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353701 tn?1249580864

confused

This forum has been very helpful to me.  Here is my first question.  I am in my 10th week of treatment and my enzimes have been consistently normal since I started treatment but my
hemocrit is low.  The insurance company dietician recommended I step up my iron intake along with vitamin c.  Seemed like a good idea at the time two weeks ago but now my liver feels swollen and I am brusing easy again.  My vl was 500k when I started treatment.  Could it be that the increased iron is a bad idea?  Will this hurt my chances of continuing treatment after week 12?
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Avatar universal
don't worry about "accelerating" the virus. Just don't take in anymore iron laden foods. You are on treatment, that is battling the virus. Often people have pain in the liver area on treatment, I know I did. You will have all kinds of weird pains.
Hang in there and before you take anyone's advice be sure and run it by your doctor first. I have had great advice from some nurses and dieticians and also some bad or wrong advice so take it with a grain of salt and run everything by your doc. that includes anything you read here or other places on the net.
Helpful - 0
Avatar universal
kga
I am knew to this disease. I've probably had it for 3 years now.   what shpuld I do? I just had a biopsy and I ave stage2 . level 11.  I show a mild infiltrate of lymphocytes , plasma cells and eosinophils.  Thereis some periportal fibrosis.  am i at great risk? plrase respond, thank you.
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353701 tn?1249580864
I'm in week 10.  I've accelerated the virus right before the all important 12 week test.  ack.
Helpful - 0
Avatar universal
Get that 4 week PCR asap and post it
Helpful - 0
353701 tn?1249580864
I am geno 1a, stage2 grade2 and no test at week 4.  I only got the bad advice two weeks ago so
thanks to this forum i hopefully nipped it.  I did not take any iron pills.    I don't know if I can control whether they continue or not but thanks for the advice.  Congrats on the svr.
Helpful - 0
85135 tn?1227289772
You may want to ask for an iron panel. I forget the exact name.
P.S. like nygirl said "No iron pills or vitamins with iron".
Helpful - 0
179856 tn?1333547362
Oh man........the words onslaught of red meat just hurt to even read.  You poor thing!

I don't think it will kill you - hopefully the ingestion of red meat didn't really contain all that much iron - you didn't additionally take iron pills or a multi vitamin with iron did you?  Just make sure you stop now - all you can really do is wait until you see what your PRC says.  You should have gotten one if possible at week 4 and week 12 (is a definite).

The reason we don't take iron is that it is essential in the process of replicating the virus and certainly we don't want that at all.  Hopefully you've had enough ribavirin to stop that from happening.  You started with a low VL like mine - sometimes killing off the last few critters can be VERY hard for those of us who start with a low VL (although that is contrary to what the studies say it is true)...if you are still positive at week 12 assuming you are a geno1 you might want to gear your treatment towards 72 weeks.  Without the 4 week VL it is hard to tell what has been going on and if this affected you but during treatment we can only do what we can do. Unfortunately bad advice has happened to us all.

PS Geno1a and 1b, stage 3 positive at week 12 negative at week 24 - treated 72 weeks SVR 10 months.

:)
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353701 tn?1249580864
Seeing the post dated 12-4 made me realize I might be getting bad advice.  Do you think my test in two weeks will be affected by an onslaught of red meat these last two weeks?
Helpful - 0
Avatar universal
Read Phlebotomy below (dated 12-4)  Hemochromatosis is caused by too much iron.
Helpful - 0
Avatar universal
The insurance company dietician gave you the wrong advice. Apparently she knows NOTHING about hepatitis C. We can NEVER take iron. That can lead to another serious health issue. You need Procrit and it take a week or two to work. Your doctor should have told you about that. You must get all your information from your liver specialist not from the insurance company. Iron will not help the anemia that is from the medications.

I finished tx 12 weeks ago and my liver specialist said I still cannot take iron.
Helpful - 0
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