Most Recent HGB is getting lower and had visit with Doc today

[dperry10]

Well makes sense why I felt so bad last thursday, my HGB for friday is 10.3.  Says after next test will be able to tell if he needs to order the Procrit for me.  I asked if maybe we should go ahead and do that, and he says to wait.  Hopefully it will level out.  Now I go for one more this week and then every 2 wks.  Says if PCR drops at least 2 nodes can continue on, otherwise will pull me from treatment.  I asked about uping or changing doses instead if that happens, and he says there are no studies that say that will help.  

I do not know what to do now.    I feel better today, and did go to work and was productive today.   I talked to him about time off from work, and he says to wait and see what happens.

[wyntre9]

I don't know how you're functioning at work with all your sx.

I have to hand it to you, the way you're so on top of your lab reports.  I'm trying to get copies of my bloodwork (the doc has me going every week and schedules me to see him every 2 weeks) so I can try to educate myself about the process.

For now, he's monitoring my results, he even called me twice a week and a half ago to go see a hematologist for a shot of neupogen coz of low wbc.

But most of this stuff is way over my head.

Take care of yourself.

[dperry10]

Ok I will sure try, as long as I feel like I do today, no problem, its when I can hardly lift my arms to type or brush my hair, that I get worried.   I have been able to keep food down since lunch yesterday, so my sugar level is back up to normal instead of being in the 40's... way tooo low.   But thats what happens when you get sick after eating.. kinda hard to keep those calories that way.  Well going to cook some fish and have a salad..

[HCA]

It's dropping fairly steadily.Procrit should help stabilize it.
I would try and forget about it all for now as far as you can,see what your 12 week pcr looks like.

[dperry10]

Thank you for replying.   here is how I have dropped since beginning :

Pre BX : Hemo was 14.9    WBC 9.6
after 1st wk 12/29 = 15.3     5.0
             1/5 = 13.3       4.8
              1/12 = 12.6     4.2
              1/19 = 10.3     3.8

This friday will be week 6.. and I go back to dr in a month, so I guess you are right, he will have me take the other one at 12, and for now he is watching it every 2 wks (CBC ) after doing it again this week so he can see if I actually am below 10 now for the procrit.  

I just feel so ooooo tired sometimes.. Today I feel great..

[HCA]

Full blood count does not include PCR,which is seperate test.
If Doc. is looking for 2 log drop you must be within your first 12 weeks of treatment and they will do PCR after 12th shot.
2 log drop is absolute minimum level of viral clearence to justify continuing treatment,with luck you should better that.
HGB at 10.3 is an alert, but not a mega alert depends what was starting figure and how quickly it has dropped.
Treatment dosing is pretty standard and no proven percentage in fooling with it.
Sounds like Doc. is up to speed and I don't think he has forgotten anything.

[dperry10]

It appears the lab work she has me going for this week and then every 2 wks has the same thing  CBC.. is this going to give the PCR too ?  and whatever else he is measuring my drop in, that shows I am responding ?   Did he forget one ?