You are a great friend to be checking this out for her! Revenire had some great resources for you there. I know that there is all kinds of clinicals out there,,,You just have to do the search and legwork. I don't know if she even has a computer but you can find some amazing things on internet if you have the time to research which would be well worth because these meds are unbelieveable how high they are. Good luck and Hope you are doing good so far on meds and hanging in there!!
hey sweetie, i'm glad you are full speed ahead into your life...have you heard from couch? we kind of worry not knowing anything....anyone lives close to the city that can bring a laptop to her to post? ...just a thought.
UT Southwestern in Dallas has several clinical trials open that include the works and may or maynot require liver biopsy. The doctors name is Dr. Lee (I think) but Cory Wentworth is the PA who pretty much runs the show. I dont know much more but a little footwork should reveal somemore resources. The local county hospital may have a GI or internist who can run the preliminaries and in their systems your friend may get reduced cost care. She should look into public assistance medical care if she qualifies.
GI.PA
How are things in the new practice? hope you are well and settled.
TY for checking on us
Settling down nicely. Baby due in 2 weeks. I peak in on the boards every few days but pretty much let the veterns answer the questions. New practice is great.
GI.PA
Erin
Your back! and you were missed!!!!!!!!
Erin,,,Congratulations on the new baby soon! You have been greatly missed and we could use your expertise so much!!
Sorry to break in...At what point does one begin w/ neupogen? My WBC is critically low at 2. Dr. says wait for lab test in 4 weeks, but I am not sure about that. I have 3 germy little kids under age 5... always sick. i've been an procrit from week 7... feel crappy and always run down. Am I being paranoid? or proactive. I just can't afford to get sicker. katch
Thank you for your help ,its just sad and hard to believe how hard it is to get help with no insurance. I feel bad that I can get help, but I haven't been able to, for my friend. Erin I will try the doctors you mentioned.
Honey... I'm sure everyone on this board would do the same for their friend but thank you for the nice comment.As for my tx I'm doing ok I guess I've been having some pain in the back of my eyes last 2 days dont know if its a sx are not.
Be Well......Debra
I believe it is below 1.5 that they become concerned plus they also look at other things like neutrophils (spelling?) my wbc went down then came back up. Take control and educate yourself such as carbonbased.com and learn what the numbers mean. Not that I don't trust doctors but I don't after 48 weeks of tx.
Thanks for the quick reply.
hey erin....nice to see you post....congrats on the wonderful news....you must so want the next few weeks to speed by. hope you manage to rest enough before the delivery....wishing you all the very best!!
kimberley
cuteus...hi sweetie....yup things pretty much back to normal and full speed here...had to between gigs drive my daughter up to a camp in the Muskokas on tuesday night. she was hired to teach flat and white water canoeing and kayaking, as well as lead 3 day tripping groups, portageing etc. then i turned around and drove all the way back, so haven't really stopped much lately.(nor slept)i still after all these years, even though she now 'works' at summer camps instead of being a camper...i still cry when i see her off and stash goodies in her bags as well as a little note from mommy...made it back yesterday and missed one shoot, but back at it tonight....hope you are well my friend....
hugs
kimmy
'dh bill' is right in that most doc's will intervene with Neupogen when WBC's are in the 1.5 range. Though there is wide latitude - some doc's go sooner and some will let the number go even lower. And, as 'dh bill' mentioned, another factor in putting a Hep C patient on Neupogen is the ANC (Absolute Neutrophil Count). Most doc's intervene when ANC is in the 750 range - again subject to individual choice. There are studies out there showing that having the ANC drop to 500 isn't a concern for Hep C patients. (see <a href="http://www.hcvadvocate.org/hepatitis/About_Hepatitis_pdf/1.1_Hepatits_C/Neutropenia.pdf">Neutropenia during combination therapy of interferon alfa and ribavirin for chronic
hepatitis C</a> - which is authored by some of the top Hep C docs).
Here is a paper on <a href="http://www.ccjm.org/PDFFILES/hepadOng.pdf">Managing the hematologic side effects of antiviral therapy for chronic hepatitis C: Anemia, neutropenia, and thrombocytopenia</a>
TnHepGuy
http://www.hcvadvocate.org/hepatitis/About_Hepatitis_pdf/1.1_Hepatits_C/Neutropenia.pdf
http://www.ccjm.org/PDFFILES/hepadOng.pdf
opps forgot the most important thing...(brain fog never leaves!) i wish i had a real name to go with 'couchpotatoe' so i could try and see if i could find out how they were doing, but i am about as far away from vancouver geographically as i could be, its on the west coast of canada, derail and i are on the east.....i pray that her husband is in good hands, and hope that she will be getting some good support there. i did manage to hook her up with some great contacts and numbers for hep C support in vancouver and victoria...i guess at this point we can only pray for them...wish i could do more
kimmy
For the last 2 weeks my hair stopped falling out, but today I noticed it's falling out again. I'm 2 1/2 mos. post tx. Has this happened to anyone else?
Could it be your thyroid? When that happened to me, hypothyroidism was the cause.
Thanks girlie girls for the welcome back!
Cindee Billy starts his first treatment this fall in a trial..Pegacy vs Peg Intron sp? Hes a 1a Vl. 13 mil, up 6 months from 9 mil. We have no insurance as we moved back from Mexico and were in the process getting insurance when he had a simple blood test and you know the rest! Thank God for this trial or he was going to wait.He is a grade1 stage 0 but is 52yr.old.Indy and Rev's post convinced him he needs treatment now.
Ringer You lucky woman Lyle Lovett tonight!!
Erin Cant believe it is only 2 weeks for your baby! Are you just waddling around in the heat? Good that you moved back up north bet your family just cant wait for this baby huh?
PS I watch the forum and I knew you werent responding and My heart ached for you. You are in my thoughts and I am cheerleading for you.
WOW!!! GOOD TO SEE YA GAL!!! I WAS BEGINNIN TO THINK YOU HAD LEFT THE PLANET!!!
Got one in the "oven" eh? hahahaha That is Soooo awsome!!! Hopefully you're done movin across the country now so you can settle in amd be MOM. Do we get to change your name to GIPAMOM soon? hahahaha We have to come up with "something".
I made it through my tx with "most" of my sanity due in a BIG way to YOU. I take this opportunity to thank you from the deepest part of me for that. You were my Angel when I needed one.
I wish you all the best as you go through this "Magical" time of life. Take your time and enjoy every second.
PLEASE come back and let us know ALL the "stats" on the baby and MOM. Pics are welcome over at Hot Heps when you get a break.
When do we all gat our bubblegum cigars????
Take care sweetie.............
Hi, Erin,
Glad to have you around, and best wishes for an easy, happy birth. Please let us know how that turns out!
Maj Neni
That was a good one LOL!!!!!!!!! your crazy but I like you and I enjoy all your posts.
Be Well, Debra
Erin, hoe lovely to see your name today. You have been missed!!!
Befuddled-that was so totally appropriate, my husband is still chuckling and humming it. Thanx
Hey girl! Well I wish your hubby the best on his tx. My doctor hasn't told me the meds I will be on yet. I think maybe he's studying my bx and bloodwork. I really don't know. But as soon as I find out I will let you know. I am doing okay...sleeping about 13 hours at a time. I was also diganoised with fibromyalgia and tissue damage. Sometimes I walk with a cane. But only in the house when no one is around! Vanity! But I do have to use it to get up when I am laying or sitting. My knees kill me all the time. I am on 45mg of morphine 3X's a day. it helps some, but my pain doctor wants to leave some lea way incase I need more pain meds when I start the trial study in Oct. But life goes on and I will NOT GIVE UP until this nasty ole' virus is DEAD! Hope you have a wonderful week-end, and I'm glad you are back! Much love and many prayers, Cindee
Hi cindee good to hear from you again dont know if you got my answer to your question about still feeling crapo. the answer is yes
Befuddled you surely are I was ROFL with you new theme song It explains the zanieness How's the shark doing. Iguess its terminal EH?
Sher howdy I'm another one of the crazy Canucks here Warning any similarity on this site to actual people is purely coincidental Only the names have been changed to confuse the authorities Remember Membership has its privileges esp during periods of xtreme laughter you can DEPENDS on that
Ringer got your EM I'll update you later.
Does anybody know what time it is?
its howdy doody time
I double dosed my flashback this AM ,if you didn't notice
Daryl