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Metallic taste, nausea, night sweats, headaches, confusion, balance problems

vah
I'm 42 & for the past year I've been on antibiotics 7x for chronic lung infections-I have no lung disease. I also suffer from chronic nausea, metallic taste, headeaches, dizzy spells, balance problems, extreme pressure in my head, night sweats, joint & muscle pain, alternating heat/cold in extremities, abdominal pain, recurring bouts of diahrea & constipation, and have been unable to tolerate anything with alcohol in it (ie. beverages, food or medicines). I've been on HRT (Estrace 2 mg) for over 15 yrs; have been taking Fioricet for migraines for over 10 years. I've always ate a very healthy diet, and very rarely drank alcohol. I have horses & live in the country (so I always got plenty of exercise) but now find myself unable to ride my horses, barely have enough energy to go to the Barn to feed them. I'm also self-employed & own a real estate title/settlement co., I can barely function at work & it's getting worse. Brain Scan came back normal, blood tests showed elevated white blood cells, low red blood cells & a weak positive for Celiac; ruled out leukemia & lime disease, other than that the Dr's have been unable to diagnose my condition. I've had tons of blood tests, CT Scan, MRI. Scheduled to see a Gastroenterologist & Neurologist. No offense intended by I'm sick of Doctors & tests, but at same time need to get to bottom of this problem. Has anyone out there experienced these symptoms? I'm desparate, I feel like I'm going insane - my once healthy active lifestyle is now non-existent and spent in bed.

Any suggestions would be very much appreciated.  --Val
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Avatar universal
Ahh, I think they just wanna Slow TORTURE Me.. ya know this waiting is not something that is done well even when things are right on scheduale... I sure won't miss the days I can finally put that behind me once & for all... Gack!

If ya call me, you'll have to use my cell (remember I'm not in the south anymore)Humm, that reminds me... I need to call & get that # suspended again... or at least toss out all the frills!

Still keeping my fingers crossed for today!
;)
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Avatar universal
what's going on??? no news yet?  i will have to call u and help you thru this weekend....wow....take care....chelley
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Avatar universal
torture for sure.....waiting is a b#@ch, ain't it?  i'll try your cell see if i get thru.....
later-
chelle
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Avatar universal
I can't stop posting it!! it stuck in a loop in my PC, NEGATIVE, NEGATIVE, NEGATIVE!!
k, tried to stop but, NEGATIVE, it keeps, NEGATIVE popping up NEGATIVE! is not a keyboard problems this time!

I am so HAPPY!!!!!!
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Avatar universal
Hi  I have the same thing going on everyday now for the past 3 years. I was put on Celexa which gave me panic attacks bad so I have been off of the Celexa for 3 months now....the Metallic taste, nausea, night sweats, headaches, confusion, balance problems still happen...sometimes I get a day or 2 out of a week that is okay and then back all the symptoms come again. I take Ativan under my tongue if it gets really bad.  ANY help would be appreciated.
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Avatar universal
Check through your blood tests (i.e. get a copy of each one of them if you don't already have them) and look for B12 and folic acid.  If you haven't been tested for those, then get it done.  You seriously sound like you have a B12 deficiency.  That's what  I have and I had the kind of generalized muscle and joint pains you were talking about, and the feeling of constantly being hung over, dizzy, etc..  My B12 was at 53, and it took my doctor 6 months to even think to test for it.  Most doctors don't actually test for it so I had my mother ask her doctor for a B12 test as well since she was experiencing similar symptoms and she was low as well.  The B12 deficiency will just be a symptom to the real problem so you need to dig deeper to get to the real cause.  In the meantime get your B12 ASAP!  Your body can just decide to kick it abruplty one day if you go too low, no joke.

The metallic taste in your mouth points to other mineral deficiencies as well.  night sweats: hormones wacked out because of deficiencies. confusion, balance problems: definitely neurological and may not be reversible (highly suspect B12 here), high white blood cells: depends on which ones but likely due to your chronic lung infections (which by the way is also associated with Celiacs) not being able to tolerate alcohol: pancreas/liver suffering, could be caused by gallstones stuck in your biliary system (which are too small to be seen by an external ultrasound - you need and endoscoping ultrasound for those), due to a malfunctioning gallbladder which is often associated with Celiac disease..you have a systemic problem that is just snowballing from one organ to the next...you are in a toxic state.  Everything is connected while most doctors try to treat you as a collection of separate organs.



Make sure you get your ferritin levels checked as well as your hemoglobin.  Your ferritin levels will go down just before your hemoglobin does, which makes you iron deficient even before your hemoglobin levels drop below normal.

Other Possible causes for you?  Due to the many years of you having taken antiobiotics, you may also have an overgrowth of intestinal bacteria (the bad kind) thus leading to intestinal damage causing specific malabsorption problems. That may have triggered a latent Celiac disease in  you.

But the key here is that you were already diagnosed as a weak positive for Celiac??? Was that just a blood test?  If it was, you need an intestinal biopsy to confirm and ABSOLUTELY need to go totally gluten free. You are too sick to see this as a "weak" positive. You don't sound like a "weak" Celiac to me. Treat it as if you have cancer because it's that serious, especially considering all the other serious problems you are having.  There is something poisoning you and since you say you eat very well, it's probably not chemicals in the food, it is the food itself, gluten.  B12, folic acid, and iron deficiencies are common in Celiacs, and a whole bunch of autoimmune diseases and infections may appear before any signs of intestinal problems.

I've found countless stories from newly diagnosed Celiacs that have been through medical hell for decades and are now feeling great without medication.    Find a specialist in Celiac and get to the bottom of your "weak" positive.  My hope is that you are indeed a true Celiac and you will soon be on your way to recovery by eliminating the offending toxin: gluten.

But the first thing you MUST do is to get your B12 and folic acid checked.  It's fast and painless.  And get those shots right away (since you are in so much pain) if you are low (and even if you are in the normal range but on the low side) and continue with a high dose of sublingual B12 tablets daily.  Confirm this with your doctor of course. Then find out what the deficiency is caused by: low stomach acid, pancreatic insufficiency, pernicious anemia (get the instrinsic factor antibody test), celiac disease (get that biopsy), etc... I'm still in the diagnosis stage and fighting with my doctors to actually do more tests to find the cause.  They seem to think that since my levels went up with a supplement their job is done.  B12 is just the symptom.

Failing that, your doctors  have ruled out cancer which is great,  beware of the pancreas - it's a hard one to find and see in MRI and scans, so there me be something in there, like a tumor which is interfering with your enzyme production and thus leading to malabsorption.

Also, you might want to get a hair analysis to rule out heavy metal poisoning (fish and shellfish are usually the culprits barring any environmental exposures).  

Good luck. And do NOT give up or your body will.

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