To make a long story short, I had several remissions and relapse cycles for the next four years and then it basically went away.
Never really gave it a though except maybe once every 6-10 years checked in with a hep who basically told me not to worry plus there weren't any treatments anyway. And, when hep c was first discovered, the hep told me treatment was horrid with lousy results -- that in the monotherapy days.
Did I have any symptons during that time -- the so-called Extrahapatic symptons. Y'know, really not sure. Maybe I did have more fatigue or depression than I may have without the virus. I did have a little psoriais, maybe that was from the virus too. OR maybe none of it was from the virus. Point is I really didn't analyze it cause what was, was. This was my baseline and just accepted it for what it was. Meanwhile, fatigue and all, I managed to compete successfully in some grueling long distance sporting events, more lately against men half my age.
Then, three years ago my biopsy showed stage 3, geno 1's were now getting 50-50 results, so I decided to treat. Put it off for three years and the rest you know.
But basically, outside of the 4 acute/remission years -- Hep C hardly ever affected my life or thoughts at all.
I really believe a lot of the trauma people go nowadays is due to the stigma of the word Hep C as opposed to the virus itself and whatever damage it may cause. This is not to say that the virus can't cause damage but it doesn't with everyone and it generally moves pretty slow.
So in a sense I was unlucky that no cures were available in the old days but in a sense I was lucky because Hep c was never considered a big deal by anyone. I used to mention to folks all the time -- friends, doctors, relatives, etc, that I had a chronic liver condition just like I might mention I had a bad knee, UNTIL all of a sudden it became HEP C and the stigma started. After that point I told practially no one.
Does a tree make a sound if it falls in the forest if no one is there to listen? Does Hep C exist if no one tells you that you have it?
Nite.
-- Jim
Thanks for saying what you were told. It is alarming info that isn't consistent with info about Vertex that has been made available so far. We will have to wait and see. I think if it had been "squashed" in Europe because of heart complications, that would be info that would be known and the stock prices would be going down not up.
Thanks honey, yes i do feel I can take a breather and wait for something else down the road.
Jim, wow thats a long time ago to be dx. How have you felt over the years? That is a big burden to carry. Well i guess I do have some time then if I am at this stage. Did you feel sick over the years or as if nothing wrong?