There will always be back and forth about this issue until some better treatments arrive for everybody, and I hope that's sooner than later, now that they are at least in mid-trials and have stirred up a lot of enthusiasm, I hope sooner...
In an earlier post I made to Jim regarding Alinia, it might of gotten buried, I spoke about a guy on another board named Dennis. His own doctor told him maybe to wait for new drugs, (this was a few years ago) because he was in perfect health, very physical and active, good labs and had biopsied out as a 0. Fast forward to a few years off treatment, and the guy unfortunately didn't SVR, and he has a variety of post tx problems including a bad case of fibro and chronic fatigue, intense neuropathy, insomnia, etc etc...this isn't the only case I've ever heard like this...I bet Dennis is re-thinking his original decision...
Now I don't point him out to scare anybody, only to make the point that current treatment does have risks, if you read the drug lit on the flaps of the meds you find that out, I'm not making any big revelatory remark here...
And we all have to weigh those risks/rewards IF WE ARE IN THE LOW BIOPSY GRADES, 0 OR 1.....even if I treated tomorrow (and this might happen) I, personally, am glad I waited till now, cause as crude as they are, they know more about treatment now, (rescue drugs, treatment times, etc) then when I was diagnosed in 01, there are trials happening now for potentially new and better drugs, etc, the whole atmosphere is better now, my opinion....could be a lot better, but it's better then it was...
And yeah, I took a risk waiting, others don't want THAT risk, but youre taking a risk too treating (FOR THE LOW GRADES) (for higher grades I completely understand that you have no other options)...all depends on what risk you wanna take and for what reasons, I respect ALL people on these issues cause it's going to be down to us as individuals - what we want to do under these circumstances....
I trusted the fact that I'm a really healthy liver, not organ liver, but I live healthy...there's no way of knowing just what keeps me in a pretty good place regarding this disease (not the best cause I do have some symptoms) I think it's synergistic, the supplements and a few herbs, the exercising, the eating healthy with lots of veggies and fruits...who knows what's more responsible or if they all work together, whatever, the scientists don't know for sure and I certainly don't...
I do disagree with something I've heard on this thread, that labs don't really count...they count if youre a 1 biopsy...if youre a 1 or 0 biopsy and continue to have good labs, you COULD make a pretty good case that youre hepatitis C isn't completely taking over...of course, this isn't COMPLETELY definitive, but put it this way, having good labs under these circumstances is a whole lot better then having bad labs - under these circumstances...
If you don't know the state of your liver, low alts COULD mean that you have cirrhosis, but that's a different deal and that's by no means definitive either...as we all know, this disease is often all over the place...
To me, everything depends on perspective regarding these issues... if you've done your treatment, and youre SVR and going on with your life and don't have a care regarding this disease, then, perhaps you made the better choice then I did...
If youre not SVR, with a lot of post side effects, maybe you could say I made the better choice, once again, it's all a cr**p shoot whichever way you look at it...
Even if youre argument is that even having done treatment, your liver is healthier because of it, well, my liver isn't that bad off according to my docs, so it's back and forth as usual...I guess my main point is.....do what you feel is the best avenue for you (with a good biopsy grade)..hopefully, you'll be right...
Only wish I had a video or better yet a webcam....of Canny Man's face as he was reading the menu of your last post, oh well...
Just pulling your chain.
Hope this finds you well and all Aloe Vera'd up. Decided to throw caution to the wind and had one row tekamaki and one row yellowtail/scallion row yesterday. Previously, post tx, stayed away from the rew fish and only had California roll, except for Uni -- not sure if that qualifies as raw fish though :)
-- Jim
you just asked the 65,000 dollar question...too, too many variables for anyone to give you the COMPLETE DEFINITIVE ANSWER...my suggestion would be to keep reading, researching, talking to specialized hep c docs and researchers if you can, get the anectodal from this and other boards, all of it, then try to make your own decision tailored to YOUR own particular circumstances, then just throw the dice with the rest of us, whatever you end up choosing...
you just asked the 65,000 dollar question...too, too many variables for anyone to give you the COMPLETE DEFINITIVE ANSWER...my suggestion would be to keep reading, researching, talking to specialized hep c docs and researchers if you can, get the anectodal from this and other boards, all of it, then try to make your own decision tailored to YOUR own particular circumstances, then just throw the dice with the rest of us, whatever you end up choosing...
just to think about something else for a change, yall remember the niece with the wierd parasites??? Now they think its Morgellons.. http://www.morgellons.org/ CDC does not recognize it, so insurance won't pay for tx.... man, I feel so sorry for her..