Poll working on tx-restart

[Lady Lauri]

Hi all. I am re-starting the poll as we need more choices and would like to keep track awhile and get an idea. Choices are (and any more ideas, feel free.)

A.)  Worked- not a problem.
B.)  Could not work at all (starting in 1st mth.)
C.)  Worked, suffered through.
D.)  Tried, had to quit (after 1st mth.)
E.)  Had to go to total part time.
F.)  Lost job due to tx.


Sound good? Please note physical/desk type and for those who don't mind....age :}

                                                   Thanks, LL

[Lady Lauri]

Opps, sorry all, Thought this was on the social side. Meant to send it there, having to do with Andiamo and Elaines threads.

[Lady Lauri]

Can't believe I tried to keep up with this on tx.

Going thru old threads, some hilarious!
Look at all the ones that are't here, anywhere!? Would love to know HOW many are?

[kcrandy]

sorry  :O)  i am going to have to send you a free one day get out of tx pass lol  : O )

[wyntre9]

Hey . . . you're the one who still can at least conjure images of motor cycle riding.  :)  It's all i can do to walk the 20 feet from one side of the cottage to the other.

Can't help ya out with Brian, either.  He's devoured my brain.  :(

wyn

[Lady Lauri]

Kcrandy ...ALL...(but Wyntre who got it!!) ...the 'TALLY' IS posted on a new thread .....any NEW post about working on tx from this day forward....please post on the NEW thread and I'll re-add at a later date. You guys are killing me here, LOL.

  SEE 9th POST UP!

(help me out here Wyntre.....their 'Brians' are killing my brian !!)

                                                       LL

[kcrandy]

hope you are doing well.

just curious, when will the results be posted from the other poll, and this one as well.

i just want to say that you have come a long way form the ladyl at the beginning of your tx.

knowledge is trully a powerfull thing.  : O )

happy holidays ladylaurie.

[wyntre9]

*LOL*

Hope we're all gonna get a personally addressed print out of all this poll-taking.  

Oh . . . . you mean we shouldn't hold our collective breath?  :)

wyn

[moahunter]

My experience is almost exactly the same as goofy day, taking days off. I don't have to work, but I find it helps. I have made a lot of mistakes this year though, my thinking is just not clear enough. I get headaches when I struggle with a problem too long. I have learned to limit a bit what I am doing, try to delegate as much as possible. Easier said than done. I feel this treatment has eaten up what would have been one of the most productive years in my life - a chance to reach for promotion. Well, hopefully next year, only 4 weeks to go, here's hoping for SVR.

[gauf]

C: Computer Coordinant machine programmer. Work pretty much alone so I suffered through just looking busy; even when I couldn't remember how to tie a shoe.

[Lady Lauri]

  Ahhh c'mon.....ya'all are killing me here , LOL. Can't even count the d*m Riba!
Funny :}

Think I should do :???
Step ONE......   see 4th post up, step TWO......go back to forums.....Step THREE   ....:}

  Better :}

                                                             LL

[wyntre9]

Could you repeat the directions, please.  (g)

wyn

[Lady Lauri]

Post that on the new one for me :}......(see my post above yours).
  I'll add new ones from there, help me out here....counting, figuring, keeping track on tx you know, LOL.
                                          Thanks, LL

[GoofyDad]

I didn't have to work. But I chose to. I would have gotten full salary either way - for a year or so anyway. But I was far from 100% - my job requires thinking and I wasn't so good at it on tx. I took off usually 1 day per week - so it was 4 on - 3 off. I was *very* anemic and could not have done physical work. Also -  I was in a lull and my job wasn't nearly as demanding as it could sometimes be,

[Lady Lauri]

  Hi all....if you just posted today (26th)  ...please put on the 'Tally of poll' thread as I have counted off of this one and a previous one. This way my poor brain can just add/count off of new post/thread and not go thru these other 2. My fault...should have posted as 'new tally', etc.

                              Thanks all                                  LL

[wyntre9]

that is kind of you to say, r glass, but I never started with the intention of 'educating."  i was a musician with no other way to make a living and while i might have hated the job, i DID love music and so that carried me through many years as the kids naturally respond to beautiful sound,  no matter how elementary the level.

it was the OTHER stuff - you know, the politricks, the back-stabbing and in-fighting and the good-ole-gals-club -

And the people screaming loudest about 'the children, the children, the children' who always made sure they were the ones with the least kid-contact of all.  Made sure they didn't haveta get their hands dirty much less do a friggin' thing.

i came close to being 'arrested,' or at least reprimanded and brought up on charges, either by parents trying to 'milk' the system by claiming their kids had been 'unfairly' treated or by idiot novice i'm-gonna-save-the-world americorp  wasps, one of whom told a parent, when he said his big 14 year-old-in-a-5th-grade-class juvenile delinquent son said I pushed him, to press charges against me with the local PD.

Sorry . . . didn't mean to go off . . . .

I just can't WAIT to be finished TX.

You hang in there with your job and FWIW, you're not imagining any of this stuff.  the SX can be brutal.  Good thing you can escape to your office when everything starts disintegrating but still it would be a heck-of-a-lot-better if none of us had to go through this in the first place.

on the other hand, we're lucky there is a treatment available.

But somehow it's HARD to be grateful for meds that weaken us and drive us nuts!

wyn

[R Glass]

I would like tell you I appreciate your 15+ years of dedication as an educator. This takes a special person. I wouldn’t make it one day without being arrested. What ever you decide in May, I believe your future looks bright. You seem to be a strong, compassionate, and well-educated person. You will succeed in what ever you choose.

[wyntre9]

I think the work issue also has a lot to do with whether or not you like/love what you do.

In my case, i HATED it, and anyone working in urban public schools, in the classroom,  who tells you otherwise after doing 15+ years is LYING!

I think that if I'd been doing something i was really passionate about or committed to, it might have had a different psychological effect but, on the other hand, I do have other interests which I've been completely incapable of pursuing since starting these meds.  Funny, coz one of the things i thought i WOULD be able to do is put in time on other projects.  no way.  yeah, I've had time but I've been too friggin weak to take advantage of it.

At this point, I've decided my only recourse is to put finishing TX first and see what happens once I'm through, in May.

wyntre

[R Glass]

I am only entering into week 4 and so far I haven’t missed a day so I guess I am a C. It hasn’t been easy and I have to force myself to go in everyday. I do feel that I am fortunate to have the type of job I have. I am a Construction Superintendent. My job requires me to work at my desk and go into the field. This works out well because, when I get tired I go to my field office and make phone calls, paper work and sometimes just lock the door and stare at the floor and sigh. When I get tired of this I go back out into the field. If I had to sit at a desk all day, I don’t think I would make it. I had off Saturday thru Tuesday and it was probably the worst 4 days I’ve had yet. I just laid in bed the entire 4 days miserable. So, maybe working is better for me. A little time will tell.

[wyntre9]

Well, guess I HAVE been lucky in some ways.  (This TX makes me feel like I'm a walking disaster half the time.)

Back in '95 or so i found out about the Income protection plan during the time i was divorcing and i figured I better sign up for it, just in case, never thinking i'd actually have to use it and figuring i'd probably just be having hundreds of dollars I couldn't
afford withheld from my check and further enriching the inurance company (something i am ETHICALLY opposed to, *LOL*)  For once in my life, practicality seems to have perservered.

Anyway, the irony is I must have had hep-c then, though i wasn't DX'd until November, 2006.

So, yeah, Linda, without that safety net i could not have (financially) started this treatment but the outcome of that is in doubt until 6 months post-TX, as you know all too well.

the other very lucky thing for me is the state i worked in has a strong union, and they're the ones who suggested I apply for early DB retirement.  So, there you go.  IF SVR happens, I'm sure I'll be very happy with my decision, despite the huge cut in income.  If it doesn't succeed, well, I ain't doing this treatment again.

Wyn

ps -asked on the other side - what is Fibro?  Also, what does your SD do with birds?  I HAD 6 parrots this time last year - during the move I adopted one out and one died a couple of weeks ago.

[MrsOckert]

E.  Had to go to total part time.

Would have quit if I could afford to.

[sfbaygirl]

I am a B too.  Although I was on disability for PTSD, there was NO way I could have worked during tx. Still can't. Hoping to get to Grad school and perhaps get SSI or something. thankfully I have a great husband who can support me.

Wyntre;  I tried to get that but b/c of the Hep C they wouldn't accept me.  

BTW I too am a teacher. Taught Tech and history and am embarrassed to say English in middle school. Can't spell at all or write correctly...on tx and now on Lyrica.

[wyntre9]

Thanks for tallying the results for us.

I'm in category B - couldn't work as soon as I started TX but the job of a music teacher in the slums is no piece-of-cake - 6 to 7 classes per day, 200 + kids per day.

I'm so grateful that I had the income replacement insurance in place.  I could not have TX'd without some income and that provided the means.  Of course, it's my money - I paid intothe system throught payroll deductions . . .

Anyway, this is such a difficult treatment and my heart goes out to those who have to to struggle through work while suffering physically.  I know i couldn't have done it.

wyntre

[Lady Lauri]

                              Brain fogged tally of the poll! :}

Read thru and put into categories as per situations, etc. Each one being different of course, but...

  The C's have it!

1.) C -- though most comments leaned towards HAD to work, wouldn't have if possible.

2.) B--  Not at all, no way! Desk jobs being a bit doable, long as no huge 'decision; making responsibilities, those obviously harder. Physical work was about ...unofficially....95% NOT.

3.) D--  Comments were tried but had to stop, couldn’t do it (as myself) so B could have beaten out C as many seem to stop early in.

4.) A--- Beat 'had to go total part time' by little

5.) E--- Had to go to P/T...comments leaning towards because HAD to work.

6.) F--- only a few lost jobs due to tx, tho would probably be more if not for E...went to total P/T

  Over all, few 'worked no problem' but most kept working but suffered, which is what I think most of us on or done tx figured. Unofficial opinion is that many wouldn't have worked if possible. I have to agree that taking it easy, using energy to heal-make it thru tx, putting tx and your needs first a must in this. I am not 'working', but do 'desk job' work at home when I am up to it. I do keep busy when possible, but having the luxury of being able to rest, lay down, etc. when needed is making this much easier than when I HAVE to do something.
SO..... physical workers.... prepare ahead for tx. Major decision makers....prepare to screw up (kidding), prepare to think twice, 3 times before hand. Desk jobs workers….get a lock on your office door for naps!

  Over all summation of unofficial poll…… tx is hard for most and affects work a lot…..prepare ahead!

                                                         Thanks all, Lauri

[spcecst2]

You should add one more G.)  Worked-but had problem not cussing out people during meetings!!!!
I've worked every time, dreamed everyday I could hit lotto and stay home!! Had to check myself at many big meetings, just kept telling myself it's almost over, it's almost over, kind of like "there's no place like home, there's no place like home!! Pay no attention to that man behind the curtain.....
Gotta go let toto out now......................