Open for Anything

Question

Just thought I would open a thread for everyones use. Looks as if the thread problem still exist. Have a Great Day

willing · Answer

Hi Louise - you're very welcome. I hope you stay around - this forum can be helpful throughout  tx. With your fibrosis score and genotype you have a promising  start.

louisep · Answer

Hi Willing, thanks for all your help...It's finally making sense!  I get pretty baffled by all the medical jargon.  Its really reassuring to know I can come here for help any time.  I'm due to start tx Dec 1st, and I'm absolutely terrified!  As I expect anyone else is....it just helps to know there are so many people in the same position.  Before Blueskies told me of this site,  I felt so lonely & isolated, but I'm getting stronger every day and getting prepared for the big fight!  Thanks again, Willing, I really appreciate your help and everyone else that has taken the time to help me.  Wish you lots of luck.
Louise

willing · Answer

it is confusing! there's a frustrating variety of biopsy scoring schemes all dreamt up by pathologists to bamboozle their patients and make for job security (it's the only fun part of a job where you've got to look at miscroscope slides all day). Your score, based on its range, must be the Ishak variant of the HAI ( Ishak went and put the 2 back into the HAI that Knodell left out on account of his grandmother's drinking).

Anyway, more seriously, look at table 1 in the following <a href="http://hepatology2.aasldjournals.org/scripts/om.dll/serve?action=searchDB&searchDBfor=art&artType=fullfree&id=ajhep036s152#abstract">review</a> for the interpretation of your fibrosis score. Good news - as a geno 3 you'll want to treat anyway but your liver scarring is minimal.

jonihs · Answer

I don't think they are getting the message. PLEASE if you have a question and have gone through the old posts, and have not found the answer you need, by all means, start a new thread(w/ever) to ask your question. But if you just want to chat, which is okay too, do it in another already started one. Don't open a new one. Someday you might have an urgent question you need answers to, then you'll undeerstand ....Thank you  Joni

louisep · Answer

Hi Indiana,  just wanted to say thanks for your help.  I'm still a little confused, I guess I should talk to my Hep Nurse again.  I always have lots of questions when I've left and had time to think about things properly,  I hate to take up too much of her time.  Is the grading & staging different in the US?  All the web sites I've looked at don't seem to do the same?  Here,  I'm told inflamation is graded 0-18 (I'm grade 5) and the fibrosis is staged 0-6 (I'm  stage 1).  Maybe, I'm not the brightest spark on the planet!  Or could it be brain fog??
Thanks for taking the time to comment, I really appreciate it.
Good luck to you,
Louise

Indiana · Answer

Here are a whole buncha sites on biopsy scoring. You should be able to figure you results out from these. There are several different scoring methods. Your scores look pretty good from here...........
http://hepatitis-central.com/hcv/liver/scoring.html
http://hepcvets.com/cirrhosis/score/alltables.html
http://www.medhelp.org/forums/hepatitis/archive/478.html
http://www.hepatitiscaware.org/biopsy.html
http://curly.cis.unf.edu/lab.html
http://www.hepnet.com/liver/biopsy.html
http://tpis.upmc.edu/tpis/schema/mHAI.html


  Hope this helps................

louisep · Answer

Hi Guys, hope nobody minds me asking this as I know you've probably heard it all before....I got my biopsy results Nov 10th, which I'm told were Grade 5 on a scale of 0-18 inflamation, and stage 1 on a scale of 0-6, minimal damage.  Apparently, my Hep C Nurse is sending me the whole copy in the post, but so far this is all the info I have.  My Nurse was pretty pleased with the results, and so am I, I think??  Could someone out there simplify this for me? Please.  I'm a newbie, geno 3a.
Many thanks

DH Bill · Answer

[url]http://www.battlinghepc.com/genotype.html[/url]

Steve' · Answer

OK Bill here goes, from your friend that started Tx same day together ......This will work below, BUT .. you must change these brackets [ ] & in there place put these ><
[a href="http://www.battlinghepc.com/genotype.html"]ClickHere[/a] or if you want the actual address to be clickable Bill then just do this
[url]http://www.battlinghepc.com/genotype.html[/url]

I hope this all worked properly, its hard to do it here, easier in an email Good luck Bill ...
 <hr><marquee direction="right">Steve</marquee>

Steve

baby4cakes · Answer

HI EVERYONE
            I'M GOING ON SHOT 3 TOMORROW
SO FAR SO GOOD JUST SOME MINOR SIDES LIKE BRAIN FOG. OH WHERE DID I LEAVE MY BRAIN .I TO QUIT COFFEE & SODA ABOUT 2 WKS BEFOR STARTING TX I DON'T MISS IT.ALSO IF SOMEONE CAN TELL ME ABOUT MILK THISTLE WHEN YOUR ON TX SOMEONE TOLD THAT IT COVERS UP THE NUMBERS THEY SAID AFTER TX IS GREAT. MY GOOD OLD DR TOLD ME TO TAKE THEM. HE'S NOT OLD JUST KIDDING.

                                     GOD BLESS US ALL 
                                          ROSE

DH Bill · Answer

>http://www.battlinghepc.com/genotype.html<

DH Bill · Answer

Good job! How did you do it?

Is_This_Real? · Answer

Try this: http://www.battlinghepc.com/genotype.html, or better yet, click here

DH Bill · Answer

I was trying to figure out how to make this a clickable link I had found this site and was sharing it but this site works differently than others???????

Galen · Answer

There isn't a thread problem.  We only get 6 new ones per day.  If someone opens one up and changes his/her mind about using it, it is the same as though it were used and is lost for the day.  So, boys and girls, unless you need to post a new topic that has not been addressed recently, please leave them for new or hot topics.  PLEASE don't just check to see if there is one available.  Unless you use it, it's gone just as though you had.

DonL · Answer

I am trying what I think will make the link clickable. Please bear with me. http://www.battlinghepc.com/genotype.html

oldhippiechick67 · Answer

The withdrawls from caffeine can give you super huge headaches...so cut down GRADUALLY over a couple weeks.  two cups a day shouldnt hurt any.  I went several months without caffeine, and lately have one cup of it (coffee) every day.
I hear it can dehydrate you, but that can be helped by drinking an 8 oz water soon afterwards.  Yes, we have to drink a lot of water, buy a lot of TP if female, and stay close to BR's.  I get real irritable if I forget my water after leaving the house.  A pack of gum can help "cotton mouth"  Luckily I find it easy to drink more than a gallon a day, I refill the 24 oz sport bottles with our purifier and keep rotating um in the fridge.  I drink at least 8 bottles a day.  OHC

odessit · Answer

I believe Genotype 5 is mostly in South America, Canada is just like US - mostly 1's.

Revenire · Answer

Yeah, I kept drinking it the whole time during tx. I cut WAY down though >> 2-3 cups per day max << I was a real caffeine freak. Drinking the gallon of water gets tough so I drink juices as well.

slarso · Answer

what about coffee?

I start tx in two days (YIKES)!!! I know about drinking  my age in gallons of water per day( oz's equal to 1/2 body weight, I already am floating around the house) but what about coffee. I just received my meds in the mail and one page said that caffine drinking can make the sides worse, I usually have one cup in the AM to get rollin" and maybe one in the late morning. I would appreciate any help in this area

DH Bill · Answer

How do you get this to hilite to click on? I can do it everywhere but this site.

DH Bill · Answer

This was a interesting site I found. If it is not accurate someone let us know.


http://www.battlinghepc.com/genotype.html

Open for Anything

You are reading content posted in the Hepatitis C Community