Cured after 43 years :S/O 12 weeks

[candyce1953]

I am soooooooooo happy and greatful  I am cured !!!!!

12 week EOT SVR

undetected yeah!!!

after having the virus for 43 years, was 1B/ stage 3/naive

hopefully everyone will cure with one of these new combos, very doable, biggest side effect was very fatigued so I slept allot

i also have auto immune  primary Bilary cirhosis   ( high AMA mittachonrial )

or something else

my eosinophils are very very high 25.9(2.00)

not sure why , anybody else with this ???

good luck to everyone !!!

xoxox candy

[candyce1953]

Do you have PBC?
Have you treated yet?
How high are your eospinals ?
At first they wanted to send me to hematologist but then looked back in my records and saw it goes up and down like this for years, may also be related to gerd acid reflux which I am having a problem with also

[candyce1953]

All my labs are normal as well as no hep c anymore
Accept anti mitochondrial which usually is PBC indicator still high but coming down ( was 114/ now 77/ normal is below 20 so we will see, I cut out Valium which can effect your liver, so I am giving it 3 months to see if it corrects

My md said it can predict getting possibly  PBC, I hope not

My eosinpinals have just been getting higher though , up to 25
Saw an allergist trying to see if it is food or environmental, am eliminating advair disc for asthma which can raise EOS

ALT AST GGET alka phosphate everything else normal

[herblady4]

By the way, that is freaking GREAT!!!!!!!!!

[herblady4]

I am very interested to see if your PBC labs get better following your successful treatment. I had high eosinophils, but my Hep C doc said not to worry about it, i didn't have PBC. I decided to believe him, even tho the labs pointed to PBC. Frankly, it terrified me.

[patra_]

Can't type - I meant to put EOT = End of Treatment.  Sorry about that!

[patra_]

12 weeks AFTER last day of treatment. Called End od Treatment or EOB.

[lb141]

12 weeks EOT?

[candyce1953]

Thank you Maddie and everyone else who wrote with well wishes
I am thrilled beyond seeing md Friday !!!$
Xoxo
Candyce

[mzkity]

Great news! Very happy for you!

[ms maddie]

Very Happy for you Candyce.  Wonderful news!!!!

[candyce1953]

candyce1953  
less than a minute
To: Verdugo
Thanks V, now I remember ( boy am I out of it
Well my EOS are now 25
Higher than ever
I cleared HCV and am hep c free
But they keep climbing

Seeing primary md tomorrow and hepatologist Friday

I do have asthma and allergies, I read that a very rare side effect of my inhaler advair can cause high EOS

So rone on another hep c line also mentioned to me there is a relationship between high EOS and herd/acid reflux, so I I'll look into that too !

So your are normal now though yes?
Xo ch

[Verdugo]

Hi Candy,

Here are the two threads which I discussed my EOS and food allergy issues and you mentioned yours.  

http://www.medhelp.org/posts/Hepatitis-C/Chronically-High-Eosinophils/show/2176991#post_10707879

http://www.medhelp.org/posts/Hepatitis-C/Anyone-have-any-digestive-problems-with-Hep-C/show/2165879#post_10347042

What does your doctor say about the EOS?  Like I asked before, please do update me when you get new info.  Best of luck, V.

[Sovaldi13Newbie]

I knew you were going for your 12 soon, and I'm SO GLAD for you!!!! Yes!!!! Seeing this gives us hope, and with all you've been through, I'm sure you're walking on air!!!! I'm still feeling really lousy and this Wed will be my 4th week EOT viral load. When I hear about you and all the other SVRs I've been seeing...It gives me such hope. Thanks for posting and hooray for you!!!!!!

[candyce1953]

Ithank you V for the well wishes
I am beyond thrilled

I am having a senior moment or brain fog but I don't remember your EOS
Please please tell me a again, as I am totally freaked out about it
And also what did we say about allergies, I am allergic to allot
But
I have never had such high EOS  25/something weird going on in my body, started during tx and then just kept climbing
Also high ESR , high anti mittachondrial , don't know what's connected to what
Going to see Md. Friday hopefully he knows something

I think. I maybe having allergic hypersensitivity to my asthma inhalers advair,
Xoxo
Candy

[Verdugo]

Yay Candyce!  It’s especially heartening for me to see you’ve SVRed as we share a few of the same conditions.  I’m so happy for you and hope that this, in time, will alleviate your other health issues.

As you know, I (have)had the eos issue too but hope I’ve put it to bed now, assuming I SVR.  I’ve done a lot of research regarding this one blood marker since it’s plagued me and no one could ever tell me why.  

First, I’d say that because you are only 3 months out, there is a good chance your body is adjusting to life without HCV (YAY).  And since Livelife had a high result after treatment (never having had an issue before), it seems possible that it may be a normal body response.  In the meantime, you may want to test for parasites or a hidden allergy as these are the most likely culprits.  And since you already know you have food allergies, ask yourself if you are really compliant and not eating anything that is a known allergen to you.    Good luck!  

Please update with any new info and enjoy your newest diagnosis:  CURED!
V.

[candyce1953]

I was and everyone is undetected on Sovald , doesn't matter when during tx

What matters is when you stop it can come back, relapse
If your md says do 24 and insurance pays in would do it if I were you
I only did 12 cause I am stage 2/3 and 1b and treatment naive

But I have seen other people relapse who were either 1a or cirrhotic or treated before
So if you are any of those and you can get it paid for then my suggestion would be to stay on treatment to be sure

That's prob why your md is suggesting that, why don't you ask him reason why he is suggesting that
Good luck
Xox candy

[Optimist3]

Congratulations!!!!!!
Happy recovery!
I am so glad you were able to beat it!
I have been undetected since week 8 and the doctor is suggesting possibly prolonging my treatment on sovaldi/oysio .....so that we make sure it does not come back and of course if the insurance approves this....
I am not 100% sure I want to....since I don't know what long-term side effects if any.... this combo might have in the future.....My BP was jumpinh up and down very strangely recently and I am bout to finish next week....
I have had HEPC for 27 years and was treated with interfreon in the past and have had issues after that treatment for many years.....not sure I want ot extend anything....
were your undetected at week 4? or later?
Just trying to see if I need more treatment or I should be happy at what has been achieved so far....

Thank you
Appreciate any INPUT FROM ANYBODY who has extended the treatment to 24 weeks.....
Optimist3

[nursehepc]

After 43 years...wonderful news...wow...fantastic!!!!! Congratulations!!!!! Jo

[candyce1953]

Thank you so much Linda , I am thrilled but shocked after 43 years

But I think the meds are getting better and better, soon even shorter
treatments and gentler,

I think very soon no one will have hep c anymore
Xoxo candy

[hepcandme]

I am Thrilled to hear this news!

CONGRATS!!!!!!!!!!!!!!!!!!!!!

Now, on to life's new adventures

All the best

~Linda

[madelefant]

Very good to hear. Congrats!!!!

[sue4hula]

Yay!  Congratulations!  What wonderful news!  Give your body time to recover and enjoy learning to live without the dragon.  You give me hope!

[candyce1953]

Thank you all soooooooooooo much for the good wishes

I hope everyone is cured soon !!!

Xoxo ch
Ps
Thank you Kim, I hope my EOS come down soon too!

[oorah5]

Congratulations am so very happy for u