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144210 tn?1273088782

HR, this is Apollo 13

In case you are out there sir.....

From my Journal....
3/19/09  Start the taper tonight. Will do 1/2 a shot of peg and lower riba to 1000. My bloodwork this week shows wbc tanking, but that was expected as I took 2 doses of peg in 1 week. (last week).  One last little push before the taper. Tired this week and mild flu symptoms. ALT at 23 and AST at 31 which is the lowest it has ever been. As the peg is now reduced, I will up the lactoferrin, whey protein, shark liver oil, olive leaf., siliphos. 3 wks on taper and then hit the rivers with the kayak!
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3/20/09 Lightheaded and tired. Headache and aches. Havn't experienced this at weeks end before. My immune system is working on something. 1/2 dose tonight.
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3/27/09 Was in rough shape the last week. Took 1/4 dose last night and feel as if I took a full one. So worn out, but nearly there. Lactoferrin increased from 200 mg to 400 mgs daily.
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3-28-09  How weird. Took a 1/4 dose on 3-26 and have had the worst run of sx since I DD at start of treatment. I have been in bed for the last 24hrs. FLUlike, aches, URQ pain, headaches, and nightmarish cramping! Thought those who dose reduced felt quite good. I am concerned here,  this doesn't make much sense to me.
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Question: Is this cause for concern?  Is it possible that some epitopes have survived and may be staging a come back? And if so, what would you recommend?   Thanks.



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Cronkite: " The reentry window, that 3 or 4 minute block of time that the capsules communications are inoperable, has come...... and gone. All anyone can do now is hope....and pray."
8 Responses
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Avatar universal
Pulling and praying for ya man! jerry
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92903 tn?1309904711
Is it possible that some epitopes have survived and may be staging a come back?

Brace yourself for a good helping of second guessing and phantom viral blossoming symptoms. Perfectly natural - but I don't think it's at all likely that anything you feel now or will feel will have any relationship to a potential recurrence of the virus. Just my 2 cents, FWIW....we stage 4's have a lot of skin in the game and EOT is a difficult time.

Take care.    
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144210 tn?1273088782
Actually, there was another full dose in there before going to the 1/2 a week later. Yah, I figured the last push would be a bit tougher, but it did catch me by surprise. Well, what is done is done. I'll take an eighth in a week and then call it. Guess I will have to push the envelope on the river instead of with the peg. :>)   Thanks.
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Avatar universal
Your re-entry heat shields may be degrading over time so consider faster transition to earth's atmosphere. In other words maybe time for the complete handover. But whatever you do, congratulations on your remarkable journey and all the best on planet SVR.

- Jim
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Avatar universal
Kudos on finishing up the treatment and your TX plan, and did not mean to downgrade how you have completed your treatment and if it gets you to where you need to be and that is UND at post PCR’s… Congratulation!

jasper  
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Avatar universal
You took two full doses in the week before you started the taper and a half dose the following week and then a quarter dose this week, is this right? Man, no wonder you feel like flu-phoo. What were you thinking! Did you not calculate the cumulative rolling effects of the tsunami wave? 96h to peak performance backed up by a couple of days then another 96h wave somewhere in the 75% range of the last wave and then the drop. You might want to cut the last quarter to an eight and wait 7 days for the final eight. Not that the final push is a bad thing but I did back off of my aspirations because of the cumulative effects that would hit going any higher than 1 ¼ 1 ¼ seven days apart then the reduction in a step down taper.

Gauf, I did feel the 180+1/4 I think, but I also upped the riba back to 1200mg and did not feel as bad as you have described but then again I was also on procrit during this time. Hope you feel better and would be interested in hearing what hr has to say also.

jasper

Helpful - 0
577132 tn?1314266526
Could it be your own immune system coming back on line?  I'm no HR but it would seem logical.  When I finished my last tx (unsuccessful) I just stopped all meds on the appointed day, no taper, and I felt better almost immediately.  Obviously my immune system never stepped up to the plate.

The other thing I noticed when I started my riba dose reduction recently I actually fet more tired for a period of time.

Anyway, I'm no scientist, just musing and looking forward to hearing from HR and how you progress as I am also considering tapering...

All the best,

Epi :)
Helpful - 0
144210 tn?1273088782
p.s. When would you suggest (post tox), to resume the antiinflammatories. i.e. siliphos, curcumin, green tea, resveratrol.
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