Jim

[Myown]

Jim, I just received an email - well 3 actually that my meds are approved. Says from Dec 07 -Dec08.
They said in the email that the specialty pharmacy will be calling to set up schedule for delivery, but I am not done seeing doctors yet. Still have to see ENT etc. So should I tell them to hold off on delivery or do I have them deliver it. I don't want to have boxes on top of boxes cause I figured not starting for a couple of months or so.

What do you think?

[Myown]

Thanks guys. yeah i know...i always did have an extra 2 or 3 boxes in the fridge, but it really might be months until i start and if it i give them the okay to ship now,,,it might be 6 months sitting in my fridge and i don't want that much in it at one time cause if I was away and there was a power failure and then came back home and had to worry if the refrigerator was off for too long. Yup, call me paranoid, but I can tell ya some crazy stuff that against all odds has happened to me in my life - believe me,,,so I wouldn't want to take that chance.

So anyhow as far as Vertex and shorter - as I was told it would be a while until studies for g 2 relapsers were done blah blah

And whose to know whether 48 weeks of SOC is MORE harmful to the body than 24 or 12 weeks of the cocktail - its an added poison and yes thank God for it - but no one really knows if added meds shorter time frame or less meds longer time frame - which is easiest on the body and ~mind.~

So I have to run but I will be back later. Jim I didn't use procrit last time, but did get down to 9.6 so probably will need it this time and I'll need all you guys to help me with my dosage as I see many are confused when they first start using it.

Michael,,,,,dig that pic of your bike....cooooool. I like it.

[jmjm530]

Xenigma: I know my name isn't Jim
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You could never tell that from looking at our avatar photos.

[Tallahassee]

I would receive all the meds I could get my hands on.  ... and may be, you may choose to double dose for a couple of weeks in the future?..  if not, it is still nice to have fridge fool of meds :-)

All the best!

[mikesimon]

I'll tell you what to do. Take delivery now because, with your luck, something will get screwed up and it would be better if they screwed it up before you're ready to treat. That way you can probably straighten it all out by the time you're ready to start. So many things  happen to you that you shouldn't take any unnecessary chances. Mike

[Xenigma]

I know my name isn't Jim but I really think having extra meds cuts down on stress when a bump in the road arises once you start.

Get the meds now and start when you are ready.
(They won't go bad-expire)

I always have 2 months in my fridge just incase.
(A change of pharmacy or a new approval or whatever may put you behind with no meds in the fridge)

I did have one week extra of Procrit until my insurance changed pharmacies and now I have no extra.  I'm not comfortable with that.
(and I was late with my last shot of Procrit)

2 boxes of meds in the fridge isn't too much.

[jmjm530]

I didn't feel comfortable during treatment unless I had 4-6 weeks of drugs (peg, riba, Procrit) in my fridge at all times.

You probably don't need two months surplus, but if you've definitely made up your mind to treat, then having one month's surplus isn't such a bad idea, as you can always stop the shipments a month early if you want.

Now that the speciality pharmacy has been given the green light by your insurance, putting them off another month shouldn't be a problem -- just make sure to check with the specialty pharmacy that the pre-cert is good for another month. You don't want to have to go through this twice.

For example, I had to jump through hoops to get an MRI pre-certified. Then I  sat on it for a couple of months before calling the MRI lab to set up the appointment.  When I finally called the lab,  they told me the pre-cert expired. My doc's office wasn't too thrilled  when I told them they would have to get it precertified again,

What about Procrit? Did you need it last time? If so, you should start that process moving as well cause if you needed it once, you'll probably need it again -- and best to have it in the fridge as opposed to dealing with a pre-cert on anemia.

Lastly, are you aware that Vertex is recruiting genotype 2's for Telaprevir in Europe right now? Prelimary trial results should be available by end of this year. Maybe wait a year to see how it all plays out? Depending on the results, it may mean the difference between treating 48 weeks now or 12 weeks then. Something to think about.

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