Just diagnosed- terrified and alone.

[DayLyn]

I was just recently diagnosed - March 2006.  1a.  In BC, Canada.

I've finally gotten the courage to post, but have been reading posts here for weeks.

I feel alone in this - the stigma is great, and many people are ignorant or uneducated, or both.

I'm being screened for treatment next Tues.

My question was - Pegasys or Peginteron?  Any opinions or suggestions would be welcome.

[ex-city-slicker]

Hi DayLyn,

I was thinking about you.  How did you make out at the doctors?  & how was the SPA?  My anxiety level is alittle high, I think it will be until I see the Doctor on 9/28.  

Donna

[DayLyn]

Good morning Donna.

The dr. went well.  I am very pleased with my new specialist.  It took me a few tries to find one that I felt comfortable with.

We discussed all the treatment options (there aren't many), and decided that Pegasys is probably the one for me.  I will be seeing him again, prior to starting treatment, so I have some time to think of any more questions.  

My start date is still Sept 22nd.  I will keep you posted on how that goes, and what is happening.

I remember waiting for that first appt. - what a horrible few weeks that was.  I didn't get much info. that first time, the Dr. spent about 5 min with me, told me to go get some blood tests, and come back in 6 weeks.  Boy, was I devastated!

I hope this is not the case for you.  Where are you at?  Have you had any blood work done yet?  Do you have a specialist?  I hope you're hanging in there.  Do you have support at home? A Where do you live?

Take Care. I'll keep you in my prayers.
Day

[DayLyn]

I know what you mean about needing the day off.  I spent one whole day at the spa - just cause.

I was exactly where you are about three months ago.  Gosh, can I ever feel your pain.

I found out from routine bloodwork prior to heart surgery.  I was worried about everything under the sun, but never, in a million years did I think I would have hep c.

I go see the specialist tomorrow, and yes, I have tons of questions - all written down - three pages full.  I am to start tx Sept 22nd.  I will keep you posted for sure.  I would like nothing more than to have someone to go through this with.  People in our lives who don't have hep c just will not ever understand.  Please feel free to e-mail me @ ***@****.

I will add you to my prayers tonight Donna.  Funny - I was never religous....

[ex-city-slicker]

Dear DayLyn,

Pleas call me Donna, as that is my name.  I was very happy to see your response, it made me fell better, almost made me cry. I see a gastro doc. on 9/28. I have been very emotional all last week.  I was just DX on Wed., but I got the news in the mail,last Sat.  I applied for life insurance & was rejected. When I read the letter, it felt like I was given a death sentence. I have a positive outlook on life & have overcome many things.  This is just 1 more to add to the list.  I went into some of the chats rooms on other sights, and felt worse, afterwards. I want to connect with someone through this who will understand, and stay tough.  I think that is you! It great to meet you, please stay in touch.  Your doc. appointment is before mine, I'll be thinking if you. Are you going to write down questions for him/her. I have been checking information online like crazy. Today  I' m going to give myself a break and go out to buy a new pair of shoes!

Your new friend,Donna

[DayLyn]

It's nice to not feel all alone...  

The news is hard when you first get it, I guess it takes a little while to get used to it.  I still haven't.  I am going in on Tuesday to discuss which treatment the specialist thinks is best.  Will be staring on Sept. 22nd.  I am halfways excited to get started on killing this thing and halfways completly terrified.

Please keep me updated, and let me know what is happening with you - we can go through this journey together.

I wish good luck, comfort and strength to you!

Day

[ex-city-slicker]

Hi, I just got DX last week.  I also am terrified and did feel alone until I found others on line. .  I cryed off & on all last week. Have you dicussed TX w/your docotr yet.  What has helped me over the last week , is understanding HEP c is not a death sentence, but it is going to be a battle.  I'll be glad to be part of your support system as I start my journey to battle this V.

DS