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Lips cracking/blotchy/spotty

Lip cracking/blotchy/spotty
Hello, I researched this topic in archives, found a couple posts related but from long ago. Wondering if anyone else is experiencing this and what you're doing for it?

I'm going on week 40 of Peg/Copeg. For the last 4+ weeks I've had a crack/cut in the corner of my lips/mouth. The worst spot since its constantly stretching. The cut goes from the corner of the lip into the skin.  It keeps trying to heal, but because I cant keep my mouth closed (lol), it keeps reopening. I thought I cut myself shaving but realize now it must be related to tx. Also, I'm noticing other marks, blotchy almost cold sore looking on my lower lips...I've never had cold sores so unless I picked something else up its gotta be the meds. I take extremely excellent care of my mouth. I had cancer 12 years ago so know the importance.

The inside of my mouth is fine. Early on I started using Biotene which is awesome and cured my mouth sores.
For the lips, I'm currently using Super Lysine Cold Sore Ointment (its all natural and has tea tree and zinc oxide).
http://www.quantumhealth.com/
In the last 4 weeks I've tried, Carmex, Polysporin and have actually put steri strips over that side trying to keep it closed so it will heal but still not. Its driving me crazy. Any ideas/suggestions??

Thank you
buzz
16 Responses
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29837 tn?1414534648
Part of the treatment. I had a cut on my upper lip like you described that would not heal until I stopped treatment. It then healed within two weeks...Hang in there...

Magnum
Helpful - 0
Avatar universal
Stevia ROCKS!  My daughter, who works at the Coop in Eureka, California turned me on to it, because I was having a lot stomach flora problems, and I needed to lose about 25 pounds, to stop leg and hip cramps from happening. I lost 20 pounds, and I don't have stomach or colon problems as bad now. I have been using honey for a sweetener for several years, trying to reduce the amount of sugar I use. The only problem is Stevia is really really sweet, and I had to get use to using only a fraction of what I would have used, compared to sugar, about 1/4th of one of the small packages of Sweetleaf..Also our diabetic niece who is expecting her first child in January, is using it now too. We are happy because it does no damage to her or the baby and she can have teas and other foods she use to have to have not sweetened, now. I hope she keeps it up after the baby s born.
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Avatar universal
ok well im not exactly sure of your whole situation but i have a story and im going to post it too...
If you ever have had cracked corners on your mouth or dry, chapped, rashy lips, read this immediately. I used Crest’s Cinnamon Whitening Expressions toothpaste. After I would use it, I noticed that the corners of my mouth would be red and inflamed. I would wake up the next morning and it would be fine… well one day I woke up the next morning and it was still red.
i eat pretty healthy, exercise, take vitamins and herbal suppliments, and drink a lot of water, and I mean a lot! Several months ago, I had been on this sugar-free kick so, like a lot of American’s went for the Splenda because it’s derived from sugar…or so we thought. So I would love going to coffee shops and getting sugar-free chocolate freezes/ frappicinos. I would even use Splenda to sweeten up my coffee and tea. I mean, I could go on and on about the different food/beverages  I would use that had Splenda in them like: light Yoplait yogurt/ smoothies, sugar-free green tea, hot chocolate with Splenda in it! So yeah, as the days went on and in about October/ November, the corner’s of my mouth started getting really cracked and red. It hurt to open them. I tried putting lotion on the corners and some cold sore ointment but it only temporarily relieved the pain. So finally, in around Feb/March of this year, I went to the doctor. He told me that it was Angular Stomatitus and that I should always keep something on my lips and the corner’s of my mouth. He also told me that there was yeast in my mouth and he gave me a prescription for some kind of yeast infection medicine. I went and got my prescription and they told me to just get the real yeast infection medicine… well I felt kind of strange putting it on my lips but I did. So the next day, I woke up and saw that my lips had broken out into a kind of red rash. (actually it was the yeast trying to escape my mouth…aka causing the rash.) So later I went to another doctor and he wasn’t really sure about it so he prescribed me an antibiotic called Sumycin. With insurance it was still $28.I never took any of it because of the crazy side effects listed. (By the way it’s been in my fridge for several months and I just took it out to look at what the name was. (It has a bunch of white fluffy stuff all pilled in the bottom of the cough syrup looking container. … can you say EEK!) Thank GOD I didn’t have to take it. So probably the next month I went to my dentist and he noticed that I was in pain because of the cracked corners and he prescribed Nystatin and Trimcinolone Acetonide Ointment. USP. I really didn’t use it too much. so by that time, it was very uncomfotable. When i took a shower, i had to wash y face before i would go in b/c the water going against my mouth would cause it to dry and get red. For a while, it even hurt to smile.So on Wednesday, June 14, 06, I was going to go to Herbs and Vitamins. I went in and asked if they had a certain herb that would help my mouth. The lady told me that the homeopathics doctor was in there and for free he could look at my mouth and tell me what I needed to do. They book by appointments and GOD worked it all out so that I could just walk in without an appointment, thank GOD! I told Mr and Mrs. Tillman about the symptoms and we all agreed that Splenda could cause that! So they used homeopathics and mixed the detoxifier remedy with one that matched the symptoms. Ive been on that for a little over 2 weeks and my mouth feels SO much better, thank GOD! They have an awesome website and here is the addy... www.godsnaturalmedicine.com . They also told me to get on probiotics to put the right amount of good bacteria back in me. They recommended the Flora Smart www.renewlife.com .
You see, there is an ingredient in splenda called Sucralose. I don’t know much about it right now but I know that it’s really not good for you. It was in the Crest toothpaste and in a lot of other foods, drinks, candy, etc to replace sugar… please pay attention. Im really not joking! Ive learned a lot through this and I know I don’t EVER want anything with Sucralose in it again. Not all people react to it the way I did but it doesn’t matter. Read the labels of your food and other products you use more. It turns out that the rash that was on my lips was because the yeast from the sucralose had to go somewhere and that’s where it escaped. I also suggest using  Natural 100% Noni Juice. i use the brand called Tree of Life and their website is http://www.treeoflife.com/Products.aspx?CategoryId=108 . That helps kill fungus and yeast.
I know there are alternate NATURAL sweeteners that taste good and are great for you to use. I would totally recommend Stevia www.sweetleaf.com . I’m reading from the Stevia Plus container and it says… Stevia Plus may: Improve Regularity, cleanse the colon, assist and strengthen the immune system, prevent overgrowth of Candida albicans (yeast), and help control the formation of free radicals. Now where would you see a bottle of ANY artificial sweeter say that? I know that the Tillmans told me about Xylitol and how good it is for you. Its also in Trident gum. So try those, your body will thank you! And now I use Tom’s natural care anticavity baking soda fluoride toothpaste and Biotene mouthwash. Try them out if you want to. Your body is a good investment.
Right now the corners of my mouth are doing a lot better. My lips are getting better and better and I’m so thankful to GOD that HE showed me that Splenda and Sucralose is trsh! if you have any questions or comments please e-mail me at ***@****. have a great, blessed day!
  -Galilee
Helpful - 0
Avatar universal
Hey All,
Just an update since I first posted this thread on 6/12.

Since I started using the Super Lysine Cold Sore Ointment on 6/10, there's been a pretty substantial change in my lips. The newer spots and beginning cracks have almost disappeared. The original crack is still there but does look better too. I've been using this stuff 3-4x a day and during the night since I can't sleep anyway.  
Helpful - 0
92903 tn?1309904711
I need all the he he's I can get...

Sounds like you're returning to the days of your youth.....ya' walkin' OK?
Helpful - 0
86075 tn?1238115091
hey, there's slights and then there are slights...a goofy slight from you can usually make me smile...with all this work I've been getting, I need all the he he's I can get...
Helpful - 0
92903 tn?1309904711
Glad to see you figured out no slights were intended. If you look again at the thread title and the nickname, you'll see there were a few directions I could have gone. But in a rare moment of self control, better judgement prevailed..... this time....
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Avatar universal
My doctor said it is not a virus.  I thought I was getting fever blisters or cold sores but he said no.  It is just a mineral deficiency according to him.
Helpful - 0
Avatar universal
I've had the split in the corner of my mouth, on and off for my entire treatment.  I use a mixture of things. I might use neosporin twice a day and in between use Blistex medicated lip ointment.  Once I get the crack started, I start using straws to drink so that the edge of the cup doesn't irritate it further.  Also, you have to be careful when flossing on that side of your mouth, because I've noticed that if the floss scraps or comes into contact with the split area, it wants to bleed more. That's all the advice I have.

Susan
Helpful - 0
86075 tn?1238115091
you siwwy wabbit, boy, am I having senior moments or what??? I read that and I thought for a split second, what the????....does he mean Aqua-hore? then finally, ooooh....Aqua-fore!!! duuuuuh....ha ha ha! Okay Quicks-draw....hope everything's okay with you and youre enjoying your nice weather! Be well Lil bro!
Helpful - 0
Avatar universal
All, thank you very much for your feedback thus far.

My doc./Nurse Practitioner are useless. They dont care about this illness or its affects - That's an entire separate issue--Grrrrrrr....don't get me started. I'm changing Docs but waiting until tx ends.

I showed my NP this crack/cut a few weeks back and she really had no comment. That's okay. I survived cancer 12yrs ago, I'm no stranger to illness and smart enough to get thru this.

I'm definitely upping the zinc.
As of 5/30/06 my WBC is 3.8 - (not bad) but my Neutrophils, Absolute are only 961 (not great)...maybe this is why I'm getting this now...I'm not on Neupogen now but ironically I was 12yrs ago when I had cancer and it was experimental. GOOD STUFF!
Maybe I'll call my NP tomorrow and find out if I can take it...

So, is this a virus of some sort then....??
Helpful - 0
Avatar universal
I had the same problem: a cut on my lip which hurt if I smiled or talked. It would always heal when I took my Neupogen shot, and it would be ok for several days until I'd take my Pegasys shot. Then the lip would crack again, always in the same spot. I think it happened when my white blood count was low, and would go away when I raised my WBC with Neupogen. That was my experience. Do you have a low white blood count?

Bob
Helpful - 0
Avatar universal
I attended a group meeting at the VA today for present and future Interferon users.  I fall into the latter.  One guy said he applied Eucerin to his body daily to keep his skin moist and another said he had to quit swimming to stop the chlorine exposute while a woman said that keeping herself well-hydrated was beneficial in maintaining skin moisture. Don't know if these will be of any benefit but I sure hope they are, Peace
Dog_Lover
Helpful - 0
Avatar universal
I have the same problem in the corner of my lips.  My doc said it is a zinc deficiency and recommended a supplement.  He said if that doesn't work, there is a prescription he can give me.  

You should talk to your doc.  I think you're on the right track with the zinc oxide.
Helpful - 0
Avatar universal
I had the same problem while on tx.  It stinks!  Aquaphor worked pretty well for me too.  I also would put a little bit of neosporin on the corner of my mouth, particularly at night.  Mine did not go away until I was done with tx, but I was able to keep it from hurting too much by keeping those things on it! Good luck.
Helpful - 0
92903 tn?1309904711
No Aquaphore's not a reference to forseegood swimming (a sight to behold I'm sure), it's a vasaline like product that's great for mouth sores, diaper rash and other stuff. Not as slippery as some might like (helllooooo Can-do-man), but it's great for your purpose. Try applying as often as you can, especially at bedtime. A tube is a few bucks at your local drug store. Hope it helps.
Helpful - 0
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