i have a few wks left but was thinking of prolonging,my doc says if i want to prolong i have to pay full price & will still be on low dose,just a money issue for me right now,singlemum &hvnt worked for 2 yrs.i do have the money if i sell stuff & do it rough for a bit(but id rather put it towards my daughters education & other important things if i cant get the rescue drugs) dont want to waste it if i cant up my dose,so if i can get some rescue drugs i will prolong & even if i cant get rescue drugs this tx,i will definitly want some for next round if i have to do it again which i think i will,liver aching alot more than norm & lowering my dose is main reason but there r lots of things that have gone against me since tx started.
my ex(my lil gals dad)is very sick indeed with diabetes & hep c,long story.......but he is definitly wanting to tx again & i have other freinds & a bro with hep c who would definitly appreciate the fact that they can have it if needed.my m8 in perth new some1 in west australia who failed tx,she just found out her 3 month post & bam it was back & she had lowered dose too just like me & she had lots of colds flues bugs bacteria on tx.there is even more of a reason why i really really want to get some now since i spoke to my m8 in perth she was so worried about me cos i told her how sick im getting & swine flue is everywhere down this way & she was like beck please be careful 2 people in WA had died on tx LWBC (from swine flue,they had so many infections etc & no WBC to fight & they caught swine flue) from having a doc who left them on high dose of interferon even while having low WBC.this freind of mine in perth has recently just come off tx herself & she ended up in pshyciatric ward at end of tx (she has always suffered from bad depression & anxiety,but never delusions)soi waswondering if she really did hear of this aweful news or if she is still unwell & dreaming stuff up,she said she was better & her delusions had passed but id never heard of any1 dying on tx fromswine fluein WA but then again i dont watch much news on tx cos im depressed enough.
i will look into these people who died but i am not worried about dying so much cos my doc did the right thing & reduced my dose so that my wbc wouldnt get worse,but i would love to have more wbc cos they r still to low for an increase he said.
i dont feel like im doin anything wrong by wanting to increase my chances,i h8 the fact that i have to get something that my doc wont allow or my country.docnever told me that doin a 4 & 12 wk viral load is a good indicator on how tx will go & now i will never know how early i responded,i would have gladly paid for these tests,now i just have to take a guess is it worth prolonging or not.my doc has said geno3a only needs 6 months tx even wit reduced dose but iv heard otherwise of several people.
im only goin on what my doc told me,he said i cant get any rescue drugs for low WBC in australia & i also rang hep c line in aus & he hadnt even heard of them.its so stupid of our goverment,if america or other countrys think its safe enough to use on tx then why would australia be any different,but i dont mean to complain to much i just want to give myself & others over here better odds,i do appreciate our medicare system here,i guess we cant all have everything.
thanx 4 ur info and comments,i will look into the other names & iwill ask around &get on net,but i was hoping sum1 here would already know &save me all the mucking around,but will definitly research in mean time.my brain is so foggy lately i can barely research and type a post out prop,so thank u to any1 who can suggest any way i could buy it from another country if australia doesnt have it,which is what my doc said.
soooo tired il have a nap now that post made me tired lol.
ps stupid old keyboard is playin up grrrhh,space bar gettinstuck etc.dont think il post til my lap top comes home,som1 borrowed it and im using my old pc with a screwed mouse and key board,cant b bothered goin shoppin to get pc parts they can wait,too scared of goin to shops all time cos of big crowds and swine flue is everywhere apparantly.
I find it hard to believe this important drug cannot be found in Australia. Like the other poster said it is probably sold under a different name. Best of luck
Neulasta is the same drug, filgrastim, only pegylated to stay in the system longer. Don't they have it available for cancer chemo patients? I find it hard to imagine that such an important chemo rescue drug is not available in Australia. Try looking it up as filgrastim and if you can find it your doctor may be able to prescribe it off label. It's a biological, like interferon, so needs to be kept cold and may not ship well.
How much longer do you have on treatment?