Aa
More sides (thrush!) and thinking of shortening treatment for Type 3. Advice?
Week 11/24. The sides are really getting to me: anemia (now on procrit and anemia improved), headaches, hair loss, all the usual stuff. And, now, upper respiratory infection (on antibiotics) and thrush (really disgusting and painful--I can barely swallow water).
Some of you seem like real experts (trihepguy, jmjm, you know the crew) and I really want your advice. Recent research on Type 3 seems to be suggesting that durations shorter than 24 weeks may be sufficient. I'm thinking of quitting at 16 weeks and crossing my fingers. I think it might work. If it doesn't, my liver is in decent shape and I'll wait a few years for something better.
Stats: Type 3a. one doc said stage 1, another said early stage 2 (same slides). VL 16.5 mill. Undetectable at 4 weeks (<10). 48 year old female, weight 112, in good health (or at least, I was before treatment).
Please advice this desperate woman. Thanks.
Some of you seem like real experts (trihepguy, jmjm, you know the crew) and I really want your advice. Recent research on Type 3 seems to be suggesting that durations shorter than 24 weeks may be sufficient. I'm thinking of quitting at 16 weeks and crossing my fingers. I think it might work. If it doesn't, my liver is in decent shape and I'll wait a few years for something better.
Stats: Type 3a. one doc said stage 1, another said early stage 2 (same slides). VL 16.5 mill. Undetectable at 4 weeks (<10). 48 year old female, weight 112, in good health (or at least, I was before treatment).
Please advice this desperate woman. Thanks.
Hope this link helps. Geez your almost there, best of luck to you.
http://www.nlm.nih.gov/medlineplus/ency/article/000626.htm
http://www.nlm.nih.gov/medlineplus/ency/article/000626.htm
Red and irritated is very normal. In fact I can't STAND IT either. It's why I eat so much ice cream and frozen yogurt in fact and can't eat anything spicy at all and I LOVE hot food :(
Thrush is a whole different thing completely. Your mouth gets coated and looks like you just drank milk sort of - and it hurts like somebody cut up your tongue and it's hamburger meat. You have to take this gross medicine which you swish around in your mouth and then swallow.
I think it's caused by killing off too many of one type of a good bacteria inside you (why I get it from Erythromicin).
So as long as your tongue is RED and irritated (little bumps and stuff too) you are fine.
I don't know the technical ways to describe it but you could google that easy enough.
Thrush is a whole different thing completely. Your mouth gets coated and looks like you just drank milk sort of - and it hurts like somebody cut up your tongue and it's hamburger meat. You have to take this gross medicine which you swish around in your mouth and then swallow.
I think it's caused by killing off too many of one type of a good bacteria inside you (why I get it from Erythromicin).
So as long as your tongue is RED and irritated (little bumps and stuff too) you are fine.
I don't know the technical ways to describe it but you could google that easy enough.
Said ssuming you've been on 800, that's a relatively high dose for your weight.
Don't worry I now weight 117 and I am still on 1,000 a day as I have been all along (and sometimes I pop an extra one on shot night for some wierd reason).
But it is a high dose and has caused sx as you know. So I'd think 800 is ok for her.
Don't worry I now weight 117 and I am still on 1,000 a day as I have been all along (and sometimes I pop an extra one on shot night for some wierd reason).
But it is a high dose and has caused sx as you know. So I'd think 800 is ok for her.
God I hit send before I finished - having some Riba day.
Sometimes - although it goes exactly opposite what statistics say and what we THINK having a LOW vl is HARDER in fact to cure than a very high one. Ask me. Ask Cuteus. There have been plenty of people in here who have had really LOW vl's that have had trouble.
I had a three log drop at week 4 then stayed FLAT to 12. Don't know what 24 showed yet but...although they insist a low viral load is a good thing...for some reason it's not EVERYBODY and that is for SURE.
Sometimes - although it goes exactly opposite what statistics say and what we THINK having a LOW vl is HARDER in fact to cure than a very high one. Ask me. Ask Cuteus. There have been plenty of people in here who have had really LOW vl's that have had trouble.
I had a three log drop at week 4 then stayed FLAT to 12. Don't know what 24 showed yet but...although they insist a low viral load is a good thing...for some reason it's not EVERYBODY and that is for SURE.
I am sorry things are so rough right now. The thrush mouth according to something I just read is attributable to neutropenia - a drop in the absolute neutrophils. The same is true of the respiratory infections. You said you had started Procrit but what about Neupogen? It sounds like your neutrophils are low. Neutrophils are the component of the white blood cell that fight infection. When they get low, you are open to infection. Can you look at your last CBC and read the absolute neutrophil number (maybe shows up as #NE). Neupogen is an effective way to boost those white blood counts and the side effects are relatively low. Just once more shot (boo)
My hemotologist said thrush mouth is a common which is a fungal infection is a common occurence on interferons and that if I had it let her know. She has formulated a mouthwash for that and would give me some. This isnot the only doctor I have heard of that has made up their own mouthwashes for thrush. Niastatin is also prescribed for thrushmouth - I don't know if it is OTC or rx.
I hope youare able to continue as your starting vl was so high. Hopefully you will only have to do this once, and you already have so much time infested.
Kathy
My hemotologist said thrush mouth is a common which is a fungal infection is a common occurence on interferons and that if I had it let her know. She has formulated a mouthwash for that and would give me some. This isnot the only doctor I have heard of that has made up their own mouthwashes for thrush. Niastatin is also prescribed for thrushmouth - I don't know if it is OTC or rx.
I hope youare able to continue as your starting vl was so high. Hopefully you will only have to do this once, and you already have so much time infested.
Kathy
I see what you're saying, but when push comes to shove, I think one needs to look at the statistical analysis. I personally would try to focus on the larger statistical base, rather than the individual anectdotal cases.
You note that there have been people with low VL having trouble clearing. True, but there have also been high VL in the same boat.
You note that there have been people with low VL having trouble clearing. True, but there have also been high VL in the same boat.
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