Friday Fight Song 06-25-04

[Eyedeas]

King of the Road
Roger Williams


Got HCV and I

[Eyedeas]

Here's the news and a link

The Kansas City Star has an artical that says that Chiron (the company that discovered HCV and held patents that were too costly for researchers to bother with is giving more people the right to use the virus for research. I really think the articals the Star ran a while back caused them a lot of bad PR and are resposible for this.

What this means is that a lot more researchers will be able to work on HCV and this almost HAS to speed up our chances for better meds

http://www.kansascity.com/mld/kansascity/news/local/9005833.htm

Kim

[Amerabrit]

Great news, Kim thanks for posting.  Hope you're having a good day.

[couchpotato]

Another great one, as always. I don't know how you do it........., but it is greatly appreciated.  Couch

[mikesimon]

Sorry to break in but I promised I'd report my last day of tx. I quit ribavirin today and Sunday June 20th was my last shot of Pegasys. So that's it. I've been clear for well over 1 year and been on this last round of tx(my third) since January 20,2003 at full dose Pegasys and 1000 mg. ribavirin. Now the wait. Be well all. Mike

[gonagetbetr]

Great song once again kim and I loved the article

Scott,
Congratulations, My thoughts are with you for svr you are truly a tx warrior. I am so happy for you. Be sure to do your happy dance.
Be Well

[mikesimon]

Thank you so much for your sweet words. I doubt you'd see much celebration in my eyes yet. I'm relieved to finally quit but I am not too optimistic about my chance of SVR. Time will tell. Thanks again. Mike

[gonagetbetr]

oops been wondering about scottand put in his name sorry Mike
I meant you

[couchpotato]

Oh, that is the greatest news I have ever heard!!!!!!!! You and your family must be rejoicing like crazy! What a long painful road you all have gone down, and now, after all this time you are finished treatment and CLEAR!!! I am SO happy for you, and hope you can all begin to put it all behind you and move on with your incredible life. What a feeling you must be having!

Some time in the future, (please don't think about this now), but could you write in and remind me of your time line, as to when you were dx, and then had your transplant. Sure also wondering if your wife has any words of wisdom as to how she coped with it all. I'm sure anything she could tell me would help tremendously.

Again, congratulations Mike, YOU HAVE MADE IT! God bless you, and your family.   Couch

[kennedge]

oh man are you in for a wonderful feeling....coming off tx after so long...you will just feel like you are on cloud nine...the first two months after my 48 wk tx i felt like someone was giving me amphetmaine 24/7...just flying...mike you are a trooper..and i'm wishing you success from your long journey my friend..

ken

[mikesimon]

I don't mind thinking about this now.

January 7, 1995: diagnosed due to a huge esophageal bleed (lost 4 units of blood that time - had another big one a few months later.

June 17, 2000: tanspalnted

July 20, 2000: started 3 x per week interferon + ribavirin (reduced doses of both). Did that just to limit enzyme elevation. and stopped about 9 months later. Didn't clear.

December 2001: started reduced dose pegintron + 800 mg. ribavirin. Cleard in July 2002 and quit Novemeber 2002. Relapsed in two weeks.

January 20, 2003: started full dose Pegasys + 1000 mg. ribavirin. Cleared April 2003 and continued till now.

Maybe I can get Karen to write you about her side of this trip. I know it hasn't been easy for her in any sense of the word. She's beautiful and healthy and young and she got hooked up with me. Go figure.

Thanks for your kind words. Mike

[Amerabrit]

Mike, I am so very, very happy for you - I can barely see my keyboard through my tears of PURE JOY!*!  You must be feeling so gooood....:)

[couchpotato]

Wow, 9 years!!!! What an incredible amount of energy and courage you all had to muster up to get through that nightmare! Words just can't express my admiration towards you, for fighting so hard not only for yourself but for your family. I think Karen is very lucky to love a man with such determination, bravery and honor as you, I know I feel lucky just to be able to know you, this way. Peace be with you always. Couch

[Tony-z]

Here is a link to the song.


         Thanks Kim!!!!!!!!!!


          This ones for tonight, my first shot..


                   TonyZ

http://www.geocities.com/tzeazas/Roger-Miller-King-of-the-Road.mp3

[fsplink]

I'm just thrilled that you're done. You really deserve a break on this. It's been a long road and I'll be praying for you.

[snook_man]

Good luck!! Looks as though you might have beat it this round. I'll keep a cold one iced for you, yes, only one!! Best wishes.

[Ambush]

Mike, Talk about the long and winding road.........I hope you feel great real soon.  But most of all, I hope this is the round that you win.  You've fought a courageous battle and all while keeping our spirits up and helping us through.  You are very appreciated and I wish you all the best!

Kim, OK...this one I sang right out loud!  Thanks for the smile.

ambush :)

[TnHepGuy_]

Mike:

It is truly wonderful news that you've reached the point where it's time for you to end your treatment. The switch to full-dose Pegasys, the higher dose of riba and the longer length of tx are all working greatly in your favor. I so look forward to reading here one day very soon that you've finally gotten your SVR and kicked this miserable monster's ass - once-and-for-all.

Thank you for the time, effort and inspiration you offer to us all.


May God's blessing and mercy continue to be upon you.


TnHepGuy

[cuteus]

does it feel strange not having to think about the pink things from now on? how odd must the feeling be, to end the influx of meds and be free of them once and for all, and to "miss" the rituals you have become acustomed to, and the hope and fear the waiting entails...THIS time has to be it...I'm with tnguy...
is your dr testing you before the 12 wk mark?
be well always

[layla]

Glad to hear you are finished tx and wish you the best. I imagine it's difficult to finish tx also wondering if your SVR after all you've been through. L'll be keeping you in my thought and wishing you the best test results. LL

[honey1616]

Great!!  Must be nice now to file those meds away into never never land!  Wishing you the best for a great non Hep life!!

[couchpotato]

We JUST got our call so hubby will be leaving soon. Afternoon already so I will begin my journey before daybreak tomorrow.

[cuteus]

May God and all the spare guardian angels travel with you  both and guard you to health.

[TnHepGuy_]

May God's blessings and mercy be upon you, your husband, your family and your caregivers.


TnHepGuy

[honey1616]

Couch,,,Glad to hear it,,,Let us know how all goes after you guys are back home!

Tnhep,,,Yes,,,You were greatly missed but I guess I missed something here,,,Everyone keeps saying Hoping you are feeling better??  Can't find your posting,,,Were you sick? Glad to see ya back with us and hope all is well..

Revenire,,,Where are you?  Did you fly the coop? haha