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Avatar universal

Liver Pain and Can you smell the meds through pores?

Folks,

I think I'm getting a little wacky but I can swear I smell the meds (medicinal smell) on my breath, skin, urine, etc. I know it sounds nuts. The smell is sickening too! Anybody else have the same crazy stuff happening to them?

Also I have mild (like a bruise pain) but slowly increasing URQ and occasional back pain? Anybody have that?

I'm on week 16 and its kicking my ass; I can't sleep, eat, I'm alsolutely sick of water.

I was undectable less than 600 IU at week 14. I bumped my lab reults at the Janis HCV website...and my blood worrk is low but not to the point of extreme anemia.

Friends

Your thoughts?
A very sick and tired Rican
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Avatar universal

My mom was an alcholic too and I remember all the situations that you've described so much it just brought me totally back big time.

I was never anywhere NEAR my mother in any respect but I like to drink WAY too much (you see when I couldn't have drugs (any kind of downs) I self medicated with the booze.  I guess I'm an addict all around.

I tricked myself for YEARS saying oh I broke my back I need these things to sleep, feel good etc.

Woke up one day and took a look at my brother who does the SAME things exactly and said PITIFUL what a LOSER and that was that.  Found a doctor that week who put me on Suboxone (like methadone but you get a months prescription at a time) and straightened out slowly but surely.

The sad thing and point here is while I wasn't insane like my mother (who has been sober now 25 years or so) my KIDS are going to remember all of the SAME THINGS.

How dare I do that to them after what was done in my childhood.

I am SO glad for you that you've not fallen victim to that same path of destruction.  Enough is enough isn't it!

Debby the other NY'er
(PS I am one hour north of the city exactly - what is considered "upstate") I mean if you can get more SOUTH just about let me know...but yeah we call THAT upstate LOL.
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Avatar universal
I live in NY too, but upstate.

I think the smell was burned in my nostrils because my mother was an alcoholic. She was tricky but I knew all her tricks...I actually caught her once refilling the Vodka bottle with water so my dad didn't know how much she drank that day! In Kansas City where we lived, the drug stores carry booze...they will even deliver...my father would call them all and tell them they better not deliver anything to her anymore and she would just find somebody else that would do it. Years later, the guy from the local liquor store would ask me how my mother was doing...he knew all about it...If my dad gave me money, he said 'don't let your mom have the change, even if she asks you for it' because he knew she would use it to buy booze. Then she checked herself into rehab and in about a week they were going to release her...I called the doc and said that's stupid, don't you know she is playing you so she can get out and drink? And they accused me of not being 'supportive'...well they let her out and she was drunk the next day! I never drank because of all that which of course really helped me keep my liver in tact, thank God! And I have a sixth sense about alcoholics now too...I can spot em a mile away! The drinking ultimately lead to her death because she was too drunk to realize she had cancer...by the time they found it, she was way past any help... and that smell is also burned in my nostrils...
Cin
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Avatar universal
Dr. Peach at Internal Medicine Associates.

I wouldn't recommend him, though. He's a really nice guy and all that, but he seems to spend most of his time out of state. Not very convenient for ppl on tx.

They have other HepC docs there, too, but it takes forever to get in to see someone.
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Avatar universal
boy oh boy talk about weird I never realized that even though I chewed gum and ate mints that as an alcoholic/addict people could REALLY smell me!

I try to say to myself now...smelling like the meds isn't that bad I suppose - at least people don't look at me and go wow what an Intronaholic she must be!  :)

Given one or the other....every time someone smells like booze around me I have to laugh and figure "well they ain't smellin' my pee" (I sure hope hahaha).

Debby
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Avatar universal
I just woke up from a much needed 10 hour sleep. Yesterday I was in a zombie-like state all day. I was hurting and dead tired. Nothing 3 jugs of Gatorade, 2 tylenol and an Ambien couldn't cure.  

When I do have a few "un-brain-fogged" moments and I can concentrate; wheb I'm not smelling ****, curled up in a fetal position in pain, or nauseous ....

One of the things that gets me through the weekends is good stand-up comedy.

Laughter really helps!

Thanks for the advice!
br007
Helpful - 0
Avatar universal
I have a tremendous amount of aches and pains. One thing to be aware of is if the lower back pain is coming from the kidney area. These drugs can have an effect on the kidneys. Peace
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