Incivek and Anal Dragon Fire

[catmagic0406]

I spent too much time yesterday (considering I am six weeks out from treatment) reading here about the horrors of the anal dragon fire and the internal pain.  That is gonna make things really rough, isn't it?  I read a lot of suggestions, and of course I know everyone is different.  Could some of you write out with numbers (1,2,3 etc  - I need structure - lol) what you would recommend to ease this?  I know about the Huggies baby wipes (I use them already - would never be without them - they are so useful for so many things).  When I read about the "shards of glass" stuff I couldn't imagine how I could deal with that kind of pain.  WHY do we have to get SO sick in order to maybe get well?  COULD tx make you worse in other ways?  (I'm adding questions to the original one so I'll stop)  

So it would be like:

1.  Get Huggies Baby Wipes with Aloe
2.  Clean completely after each BM (get in shower, stiz bath whatever) asap
3.  Dry completely - TOTALLY with ????????
4.  Eat ............... to firm up stools
5.  Take............... to firm up stools
6.  etc etc etc

I read that fat AND oil can be helpful.  Seems to me though that oil would make things slippery - and meaning less firm, more diarrhea.  ????  I have to choke down that 20g of fat 3 times a day anyway.  The oil - not so sure that would be beneficial???
Thanks.  I know I'm ahead of the game here, and I guess I will have a nurse who will assist me with all this, but I trust all of you more.

[catmagic0406]

My doc. is not gonna be clear, trust me.  So for sure I will be posting labs, etc. on here.  I opted to stick with him for now since Dr. Gish is a ways from me (120 miles or so).  If I have any inkling that my doc. is going the wrong direction with MY life, Vegas here I come - where Dr. Gish is two days a month.  

Before all this starts, I am going to see my ex hep doctor who had to stop seeing the HepC folks because there are SO MANY of us - and he has a gastro practice - but he was so good and so on top of HepC stuff.  He was the only one out of four of these guys who was always watching my Ferritin level and had me doing regular phlebotomies.  For the first few years after diagnosis my Ferritin was constantly climbing.  Then the phleb. would take it back to normal.  Now, doesn't seem to be such an issue.  

Some of these docs seem to think we can't read our own labs.  Are they serious?  I mean, we are all experts on what those numbers mean.  Anyway, I am going to ask the ex his opinion on everything I know so far.  I don't see my "now" doc. until 6/26; biopsy is next Tuesday, and of course the doc is out of town for a month.  But when he comes back I will be hounding that office for at least a verbal on the stage and grade of this virus from hell so I can discuss it with "Dr. Magic".  He is still my main gastro even though his office staff tried to "kick me out" because I had to see another doc. for Hep C.  Like, HUH?  Made zero sense.  I saw him when my hub. had his last colonoscopy and told him about that - oooo, he was not happy.  So his staff hates me now (too bad).  I told them to ask HIM if they didn't believe that he said he would see me for gastro issues.

To think, I set up that appt. with him to schedule a colonoscopy.  Not gonna happen for a while.  And now I'm back to rectal rockets.  I'll stop.

[catmagic0406]

All I can say is that I don't know how I found this website, but I already know how much it will mean to me come tx time.  Actually, it already is helping.  I've got a Word file set up where I copy and paste stuff that might help - like Miss Pooh's 97 ways to tame the Anal Fire Dragon (I like that - exchanging the two words - you can see how he looks - MEAN).   ha ha - playing for one night only at theaters in the dark alleys of your town.  Pardon the PUN.

[BoceprevirGal]

Oh great, so now it's an X-rated double feature:  Rectal Rockets and Anal Dragon Fire, playing for one night only!!!  XXX..hot, n' nasty....ahhhh
    I am the most anal retentive person I have ever met, so I was so secretly relieved, when my Doctor made me into the Super-Hero that I am now...BoceprevirGal!
   Just remember, the Incivek is only for 12 weeks, and then this sx will resolve itself.
  I just read something interesting, concerning the Incivek rash, though...cant remember where though. It said that the Incivek people are now recommending that patients begin applying Eucerin and cortisone cream all over there bodies, daily, starting a couple weeks prior to Tx, and that this may help prevent the infamous Incivek rash.
   The anal issues, the rash, and the hemolytic anemia....these are the main three side effects to watch out for.  The HGB labs will tell you if you are getting the anemia...so keep a very watchful eye, and post your labs here, if your Doctor hasn't been clear enough on here...there are many experts on here~

[catmagic0406]

Okay - whew - seriously (if I can be after all this), if this was the only way to tame the dragon I would do it.  I have to keep my sense of humor to get through this thing coming up (tx).  I am visualizing actually using one of these rockets, and it ain't pretty.  With all we have to go through, this has to be the cat's meow, the ultimate humiliation - lol

[catmagic0406]

OMG - know what?  I think I might take a pass on these things.  They SCARE me.  I will use these only if the shards of glass become completely unbearable, and even then with GREAT trepidation.  I would probably go to a hospital to have it done.  As if.  Wow.

http://www.rectal-rocket.com/

(and that blog entry was toooooooo funny ~ not gonna post that particular link - hehe - a bit x-rated but HYSTERICAL)

[catmagic0406]

Thank you so much for these visuals. Ha.  My, even in different colors it would seem.  Naw, someone got creative and painted that bunch.  A nice little group, kind of like pawns on a chess board.  So... these are inserted and ... melt I HOPE.  Otherwise - that rocket propulsion fuel is gonna make the fire go higher, ya know?