OPEN POST

[PasoPerson]

Just wrote a big note to Friole, posted below under "I'm pretty upset" by ohgreat).  Took a chance on an open "question" space.  Here it is ... it's all yours.
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Friole, here's what I said below ...

Hey, I am still hanging in there, for sure. I am a stubborn cuss and WILL beat this one way or the other. Initial VL was 1.3 million.

Won't get into long story, but at 24 weeks I was a non-responder to Inteferon. VL dropped to 49,000. Better than not at all, but not enough to continue w/Inteferon.

I am now on "consensus" Infergen, daily shots. Also still taking my 5 Ribavirin daily. I thought it would be terrible, but so far so good. It's only been a week, we will see what's coming. GREAT IDEA - Forget who suggested it, but called specialty pharmacy and told them I needed to inject with THE smallest needle possible, like maybe neo-natal. I got it and cannot even feel the injections. Y'all remember that if you have to go to daily.

My PCR will be done every 4 weeks for at least 12 weeks. Depending on my response, and how I'm handling daily stabbings, I will continue to one year with daily shots OR stop all meds and wait for a clinical trial for slow/non-responders toward the end of this year.

Sides so far include losing about 80% of my hair ... now can appreciate what folks with bald heads go through in winter. I'm freezing without a hat! And the ever loving riba rash. Those are the two biggies right now. Oh, Procrit of course, and my best friend Paxil.

I'll try to keep you posted, feeling better now. You are rig

[jmjm530]

Did I hear xtra riba going to waste? What is it with you geno 3 woosies anyway :) Look, if I promise to keep my moths on a leash...

-- Jim

[OnAPrettyPoison]

I am new to the forum, I have just lurked, can't really post at work, and the home computer died and just got a new one.  Have 1A, starting VL 108,000, 1/0, cleared at 12 weeks and just got 25 week pcr and am still clear!  Woo Hoo!  I am really excited the meds are working.  Am week 26/48, no real sides except the anemia and have really started shedding over the last three weeks.  Otherwise I feel fine!  Thanks for all the info over the past few weeks.  It is really nice to communicate with someone who knows what it is like to go thru this.

[beamishboy]

xtra riba? riba period-i hate this poison& i'd rather get shot in the foot then take more!..but if i had to,i guess i would
Paso,ONapretty:great to hear good news!!Goofy: i'm sure you are clearin out the bugs,not moths, Goodluck All

[strator]

Hey congratulations on your clear PCR's. Gives me a shot of hope everytime I hear clear. Outta be a cah register sound effect to ring out when you type it. WOHOOOOOOOOOOO is right!
Stay well,
Don

[OnAPrettyPoison]

I know it really is poison, but if the poison works, you might as well suck it up and like it.  But more than half way there helps.  Today I was thinking, only 895 more ribavirin to go!  (And 25 more shots of Peagasys, and 25 more shots of Procrit);-)

[OnAPrettyPoison]

I know it really is poison, but if the poison works, you might as well suck it up and like it.  But more than half way there helps.  Today I was thinking, only 895 more ribavirin to go!  (And 25 more shots of Peagasys, and 25 more shots of Procrit);-)