Aa
Nevermind....
My question was going to be: Is there any way to get through treatment without having to tell people you're on it?
Texasgal sorta answered my question...:) I guess it's different for everyone. I'm having bx on Jan.6 and have pretty much resigned myself to treat no matter what. I was hoping to get through this without explaining much but i guess i'll just have to wait and see. i must admit waiting to begin is hell...anyhow Happy New Year and best of health to all!
Texasgal sorta answered my question...:) I guess it's different for everyone. I'm having bx on Jan.6 and have pretty much resigned myself to treat no matter what. I was hoping to get through this without explaining much but i guess i'll just have to wait and see. i must admit waiting to begin is hell...anyhow Happy New Year and best of health to all!
I worded my FMLA paperwork and memos to my director about leave and limited work hours as "chemotherapy for liver disease". Not a lie and did not reveal I have HCV, when it comes to medical information; the law does protect a certain level of privacy. Make sure your doctor knows you want your condition listed as liver disease, that's all mine has had to say. Peace
I've been through some of the feelings you're going through. I was a single Dad living a sober life after many years of addiction, content to always be there to raise my son. Crazily went back to drinking and drugging for 2 years. Got some help and sober and my son was thrilled he had his Dad back.
But I found out I had hep c in the process of getting sober. Most likely of a lot of possibilities, from one use of a needle in '75. Just when my life was good again, bitten in the A$$.
My son's mom had moved out before he was a year old-now their weekend visits with his mom had just tapered to nothing as she sunk further into addiction. He'd been very close to my mom and at the age of 6 was at the dining room table wih her when she had a stroke- never to recover.
I couldn't face hitting him with this.I also didn't want him to be afraid of losing someone else, again. Especially reading the (possible) side effects. More fatique, mood swings, depression- same as I was on booze. I wondered if I could skate through treatment without him knowing. One day he was 13, found a book on liver diease in my room and questioned me.
So I told him. Not in one full overwhelming blast. I started with, 'well, ya know how I'm always tired, I have some blood problems affecting how hard my liver has to work. I'll be fine, but I may have to go on some medicines that can't make feel sick sometimes. Maybe a little wacky with mood swings.' (At the mood swing comment he smiled and said-'so you'll be more like me-cool.' I laughed and left it at that for a few days, every so often giving him a little more info- like -BTW that medicine is a shot like Joe's mother takes for diabetes. He doesn't have to read the liver book, just some basic stuff.
Maybe most importantly -your children, 14 & 18 right, have known you as a sober most likely reponsible caring parent. That's who they know - maybe they have knowledge of hep c from the relatives you spoke of- but the way you put it to them is probably what they'll go with. They don't need all the details of the past. Even though my son knows I was a drunk and did drugs and saw me bounce in and out of detox for 2 years-that's it. Not details or what one's or the ugly situations and all. I don't hide it. He's got his own story to live, if he asks, or I see a reason, I'll tell him.
Whether we are sober or not, have a past or not, doesn't decide which of our children do or don't experiment or head for the wrong lifestyle. I grew up in a loving, caring stable home with wonderful examples all around me. I went the wrong way, my siblings didn't. My daughter grew up around partying and seldom has a drink. We can prepare them the best we can, they eventually make their own decisions.
You got this far -I'll bet when you present this to your kids, they'll understand, it's not to keep you from dying, it's to help you live better.
Be Blessed,
Don
But I found out I had hep c in the process of getting sober. Most likely of a lot of possibilities, from one use of a needle in '75. Just when my life was good again, bitten in the A$$.
My son's mom had moved out before he was a year old-now their weekend visits with his mom had just tapered to nothing as she sunk further into addiction. He'd been very close to my mom and at the age of 6 was at the dining room table wih her when she had a stroke- never to recover.
I couldn't face hitting him with this.I also didn't want him to be afraid of losing someone else, again. Especially reading the (possible) side effects. More fatique, mood swings, depression- same as I was on booze. I wondered if I could skate through treatment without him knowing. One day he was 13, found a book on liver diease in my room and questioned me.
So I told him. Not in one full overwhelming blast. I started with, 'well, ya know how I'm always tired, I have some blood problems affecting how hard my liver has to work. I'll be fine, but I may have to go on some medicines that can't make feel sick sometimes. Maybe a little wacky with mood swings.' (At the mood swing comment he smiled and said-'so you'll be more like me-cool.' I laughed and left it at that for a few days, every so often giving him a little more info- like -BTW that medicine is a shot like Joe's mother takes for diabetes. He doesn't have to read the liver book, just some basic stuff.
Maybe most importantly -your children, 14 & 18 right, have known you as a sober most likely reponsible caring parent. That's who they know - maybe they have knowledge of hep c from the relatives you spoke of- but the way you put it to them is probably what they'll go with. They don't need all the details of the past. Even though my son knows I was a drunk and did drugs and saw me bounce in and out of detox for 2 years-that's it. Not details or what one's or the ugly situations and all. I don't hide it. He's got his own story to live, if he asks, or I see a reason, I'll tell him.
Whether we are sober or not, have a past or not, doesn't decide which of our children do or don't experiment or head for the wrong lifestyle. I grew up in a loving, caring stable home with wonderful examples all around me. I went the wrong way, my siblings didn't. My daughter grew up around partying and seldom has a drink. We can prepare them the best we can, they eventually make their own decisions.
You got this far -I'll bet when you present this to your kids, they'll understand, it's not to keep you from dying, it's to help you live better.
Be Blessed,
Don
i've contacted schering-plough and my dr. said his office sets it up. they have a "commitment to care" program for people w/o insurance. i qualify unless there's some hidden precursor i don't know about yet. i'm keeping my fingers crossed or i'm screwed so to speak...
I to start tx on Fr. 12/29 and have a pit in my stomach. I don't
plan to tell people about treatment, except a few. How ever if I get bad sides I plan to blame it on my Thalassemia(amemia) and that I'm being treated for that.
Bob
plan to tell people about treatment, except a few. How ever if I get bad sides I plan to blame it on my Thalassemia(amemia) and that I'm being treated for that.
Bob
Has anyone told you the treatment costs $4,000 per month???? How are you paying for the tx if you don't have insurance?
You can go to clinicaltrials.gov to look at trials. You need to get into a trial. Or contact the pharmacy company free meds program.
You can go to clinicaltrials.gov to look at trials. You need to get into a trial. Or contact the pharmacy company free meds program.
No i'm not in a trial study...i live in orlando florida and don't have insurance. I was diagnosed mid-october but couldn't afford the biopsy until now. i'm hoping to start treatment mid-january. in a trial is there a placebo group or is everyone being treated? i can't wait for this all to be over. i'm very determined to beat this. good luck to you in your treatment. i'll keep ya posted. :)
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