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NEW - HEPATITIS COMMUNITY FORUM

Dear Friends,

Sometime today, we are going to open a new HEPATITIS COMMUNITY FORUM!  The Hepatitis Community Forum will be the place to communicate and share support with other people who have been touched by Hepatitis.

The HEPATITIS FORUM (this forum) will now become the place to post medical questions and comments pertaining to hepatitis information and research ONLY.  

Please give the new forum a chance to get up and running and then send us your comments and suggestions regarding the changes!  Thanks for your patience and continued support!!

Happy Friday!

Cindy Thompson
Med Help International
46 Responses
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Avatar universal
Murphy's Law: Anything that can go wrong will go wrong no matter what.

This forum is good and helps a lot of people as is, it is better than going to a shrink/Hep doc at the same time. If it ain't broken don't fix it.
Helpful - 0
Avatar universal
I think you can't blame interferon if you aren't even taking interferon.
I also think having any diesease is no excuse for really out of bounds behavior that you display only because you can.
It's just an excuse.



Helpful - 0
Avatar universal
I think what will occur is that the forum which we have become accustomed to will continue essentially as it is now, only there will be less pure chit chat. I doubt very much that personal exchanges will come to a screeching halt and I wouldn't like it if they did. We are humans, notwithstanding the HCV & its attendant treatment, and we'll continue to interact with one another and it won't be on a purely scientific/research basis either. But, hopefully purely social threads will have a home now and won't distract us from why we are really here which is to learn about HCV and offer support and compassion. I think we'll survive and get better but as I have said so many times - I'm a perennial optimist. Mike
Helpful - 0
137025 tn?1217764741
Please.  I love this place, always have.  Like my real life, mix of good info, bad info, funny people, angry people (some chemically induced, I once kicked the closet door and broke my foot, riba rage.......is the foot a victim needing support or needing info?  Which board? or just me acting badly). All of us here legitimately deserve the right to be UPSET, we have a freaking virus necrotizing our livers, constantly.  Tweaks me a lot at times.

Sometimes I want to cry, over new legitimate information.  Where do I go?

Sometimes, I get a laugh here that releases endorphins and I feel so good.  Where do I go?

I can do HARD things, I live with the virus.  I can try to split what I'm thinking and posting and feeling.  But if I was a newbie, well, that would be sad.  One sterile place, full of info, like a paper brochure, no support to cushion the impact of the new info.  Another place to talk and support, but no info.  A newbie is told to go to yet another site for info.  Poor newbies.

Who's winning here?  My life is full of bad news and bad words.  Full of conflict and determination.  This board captures it all.  Offends me and delights me.  If I was a newbie, I would be grieving what I am losing.  The unique human ability to blend curiosity, research, humor, sorrow, facts and expressions, get hurt feelings and then get over it.  

I'm mad and wailing sad, I think I'm losing something, but I'm so confused, I don't what that is EXACTLY.

Willow


Helpful - 0
Avatar universal
Sharing support and posting medical comments and questions overlap so often that distinguishing which forum to post will be confusing. This forum works well as it is.

Here is a suggestion to improve this forum; have a hepatolgist post comments once a week to clear up discrepancies or to share treatments and research.
Helpful - 0
Avatar universal
The "new" format is awful. I know a lot of sites ue it but I don't like those at all. This format is much better.
Now you have to click on some subject to see the posts, one great thing about here is you have the threads all listed and you can scroll.

Helpful - 0
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