Joint

[Cindy10]

Just wanted to aks if any one has joint & bone pain. Mine just started this week and boy I feel it. I have it all over but is really bad in my legs, one in peticular. I called the doc, just wanted to know what I can take besides a couple tylenol (figured inflamation). He said to contact primary care doc as he said this would not be from tx. Said it would be very rare if it was.  Now I am confused. I am on week 4 now shot #5 this Friday, sound normal? Even my spine aches!!

[Kalio1]

Not from tx? Hmmm.. well, I have bone and joint aches, especially places I had previous injuries and the doc told me it WAS from tx. I had major leg pain issues in the beginning that have eased up some. Now it is mostly my hips, back and hands. I use Vicoprophen and it works pretty good. It at least keeps the pain at a managable level. Bone pain and joint aches are listed as side effects, not sure why you doc told you that they aren't related. Maybe it's because he just wants your Primary to issue pain meds?

[FlGuy]

For me, the joint and back aches and pains are pretty much always there, but moreso the three days after shot night.  Old knee and joint injuries see to send reminders. For all ache/pains, including frequent-constant headaches, I switch between aspirin and tylenol.  But trying to keep both at a minimum.  I think I stretch out a little more, and more frequently, on tx just to keep from getting stuck in one position.

[FlGuy]

Meant to ask, are you getting a 4-week pcr?  If so, that's this week.

[l-horn]

Sure do and I maxxed out my tylenol dosage for a few days straight. If that's not from the interferon it sure is a strange coincidence. I get shooting pains all over, like lightening bolts shooting out of me. I literally yelp out loud sometimes.

[Cindy10]

Thanks guys, just wanted make sure there not something else wrong with me, I figured that. And yes my hips ache. Boy this stuff is really rough on us huh?  I did not expect my bones to hurt so much. I do get up and move around, I too think not moving makes it worse. I used to be out and about, working in the garden doing such physical labor, now I move like an old lady. This too shall pass ;-) Thank you very much!

[Cindy10]

Yes this week is PCR (Friday), I am praying this is working! Will let you know as soon as I do.  And I Horn, I get the shooting pain some time as well. At least we are not alone!

[Kalio1]

Can't wait to see that UND PCR, Cindy!

I call this "old lady training" because I bet this is what it feels like to be 90!

For me sometimes moving around will make it better, sometimes it makes it worse depends on the day. Hang in there!

[Cindy10]

Thanks Kal, I hope I see that as well!

[amicraxy]

I saw my Doctor yesterday and asked a few questions. He gave nice answers but I can see that unless you go through this tx you seem not to realy identify.Maybe if they can't find a specific med. explanation, it dosn't exsist.  I to had many pains and would yell out when sharp.Leg pains, unbelivable.  I work at painting houses and after 6 or 8 hours would come home and exersice. So I can identify with you being active, then having not the ability.
I did make a priority though to get on a tread mill for as long as I could every day.

[merlino]

Funny you said that. As much as I like my Dr. I thought the same thing yesterday. He kept saying "your doing great" and all the time I kept thinking you have no idea how I really feel. No one knows until they do it.

[Cindy10]

Thats for sure, at least we have each other and WE know what it is like. We will get through this.

[outofgas]

it is from tx every joint in my body hurts even my spine, you name it,it hurts

[amommy]

I was VERY achey before and during tx.  I am happy to say that 6 months post most of my aches and pains seem to have subsided, and I think to even lesser levels than pre tx.  Hang in there.  It is NOT easy but you can do it.  Take tylenol as needed, it really does help!

[Cindy10]

Thanks folks!

[Alady1620]

I had horrible joint and bone pain while treating.  Occasionally when it was real bad, I would take a Darvocet but alternating tylenol and advil was usually enough to ease the pain.

[sunshine007]

Hi Cindy, we are in the same week of treatment.  I do shot #5 tomorrow.  I also have terrible aches and pains but I take Advil daily and couldn't survive without it.  My Dr. said it's fine.  Again, I know we shouldn't tax our livers more than necessary, but I would have quit treatment if I had to manage the daily pain without it.  I wish you all the best.  What genotype and grade and stage are you?

[Cindy10]

I am 3A stage 1. The doc told me not to take Advil only two tylenol twice a day. I was thinking the advil would help.
Now I save the tylenol for at night so I can sleep. Strange how the doctors all think differently, I wish we really knew!
I was relieved today to know I was not alone. Before I posted
the doc had me thinking something else was wrong with me (though I really knew it had to be that).