Muscle Cramps and Spasms

[Mimi4141]

My husband has been gets real bad muscle cramping/spasm in hands, feet, shoulders, & legs.  It

[Mister beagle bailey]

I have the same problems with pains in my leg, feet and wrist.  It has gotten worse since I've been on Procrit.  Hope it doesn't last long for all of us.

BEAGLE

[FlGuy]

Speaking of procrit, with the thal what's the doc's plan for procrit when you finish in 4 weeks. Done with procrit then too?  4 weeks, that's got to sound good to you.

[Dale_Ray]

The last time they increased my Nupogen I had the same reaction. The stuff is obviously poison to my system but it does bring my levels back up to safe zone. The platelets and no rescue drugs I guess I am just at its mercy. By skipping a week of labs it kept information from the doctor which let me get another week in. I think one of you asked if I had cirrosis. I have mild fibrosis. Liver is really in pretty good shape and enzymes have tracked low normal for 10 years now. VL has remained consistent always. I have been UD since week 12. If I can stay out of harms way and not get cut I should be okay. Not sure what is causing me to just have openings in my skin, no sign of a cut and blood will just come through and I don't know it unless I feel it running on my skin or someone else notices it coming through my clothing. I don't let it freak me out I just figure it is another part of treatment. I hope both of you have been doing well. Dale

[Mister beagle bailey]

The dr want's me to have my PCR test after my shot 22, so he can see that I'm still clear and if i'm not I'll be able to stay on meds without a break in treatment.  The dr will give me  procrit to take with me to Fl for a few weeks post tx to get my #'s up.

BEAGLE

[NYgirl]

I dont get why after 22 the PCR? Will he do it again at 24?  36?

I'm confused. I totally think with your thal that he should keep you on the Procrit a little while and let your body recup some numbers...now that you are on it and it's approved why NOT.

If he lets you take it to FL that is I just don't know how you've been managing all along as it is my friend!

[amirtracy]

hi mr. bailey, first off glad you're doing ok and holding steady on your hmg. i don't know how you do it. i'm down to 10.8 and feeling lousy. my PA wants me to get another cbc in 2 weeks to check it. my question is, do you inject the procrit yourself or do you have to go the dr's office? is it a weekly thing? curious because of my no insurance situation. i'm trying to get my ducks in a row just in case. is the choice procrit or riba dose-reduction? i'm nervous and making it worse for myself i'm afraid. sorry to bother you. glad you're doing ok and thanks in advance.  tracy