hey....i found your post researching my own symptoms.....so here is my theory.....has anyone ever tested u for adrenal insufficiency?...addison's disease .....doctors dont seem to even consider the adrenals....they are critically important to hormone system...once one hormone goes out of whack they all go out of balance....its very difficult to detect and is often the underlying cause of many other degenerative diseases....i would recommend going to a good naturopath....rather than a doctor...first...being on so many drugs it is hard to determine what is a side effect and what is a symptom.....i have crohns inflammatory gallbladder disease endometriosis and arthritis....but something else was happening so went to naturopath who immediately told me i was adrenally exhausted.....which i have been my whole life it seems....check out this article called adrenal burnout syndrome....http://www.drlwilson.com/Articles/adrenal_burnout.htm and research adrenal insufficiency and i read some addison blogs which were very helpful.....the allopathic medical system only detects addisons' once 80 percent of the adrenal cortex has been destroyed...before that point they dont recognize it....the standard therapy is steroids but they eventually destroy your immune system ...there are alternatives.....i dont know if this is your problems but it sounds like u should check it out to me...i have an excellent naturopathic doctor if u want her info pls email me at ***@****
I think Rob & the girls where more thrilled than me.... They are probably just tickled that They won't have to tolerate me thru that Gawd Aweful TX Again...LoL
YEAH!!!!
:)
i bet you can't believe it yourself! what a long effing haul it has been for you!!!
rob and girls must be thrilled too!
LoL... You Make My EyeBalls Well Up...LoL<p>
<img src="http://www.smilieland.com/graphics5/SnoopyDancing2.gif" width="75" height="75"></p>
:)
torture for sure.....waiting is a b#@ch, ain't it? i'll try your cell see if i get thru.....
later-
chelle
I can't stop posting it!! it stuck in a loop in my PC, NEGATIVE, NEGATIVE, NEGATIVE!!
k, tried to stop but, NEGATIVE, it keeps, NEGATIVE popping up NEGATIVE! is not a keyboard problems this time!
I am so HAPPY!!!!!!
Psst LOOK UP ONE Thread!!!
Ahh, I think they just wanna Slow TORTURE Me.. ya know this waiting is not something that is done well even when things are right on scheduale... I sure won't miss the days I can finally put that behind me once & for all... Gack!
If ya call me, you'll have to use my cell (remember I'm not in the south anymore)Humm, that reminds me... I need to call & get that # suspended again... or at least toss out all the frills!
Still keeping my fingers crossed for today!
;)
what's going on??? no news yet? i will have to call u and help you thru this weekend....wow....take care....chelley
Hi I have the same thing going on everyday now for the past 3 years. I was put on Celexa which gave me panic attacks bad so I have been off of the Celexa for 3 months now....the Metallic taste, nausea, night sweats, headaches, confusion, balance problems still happen...sometimes I get a day or 2 out of a week that is okay and then back all the symptoms come again. I take Ativan under my tongue if it gets really bad. ANY help would be appreciated.
Check through your blood tests (i.e. get a copy of each one of them if you don't already have them) and look for B12 and folic acid. If you haven't been tested for those, then get it done. You seriously sound like you have a B12 deficiency. That's what I have and I had the kind of generalized muscle and joint pains you were talking about, and the feeling of constantly being hung over, dizzy, etc.. My B12 was at 53, and it took my doctor 6 months to even think to test for it. Most doctors don't actually test for it so I had my mother ask her doctor for a B12 test as well since she was experiencing similar symptoms and she was low as well. The B12 deficiency will just be a symptom to the real problem so you need to dig deeper to get to the real cause. In the meantime get your B12 ASAP! Your body can just decide to kick it abruplty one day if you go too low, no joke.
The metallic taste in your mouth points to other mineral deficiencies as well. night sweats: hormones wacked out because of deficiencies. confusion, balance problems: definitely neurological and may not be reversible (highly suspect B12 here), high white blood cells: depends on which ones but likely due to your chronic lung infections (which by the way is also associated with Celiacs) not being able to tolerate alcohol: pancreas/liver suffering, could be caused by gallstones stuck in your biliary system (which are too small to be seen by an external ultrasound - you need and endoscoping ultrasound for those), due to a malfunctioning gallbladder which is often associated with Celiac disease..you have a systemic problem that is just snowballing from one organ to the next...you are in a toxic state. Everything is connected while most doctors try to treat you as a collection of separate organs.
Make sure you get your ferritin levels checked as well as your hemoglobin. Your ferritin levels will go down just before your hemoglobin does, which makes you iron deficient even before your hemoglobin levels drop below normal.
Other Possible causes for you? Due to the many years of you having taken antiobiotics, you may also have an overgrowth of intestinal bacteria (the bad kind) thus leading to intestinal damage causing specific malabsorption problems. That may have triggered a latent Celiac disease in you.
But the key here is that you were already diagnosed as a weak positive for Celiac??? Was that just a blood test? If it was, you need an intestinal biopsy to confirm and ABSOLUTELY need to go totally gluten free. You are too sick to see this as a "weak" positive. You don't sound like a "weak" Celiac to me. Treat it as if you have cancer because it's that serious, especially considering all the other serious problems you are having. There is something poisoning you and since you say you eat very well, it's probably not chemicals in the food, it is the food itself, gluten. B12, folic acid, and iron deficiencies are common in Celiacs, and a whole bunch of autoimmune diseases and infections may appear before any signs of intestinal problems.
I've found countless stories from newly diagnosed Celiacs that have been through medical hell for decades and are now feeling great without medication. Find a specialist in Celiac and get to the bottom of your "weak" positive. My hope is that you are indeed a true Celiac and you will soon be on your way to recovery by eliminating the offending toxin: gluten.
But the first thing you MUST do is to get your B12 and folic acid checked. It's fast and painless. And get those shots right away (since you are in so much pain) if you are low (and even if you are in the normal range but on the low side) and continue with a high dose of sublingual B12 tablets daily. Confirm this with your doctor of course. Then find out what the deficiency is caused by: low stomach acid, pancreatic insufficiency, pernicious anemia (get the instrinsic factor antibody test), celiac disease (get that biopsy), etc... I'm still in the diagnosis stage and fighting with my doctors to actually do more tests to find the cause. They seem to think that since my levels went up with a supplement their job is done. B12 is just the symptom.
Failing that, your doctors have ruled out cancer which is great, beware of the pancreas - it's a hard one to find and see in MRI and scans, so there me be something in there, like a tumor which is interfering with your enzyme production and thus leading to malabsorption.
Also, you might want to get a hair analysis to rule out heavy metal poisoning (fish and shellfish are usually the culprits barring any environmental exposures).
Good luck. And do NOT give up or your body will.
Thanks and that's a great way of putting it. How are you doing/
Beagle
And don't forget our riba rash, hair loss, and all the other stuff that makes us glamour girls and stud muffins!
Rockerforlife- As always, awesome. When I wake up draggin on Sundays cause Sat is shot night, and then come across your prayers, it helps change my day.
Mr. Beagle- Keepin good thoughts for you on your PCR and your hglbn. Don't stress too much(easy to say but I look at mine like a sports event, the quarter and half time scores may not reflect the winner.) You're going for the gold, you'll be there.
Can and Pretty Poison-Hey maybe we could start a new show. MHI Miami. Recreate stuff from tx. Look at what we got to work with. Riba rage, brain fog, drama, humor, even sex. And Goofy must have connections w/Disney.
Be Well, find peace,
Don
You have a lot on your plate and now taxes! Do you know about the GOLD BOND TRIPLE ACTION LOTION? I use it a few times a day and so far no rash. Hope you have a good night.
Beagle
Actually I'm not doing too bad. Pretty tired today but prat of that may be mental(I'm doing my taxes). The itch kicked in a little more often this week, but it's livable if I keep after it. focusing is a problem lately but not so mush med related as I got so much to do I never know where to start. Got a cbc due back tomorrow but I have afeeling not muchchanged there. Last month my hgl was at 11.4-wish I could give a ya a point, then we'd both be around 10.1.
Stay well Mr B,
Don
Meant to say I hope Tues. my HGB is up to 10.0, not the 8.0 I posted, it was 9.1 last week.
Beagle
Thank God your here. We all need your humor and you always find something to say that has me .....LOL
Beagle
On Friday night I had some posts back and forth with Goofydad and Jim cause a bunch of interferon squirted on the floor when I was giving my shot. Goofy said try and recreate the scene of the accident, but my dippy dog had licked it up! Talked to the nurse in charge (don't bother) and got reported to the pega police for underdosing! Talked to the doctor's office and they said don't sweat it. That is more exciting than most of my Friday nights since I been on treatment!
Oh i thought it was some other kind of leak and you just didn't make it to the bathroom on time.
Rocker, I will go research the green stuff. I do like the ACV, I can tell the difference in my skin!
Can Do, I kind of worried about the dog licking up the interferon off the floor, but thought what the hey, he would drink out of the toilet if I let him!
good morning,
You sound in good spirit, hope the sxs are getting better for you. Thanks for the support, and your right I'm over the hump with 11 to go. How are you doing?
Beagle
Good morning guy, don't sweat it, your goin undetectable. Shot 13 .I remember your 1st shot , man how time is flyin! Tonite and you'll be over the hump , and it will be down hill from here. Your set for the rest of the course!
goodluck,
Dyce